The DOI matches its Crossref record; 45 of the 45 references it cites were found in a registry or an index.
Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD
Open accessAbstract
In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB.
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“In fact, it now seems likely that they often serve a regulatory, soothing function for autistic people (e.g. Joyce, Honey, Leekam, Barrett, & Rodgers, 2017; Kapp et al., 2019).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Joyce, Honey, Leekam, Barrett, & Rodgers, 2017
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“Recently, IU has been associated with some of the core characteristics of ASD [26–28].”
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“The concept resonates clinically with some of the core characteristics of ASD (Joyce et al. 2017; Rodgers et al. 2012; South and Rodgers 2017).”
From Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study. (2018) · cites this paper as Joyce et al. 2017
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Cites
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Research works printed but not linked: 1
- Walker, S. (2009). What do we know about the relationship between intolerance of uncertainty and worry in young children? Unpublished Thesis. Newcastle University, Newcastle upon Tyne, UK.
Cited by
Sorted by citations
Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science
Pellicano, E., & den Houting, J. (2022) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13534 · Cited by 744
‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
Kapp, S. K., Steward, R., Crane, L., Elliott, D., Elphick, C., Pellicano, E., & Russell, G. (2019) · Autism · doi:10.1177/1362361319829628 · Cited by 495
Jaswal, V. K., & Akhtar, N. (2019) · Behavioral and Brain Sciences · doi:10.1017/s0140525x18001826 · Cited by 436
Jones, C. R. G., Simonoff, E., Baird, G., Pickles, A., Marsden, A. J. S., Tregay, J., Happé, F., & Charman, T. (2018) · Autism Research · doi:10.1002/aur.1873 · Cited by 259
Jenkinson, R., Milne, E., & Thompson, A. (2020) · Autism · doi:10.1177/1362361320932437 · Cited by 205
“One study (Joyce et al., 2017) used a screening tool but did not exclude participants with subthreshold scores.”
BackgroundMethod
Metadata
- Authors
- Joyce, C., Honey, E., Leekam, S. R., Barrett, S. L., & Rodgers, J.
- Affiliations
- Newcastle University (GB)
- Cardiff University (GB)
- Corresponding author
- Joyce, Caroline
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2017-02-25
- Volume
- 47
- Issue
- 12
- Pages
- 3789-3802
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2589756919
- Cited by
- 171
- References
- 44
- Citations by year
- 2026: 14 · 2025: 22 · 2024: 18 · 2023: 26 · 2022: 15 · 2021: 34 · 2020: 13 · 2019: 17 · 2018: 8 · 2017: 4
- FWCI
- 6.60
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Licence
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (acceptedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by-nc)
- Funders
- Economic and Social Research Council (ES/F037821/1)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Obsessive-Compulsive Spectrum Disorders
- Keywords
- autism spectrum disorder, restricted and repetitive behaviors, anxiety, intolerance of uncertainty, youth, self-report, parent report
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Anxiety, Female, Humans, Male, Surveys and Questionnaires, Stereotyped Behavior, Uncertainty, Young Adult, Self Report
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