National Institutes of Health Hematopoietic Cell Transplantation Late Effects Initiative: The Patient-Centered Outcomes Working Group Report

Bevans, Margaret, El-Jawahri, Areej, Tierney, D. Kathryn, Wiener, Lori, Wood, William A., Hoodin, Flora, Kent, Erin E., Jacobsen, Paul B. +4 more·2017·Biology of Blood and Marrow Transplantation

Cited by (166)

Items 101–166 of 166

  1. Quality of life and informational needs for allogeneic hematopoietic stem cell transplant among patients and their caregivers visiting long-term follow-up clinic
    Shohei Nakajima, Kiyoko Kamibeppu · 2022 · BLOOD CELL THERAPY / The official journal of APBMT
  2. Evaluation of oral health‐related quality of life in children with acute lymphocytic leukemia/acute myelocytic leukemia: A cross‐sectional study
    Münevver Çoruh Kılıç, Sevcihan Günen Yılmaz, Zehra Merve Kockopru · 2023 · Oral Diseases
  3. Health‐related quality of life in adult and pediatric survivors
    Sandra A. Mitchell, Lori S. Wiener, Jenny Hoag, Abigail Fry, Margaret F. Bevans · 2021 · Wiley eBooks
  4. A Pilot Study of the Cancer Distress Coach‐Caregiver App: A Digital Intervention for Reducing PTSD Symptoms in HCT Caregivers
    Allison J. Applebaum, Rebecca R. Gebert, Cole Manschot, Eric R. Kuhn, Eric B. Laber, Amanda L. Kastrinos, Osborn Owusu Ansah, Hannah‐Rose Mitchell, Sophia K. Smith · 2025 · Psycho-Oncology
  5. Symptoms of Survivors of Pediatric Hematopoietic Stem Cell Transplant by Age, Sex, and Transplant Type
    Caroline F. Morrison, Sarah Drake, Nathan L Basile, Mary Jane Horn, Joshua Lambert, Kasiani C. Myers, Ahna L. H. Pai · 2022 · Journal of Pediatric Hematology/Oncology Nursing
  6. Randomised controlled trial of a psychosocial digital health application to promote coping for caregivers of patients undergoing haematopoietic stem cell transplantation: a study protocol for the BMT-CARE app
    Kelcie D. Willis, Anna Barata, Madison Freese, Allison J. Applebaum, Ashley M. Nelson, Lara N. Traeger, Nora Horick, Dustin John Rabideau, Jennifer S. Temel, Joseph A. Greer et al. · 2025 · BMJ Open
  7. Dietary Micronutrient Intake in Long-Term Survivors of Pediatric Hematopoietic Stem Cell Transplantation
    Louise Lindkvist Pedersen, Maria Ebbesen Sørum, Anne Anker Nissen, Tina Gerbek, Karin Kok, Kaspar Sørensen, Martin Kaj Fridh, Christian Mølgaard, Klaus Müller · 2025 · Nutrients
  8. Chronic gvhd dictionary—eurograft cost action initiative consensus report
    Ana Zelić, Atillio Olivieri, Helene M. Schoemans, Ánita Lawitschka, Jörg P. Halter, Dražen Pulanić, Anne Mary Dickinson, Hildegard Greinix, Steven Zivko Pavletic, Kirk R. Schultz et al. · 2022 · Bone Marrow Transplantation
  9. Effect of pranayama and mindfulness meditation on emotional distress and fatigue in adult hematological cancer patients undergoing chemotherapy
    Anjali Mangesh Joshi, Suchitra Ajay Mehta, Nishad Gajanan Dhakate, Ajay Omprakash Mehta · 2023 · Yoga Mimamsa
  10. Memory and Attention Adaptation Training
    Robert Ferguson, Karen L. Gillock · 2021 · Oxford University Press eBooks
  11. Sleep Quality in Patients With Ocular Graft-Versus-Host Disease After Allogeneic Hematopoietic Stem Cell Transplantation
    Yinglin Liao, Jing Li, Jing Yang, Wenxin Zhao, Ziyan Chen, Shaowen Wu, Ling Jin, Fen Huang, Lingyi Liang · 2023 · Eye & Contact Lens Science & Clinical Practice
  12. [Evaluation of differences in quality of life in patients with chronic graft-versus-host disease].
    Siming Huang, Rong Huang, Yihao Quan, Fu Min Wang, Xianjing Cheng, X Q Wang, X Zhang · 2024 · PubMed Central
  13. Prospective Association of Psychological Distress and Sexual Quality of Life Among Hematopoietic Stem Cell Transplant Survivors
    Jennifer A. Vencill, Janae L. Kirsch, Keagan L. McPherson, Eric L. Sprankle, Christi A. Patten, Kristie L. Campana, Tabetha A. Brockman, Carrie A. Bronars, Christine A. Hughes, Dennis A. Gastineau et al. · 2024 · Journal of Clinical Psychology in Medical Settings
