The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.
Using the PhenX Toolkit to Add Standard Measures to a Study
Abstract
The PhenX (consensus measures for Phenotypes and eXposures) Toolkit (https://www.phenxtoolkit.org/) offers high‐quality, well‐established measures of phenotypes and exposures for use by the scientific community. The goal is to promote the use of standard measures, enhance data interoperability, and help investigators identify opportunities for collaborative and translational research. The Toolkit contains 395 measures drawn from 22 research domains (fields of research), along with additional collections of measures for Substance Abuse and Addiction (SAA) research, Mental Health Research (MHR), and Tobacco Regulatory Research (TRR). Additional measures for TRR that are expected to be released in 2015 include Obesity, Eating Disorders, and Sickle Cell Disease. Measures are selected by working groups of domain experts using a consensus process that includes input from the scientific community. The Toolkit provides a description of each PhenX measure, the rationale for including it in the Toolkit, protocol(s) for collecting the measure, and supporting documentation. Users can browse measures in the Toolkit or can search the Toolkit using the Smart Query Tool or a full text search. PhenX Toolkit users select measures of interest to add to their Toolkit. Registered Toolkit users can save their Toolkit and return to it later to revise or complete. They then have options to download a customized Data Collection Worksheet that specifies the data to be collected, and a Data Dictionary that describes each variable included in the Data Collection Worksheet. The Toolkit also has a Register Your Study feature that facilitates cross‐study collaboration by allowing users to find other investigators using the same PhenX measures. © 2015 by John Wiley & Sons, Inc.
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“These questions were adapted from questionnaires available at the PhenX toolkit (consensus measures for Phenotypes and eXposures), which provides recommended standard data collection protocols for conducting biomedical research [60] and which has been recommended by the microbiome research community [61].”
From Citizen science charts two major “stomatotypes” in the oral microbiome of adolescents and reveals links with habits and drinking water composition (2018) · cites this paper as [60]
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Electronic Medical Records for Genetic Research: Results of the eMERGE Consortium
Kho, A. N., Pacheco, J. A., Peissig, P. L., Rasmussen, L., Newton, K. M., Weston, N., Crane, P. K., Pathak, J., Chute, C. G., Bielinski, S. J., et al. (2011) · Science Translational Medicine · doi:10.1126/scitranslmed.3001807 · Cited by 336
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- 10.1002/gepi.20564 · DOI
- 10.1016/j.drugalcdep.2014.04.029 · DOI
- Maiese D.R. Hendershot T.P. Strader L.C. Wagener D.K. Hammond J.A. Huggins W. Kwok R.K. Hancock D.B. Whitehead N.S. Nettles D.S. Pratt J.G. Scott M.S. Conway K.P. Junkins H.A. Ramos E.M. andHamilton C.M.2013.PhenX—Establishing a Consensus Process to Select Common Measures for Collaborative Research. RTI Press publication no. MR‐0027‐1310. RTI Press Research Triangle Park N.C. · DOI
- 10.1038/ng1007-1181 · DOI
- 10.1186/1755‐8794‐7‐16 · DOI
- 10.1097/MOL.0b013e3283377395 · DOI
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Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O'Neal, L., McLeod, L., Delacqua, G., Delacqua, F., Kirby, J., et al. (2019) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2019.103208 · Cited by 24,013
Addictions neuroclinical assessment: a neuroscience-based framework for addictive disorders
Kwako, L. E., Momenan, R., Litten, R. Z., Koob, G. F., & Goldman, D. (2016) · Biological Psychiatry · doi:10.1016/j.biopsych.2015.10.024 · Cited by 395
Willis, J. R., González-Torres, P., Pittis, A. A., Bejarano, L. A., Cozzuto, L., Andreu-Somavilla, N., Alloza-Trabado, M., Valentín, A., Ksiezopolska, E., Company, C., et al. (2018) · Microbiome · doi:10.1186/s40168-018-0592-3 · Cited by 158
Using Electronic Health Records To Generate Phenotypes For Research
Pendergrass, S. A., & Crawford, D. C. (2019) · Current Protocols in Human Genetics · doi:10.1002/cphg.80 · Cited by 120
Metadata
- Authors
- Hendershot, T., Pan, H., Haines, J., Harlan, W. R., Marazita, M. L., McCarty, C. A., Ramos, E. M., & Hamilton, C. M.
- Venue
- Current Protocols in Human Genetics
- Publisher
- Wiley
- Published
- 2015-07
- Volume
- 86
- Issue
- 1
- ISSN
- 1934-8266
- 1934-8258
- PMC
- PMC8029591
- Cited by
- 25
- References
- 1
- Language
- en
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