Access to Care for Autism-Related Services
Abstract
This paper identifies family characteristics associated with use of autism-related services. A telephone or in-person survey was completed during 2003-2005 by 383 North Carolina families with a child 11 years old or younger with ASD. Access to care is limited for racial and ethnic minority families, with low parental education, living in nonmetropolitan areas, and not following a major treatment approach. Service use is more likely when parents have higher stress. Families use a broad array of services; the mix varies with child ASD diagnosis and age group. Disparities in service use associated with race, residence and education point to the need to develop policy, practice and family-level interventions that can address barriers to services for children with ASD.
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Families living outside metropolitan areas have less access to care for ASD than those in urban areas, often due to a shortage of specialists.
“Families living outside metropolitan areas have less access to care for ASD than those in urban areas, often due to a shortage of specialists.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [10]
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References 49 · Cited by 369
- Authors
- Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- Corresponding author
- Thomas, Kathleen C.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2007-03-19
- Volume
- 37
- Issue
- 10
- Pages
- 1902-1912
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2087760159
- Cited by
- 369
- References
- 49
- Citations by year
- 2026: 3 · 2025: 10 · 2024: 14 · 2023: 16 · 2022: 17 · 2021: 26 · 2020: 39 · 2019: 32 · 2018: 24 · 2017: 28 · 2016: 26 · 2015: 25 · 2014: 25 · 2013: 22 · 2012: 16
- FWCI
- 4.33
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute of Mental Health (R21MH066143)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, health care access, parental education, parental stress, treatment options, children with autism, barriers to services
- MeSH terms
- Autistic Disorder, Child, Child Development Disorders, Pervasive, Child, Preschool, Community Health Services, Ethnicity, Female, Health Services Accessibility, Health Services Needs and Demand, Health Services Research, Humans, Male, Intellectual Disability, North Carolina, Socioeconomic Factors, Urban Population, Utilization Review, Health Care Surveys, Asperger Syndrome, Healthcare Disparities
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