California takes the lead on data privacy law
Abstract
In the early 1970s, Congress considered enacting comprehensive privacy legislation, but it was unable to do so. In 1974, it passed the Privacy Act, applicable only to information in the possession of the federal government. In the intervening years, other information privacy laws enacted by Congress, such as the Health Insurance Portability and Accountability Act, have been weak and sector specific. With the explosion of information technology and the growing concerns about an absence of effective federal privacy laws, the legal focus has shifted to the states. Signaling a new direction in state data privacy and consumer protection law, the California Consumer Privacy Act establishes important rights and protections for California residents with regard to the collection, use, disclosure, and sale of their personal information. The CCPA is certain to spur similar legislation and to affect national and international businesses that collect data from California's residents. Understanding the new law is important for all data‐driven industries, including health care.
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Raw STR profiles from patient-derived xenografts are considered personal data under the GDPR and CCPA.
“regulatory regimes such as the EU General Data Protection Regulation (GDPR) [109] and the California Consumer Privacy Act (CCPA) remind us that raw STR profiles from patient-derived xenografts are considered personal data [110,111].”
From Genetic Insights into the Economic Toll of Cell Line Misidentification: A Comprehensive Review (2026) · cites this paper as [110]
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Genetic Insights into the Economic Toll of Cell Line Misidentification: A Comprehensive Review
Weiskirchen, R. (2026) · Medical Sciences · doi:10.3390/medsci14010025 · Cited by 4 · see citing works
- Authors
- Rothstein, M. A., & Tovino, S. A.
- Venue
- Hastings Center Report
- Publisher
- Wiley
- Published
- 2019-09
- Volume
- 49
- Issue
- 5
- Pages
- 4-5
- ISSN
- 0093-0334 (ISSN-L)
- 1552-146X
- OpenAlex
- W2979068396
- Cited by
- 37
- References
- 0
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 6 · 2023: 4 · 2022: 3 · 2021: 10 · 2020: 8 · 2019: 1 · 2018: 1
- FWCI
- 48.00
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Hastings Center Report (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Law › Digitalization, Law, and Regulation
- Social Sciences › Sociology and Political Science › Privacy, Security, and Data Protection
- Physical Sciences › Computer Science › Information Systems › Thoreau and American Literature
- Keywords
- California Consumer Privacy Act, data privacy law, personal data, consumer protection, HIPAA, federal privacy legislation, cross-border data flows
- MeSH terms
- California, Confidentiality, Data Collection, Humans, Patient Advocacy, United States, Medical Records Systems, Computerized, Privacy, Health Insurance Portability and Accountability Act, Government Regulation, Information Dissemination, Federal Government
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