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Birth Characteristics Associated With Early Intervention Referral, Evaluation for Eligibility, and Program Eligibility in the First Year of Life
Abstract
Objectives The Individual with Disabilities Education Act mandates Early Intervention (EI) services for infants and toddlers with developmental delay. We assessed the percentage of infants at risk for developmental delay due to characteristics present at birth who were referred to Massachusetts EI within 1 year of birth, evaluated for eligibility, and eligible for services. In addition, we identified birth characteristics that independently predicted 0-1 year program referral, evaluation, and eligibility. Methods The Pregnancy to Early Life Longitudinal (PELL) data system linked birth certificate, hospital discharge, and EI program data of 219,037 infants born in Massachusetts, 1998-2000. Multivariate logistic regressions identified independent infant predictors of referral, evaluation, and eligibility. Results Of 219,037 births, 14,852 (6.8%) were referred to EI within 1 year. Birthweight Conclusion EI referral and evaluation are high among infants born at risk for delay in Massachusetts. Some characteristics not included in the state's high-risk definition (e.g. birthweight 1200-1499 g) were identified that predicted referral. Most referrals were eligible for services. Results demonstrate the value to states of using linked population and program data for program evaluation.
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The PELL system serves as the primary population model for successfully linking existing systems for developmental monitoring and Child Find purposes.
“The PELL system serves as the primary population model for successfully linking existing systems for developmental monitoring and Child Find purposes”
From A Systematic Review of Part C Early Identification Studies (2018) · cites this paper as Clements et al., 2006
The Pregnancy to Early Life Longitudinal (PELL) Data System from Massachusetts met criteria for a model system for children from general population (primary) settings.
“The Pregnancy to Early Life Longitudinal (PELL) Data System from Massachusetts was identified from published reports that included all the key data points in the model for children from general population (primary) settings”
From A Systematic Review of Part C Early Identification Studies (2018) · cites this paper as Clements et al., 2006
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Barfield, W. D., Clements, K. M., Lee, K. G., Kotelchuck, M., Wilber, N., & Wise, P. H. (2008) · Maternal and Child Health Journal · doi:10.1007/s10995-007-0227-y · Cited by 92
Self-citationA Systematic Review of Part C Early Identification Studies
Barger, B., Rice, C., Simmons, C. A., & Wolf, R. (2018) · Topics in Early Childhood Special Education · doi:10.1177/0271121416678664 · Cited by 41
“…from Massachusetts was identified from published reports that included all the key data points in the model for children from general population (primary) settings (Barfield et al., 2008; Clements et al., 2007; Clements et al., 2006; Clements et al., 2008; Derrington, 2012; Manning et al., 2011).”
Influential
Metadata
- Authors
- Clements, K. M., Barfield, W. D., Kotelchuck, M., Lee, K. G., & Wilber, N.
- Affiliations
- Massachusetts Department of Public Health (US)
- Boston University (US)
- Beth Israel Deaconess Medical Center (US)
- Corresponding author
- Clements, Karen M.
- Venue
- Maternal and Child Health Journal
- Published
- 2006-05-19
- Volume
- 10
- Issue
- 5
- Pages
- 433-441
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- OpenAlex
- W2162082816
- Cited by
- 48
- References
- 0
- Citations by year
- 2026: 1 · 2025: 1 · 2023: 3 · 2022: 3 · 2021: 1 · 2020: 4 · 2019: 7 · 2018: 3 · 2017: 1 · 2016: 3 · 2015: 1 · 2014: 1 · 2013: 1 · 2012: 2
- FWCI
- 3.24
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Maternal and Child Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Funders
- U.S. Public Health Service (S3485-23/23, S1887-21/23)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Education › Early Childhood Education and Development
- Keywords
- early intervention, developmental delay, infants and toddlers, birth weight, low birth weight, birth characteristics, high-risk infants, triplet births, Individuals with Disabilities Education Act, Massachusetts
- MeSH terms
- Developmental Disabilities, Disability Evaluation, Eligibility Determination, Humans, Infant, Massachusetts, Medical Record Linkage, Referral and Consultation, Risk Factors, Confidence Intervals, Odds Ratio, Early Intervention, Educational, Risk Assessment
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