  14. Hematopoetik Kök Hücre Transplantasyonu Sonrası Yaşam: Hemşirenin Bakım Rolü
    Hava Kara, Fatma Arıkan · 2021 · Uludağ Üniversitesi Tıp Fakültesi Dergisi
  15. Impact of chronic GVHD on QOL assessed by visual analogue scale in pediatric HSCT survivors and differences between raters: a cross-sectional observational study in Japan
    Akira Hayakawa, Iori Sato, Kiyoko Kamibeppu, Yasushi Ishida, Masami Inoue, Atsushi Satō, Masaaki Shiohara, Hiromasa Yabe, Kazutoshi Koike, Souichi Adachi et al. · 2021 · International Journal of Hematology
  16. Standardized translations of the Lee Chronic GvHD Symptom Scale to 12 European languages: an EU COST Action cGvHD Eurograft project
    Lars Klingen Gjærde, Oscar E. Brück, Nico Gagelmann, Eleni Gavriilaki, Marit Inngjerdingen, Mikko A. I. Keränen, Annika Malmborg Kisch, Anders Eivind Myhre, Attilio Olivieri, José Antonio Pérez‐Simón et al. · 2024 · Bone Marrow Transplantation
  17. Late Psychiatric and Neurocognitive Effects of Chimeric Antigen Receptor T Cell Therapy Warrant Further Investigation
    Tamara Kay Moyo · 2019 · Transplantation and Cellular Therapy
  18. Palliative Care for the Hematopoietic Cell Transplant and Cellular Therapy Clinician
    Winnie Wang, Eric J. Roeland, Thomas William LeBlanc, Areej R El-Jawahri · 2020 · Advances and controversies in hematopoietic transplantation and cell therapy
  19. Relationship between work performance and quality of life in long-term survivors of pediatric and adolescent hematopoietic cell transplant
    Neel Sanjivbhai Bhatt, Ruta Brazauskas, Akasha Palou‐Torres, Rachel Phelan, Bronwen E. Shaw · 2022 · Journal of Cancer Survivorship
  20. A Systematic Review and Metasynthesis of Hematopoietic Stem Cell Transplant (HSCT) Patient's Experiences of Long-Term Monitoring Clinics from the Patient's Perspective
    Blossom Bell, Stacie Thursby, Helen Limbrick, Katherine Swainston · 2024 · Journal of Patient Experience
  21. The sequelae of hematopoietic stem cell transplantation in adolescents and young adults: protocol for a systematic review
    Nikita Vashi Baclig, Antonia Osuna-Garcia, Vivek Chotai, Patricia A. Ganz, Eden R. Brauer · 2024 · Systematic Reviews
  22. Life 2.0: a comprehensive cross-sectional profiling of long-term allogeneic hematopoietic cell transplantation survivors compared to a matched general population cohort
    Helene M. Schoemans, Kathy Goris, Steffen Fieuws, Koen Theunissen, Kristel Buvé, Liesbet Lammertijn, Greet Bries, Hilde Demuynck, Vincent Maertens, Helena Maes et al. · 2025 · Bone Marrow Transplantation
  23. The Lived Experience of Pediatric Hematopoietic Stem Cell Transplantation: Pre-HCT Understanding and Post-HCT Health-Related Quality of Life
    Yanglu Chen, Corrine N Ahrabi-Nejad, Katie DiCola, Carly Mulinda, Molly L. Tanenbaum, Melissa Beauchemin, Monica Bhatia, Dara M. Steinberg · 2025 · Clinical Practice in Pediatric Psychology
  24. Profoundly Depleted: Qualitative Study of Persistent Fatigue Following Hematopoietic Cell Transplant
    Ashley M. Nelson, Katherine G. Cronin, Ally M. Wood, Lara N. Traeger, Anna Barata, Richard Andrew Newcomb, Hermioni Lokko Amonoo, Heather Jim, Hans Knoop, Areej R El-Jawahri et al. · 2025 · Journal of Pain and Symptom Management
  25. Interventions Improving Coping Strategies and Promoting Compliance in Adolescents Undergoing Hematopoietic Stem Cell Transplantation: A Mixed-Method Systematic Review
    Marion Rouge, Sébastien Colson, Hérvè Chambost, Paul Saultier · 2026 · Cancer Nursing
  26. Assessing and Preparing Patients for Hematopoietic Stem Cell Transplant in Canada: An Environmental Scan of Psychosocial Care
    Sara Beattie, Maryam Qureshi, Jennifer Pink, Zen Gajtani, Andrea Feldstain · 2023 · Current Oncology
  27. Impact of cGVHD on socioeconomic outcomes in survivors with pediatric hematopoietic stem cell transplant in Japan: a cross-sectional observational study
    Takafumi Soejima, Masaaki Shiohara, Yasushi Ishida, Masami Inoue, Akira Hayakawa, Atsushi Satō, Kiyoko Kamibeppu, