The DOI matches its Crossref record; 21 of the 22 references it cites were found in a registry or an index.
National and State Estimates of Adults with Autism Spectrum Disorder
Open accessAbstract
U.S. national and state population-based estimates of adults living with autism spectrum disorder (ASD) are nonexistent due to the lack of existing surveillance systems funded to address this need. Therefore, we estimated national and state prevalence of adults 18-84 years living with ASD using simulation in conjunction with Bayesian hierarchal models. In 2017, we estimated that approximately 2.21% (95% simulation interval (SI) 1.95%, 2.45%) or 5,437,988 U.S. adults aged 18 and older have ASD, with state prevalence ranging from 1.97% (95% SI 1.55%, 2.45%) in Louisiana to 2.42% (95% SI 1.93%, 2.99%) in Massachusetts. Prevalence and case estimates of adults living with ASD (diagnosed and undiagnosed) can help states estimate the need for diagnosing and providing services to those unidentified.
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“Autism and ADHD affect approximately 2%41 and 5%42 of the adult general population.”
From Beyond bendy joints: number of variant connective tissue features predicts neurodivergent characteristics in hypermobile individuals with anxiety (2026) · cites this paper as [41]
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Cites
Diagnostic and Statistical Manual of Mental Disorders
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“We used partial pooling to reduce the influence of outliers and estimates from states with small numbers of observations, resulting in more statistically robust estimates (Gelman 2013).”
MethodDiagnostic and Statistical Manual of Mental Disorders, 5th ed.
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Self-citationThe health status of adults on the autism spectrum
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Premature mortality in autism spectrum disorder
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016) · British Journal of Psychiatry · doi:10.1192/bjp.bp.114.160192 · Cited by 1,011
Epidemiology of Autism Spectrum Disorders in Adults in the Community in England
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Congenital Heart Defects in the United States
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The prevalence of parent-reported autism spectrum disorder among US children
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Cited by
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Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309
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“, 2020), a prevalence nearly double that of the general population (Dietz et al., 2020).”
BackgroundEpidemiological surveys of ASD: advances and remaining challenges
Fombonne, E., MacFarlane, H., & Salem, A. C. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05005-9 · Cited by 147
Persico, A. M., Ricciardello, A., Lamberti, M., Turriziani, L., Cucinotta, F., Brogna, C., Vitiello, B., & Arango, C. (2021) · Progress in Neuro-Psychopharmacology and Biological Psychiatry · doi:10.1016/j.pnpbp.2021.110326 · Cited by 142
Risk of Self-harm in Children and Adults With Autism Spectrum Disorder
Blanchard, A. M., Chihuri, S. T., DiGuiseppi, C. G., & Li, G. (2021) · JAMA Network Open · doi:10.1001/jamanetworkopen.2021.30272 · Cited by 138
Metadata
- Authors
- Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M.
- Affiliations
- Centers for Disease Control and Prevention (US)
- Corresponding author
- Dietz, Patricia M.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2020-05-10
- Volume
- 50
- Issue
- 12
- Pages
- 4258-4266
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- PMC
- PMC9128411
- OpenAlex
- W3021253625
- Cited by
- 351
- References
- 22
- Citations by year
- 2026: 71 · 2025: 71 · 2024: 60 · 2023: 49 · 2022: 50 · 2021: 45 · 2020: 5
- FWCI
- 20.00
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institutes of Health (CC999999)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Health and Medical Studies
- Keywords
- autism spectrum disorder, autistic adults, prevalence estimation, state-level prevalence, undiagnosed autism, Bayesian hierarchical model, simulation
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Adult, Bayes Theorem, Child, Computer Simulation, Female, Humans, Male, Massachusetts, Population Surveillance, Prevalence
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