Palliative care considerations and practices for adolescents and young adults with cancer
Abstract
The definition of adolescents and young adults (AYAs) in oncology varies with upper limits up to age 39. Younger AYAs, ages 12-24 years, are often cared for within pediatrics. In caring for AYAs with cancer, there are unique considerations that become even more important to recognize, acknowledge, and address in AYAs with life-threatening cancer receiving palliative care. This review highlights important factors such as psychosocial development, cultural considerations, and support structure, which should be considered when providing palliative care to AYAs with cancer during the various stages of care: introduction of palliative care; symptom management; advanced care planning (ACP); end-of-life (EOL) care; and bereavement.
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In the last month of life, AYAs most commonly endorse feelings of sadness, anxiety, fear of being alone, fear of dying, fear of pain, and guilt.
“In the last month of life, AYAs most commonly endorse feelings of sadness, anxiety, fear of being alone, fear of dying, fear of pain, and guilt [55].”
From Psychological and Psychiatric Comorbidities in Youth with Serious Physical Illness (2022) · cites this paper as [55]
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References 72 · Cited by 35
- Authors
- Upshaw, N. C., Roche, A., Gleditsch, K., Connelly, E., Wasilewski‐Masker, K., & Brock, K. E.
- Affiliations
- Emory University (US)
- Children's Healthcare of Atlanta (US)
- Carolinas Medical Center (US)
- Corresponding author
- Upshaw, Naadira C.
- Venue
- Pediatric Blood & Cancer
- Publisher
- Wiley
- Published
- 2020-10-21
- Volume
- 68
- Issue
- 1
- Pages
- e28781-e28781
- ISSN
- 1545-5009 (ISSN-L)
- 1545-5017
- OpenAlex
- W3093782143
- Cited by
- 35
- References
- 72
- Citations by year
- 2026: 5 · 2025: 8 · 2024: 7 · 2023: 6 · 2022: 7 · 2021: 2
- FWCI
- 0.63
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Pediatric Blood & Cancer (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Keywords
- palliative care, adolescents and young adults, cancer, psychosocial development, cultural factors, support systems, symptom management, advance care planning, end-of-life care, bereavement, transition from pediatric to adult care
- MeSH terms
- Adolescent, Adult, Humans, Neoplasms, Palliative Care, Practice Guidelines as Topic, Young Adult
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