Severe and enduring anorexia nervosa: Update and observations about the current clinical reality
Open accessAbstract
Several objectives underlie the current article. First, to review historical diagnostic issues and clinical strategies for treating SE‐AN. Second, to provide an overview of recent evidence informed strategies and clinical innovations for the treatment of SE‐AN. Third, based on the authors' collective clinical and research experience, we offer eight observations that we believe capture the current clinical experience of patients with SE‐AN. Some of these observations represent empirically testable hypotheses, but all are designed to generate a meaningful discussion about the treatment of this group of individuals with eating disorders. Finally, we hope to call clinicians, scientists, professional organizations, advocates, and policy makers to action to attend to critical issues related to the care of individuals with SE‐AN. We believe that an international discussion could clarify areas of need for these patients and identify opportunities for clinical innovation that would enhance the lives of individuals with SE‐AN and their families.
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SEED and SE-AN have not been validated for clinical use or formally recognized as psychiatric diagnoses by ICD-11 or DSM-5-TR.
“They have not been validated for clinical use or formally recognized as a psychiatric diagnosis by the International Classification of Diseases, 11th Edition (ICD-11) or Diagnostic and Statistical Manual of Mental Disorders, 5th Edition, Text Revision (DSM-5-TR) (105, 108–112).”
From Assisted death in eating disorders: a systematic review of cases and clinical rationales (2024) · cites this paper as [111]
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References 86 · Cited by 143
- Authors
- Wonderlich, S. A., Bulik, C. M., Schmidt, U., Steiger, H., & Hoek, H. W.
- Affiliations
- University of North Dakota (US)
- University of North Carolina at Chapel Hill (US)
- King's College London (GB)
- Douglas Mental Health University Institute (CA)
- University Medical Center Groningen (NL)
- Corresponding author
- Wonderlich, Stephen A.
- Venue
- International Journal of Eating Disorders
- Publisher
- Wiley
- Published
- 2020-05-02
- Volume
- 53
- Issue
- 8
- Pages
- 1303-1312
- ISSN
- 0276-3478 (ISSN-L)
- 1098-108X
- OpenAlex
- W3021005589
- Cited by
- 143
- References
- 86
- Citations by year
- 2026: 11 · 2025: 24 · 2024: 26 · 2023: 23 · 2022: 23 · 2021: 22 · 2020: 14
- FWCI
- 8.21
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- International Journal of Eating Disorders (publishedVersion)
- PubMed (publishedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion, other-oa)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
- Funders
- Menzies Centre for Australian Studies, King's College London, University of London
- South London and Maudsley NHS Foundation Trust
- National Institutes of Health (R01DK112487, R01MH120170)
- Vetenskapsrådet (538‐2013‐8864)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Eating Disorders and Behaviors
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Health Sciences › Nursing › Nutrition and Dietetics › Nutrition, Health and Food Behavior
- Keywords
- severe and enduring anorexia nervosa, eating disorders, diagnostic challenges, clinical strategies, treatment innovation, clinical observation, family care
- MeSH terms
- Anorexia Nervosa, Humans
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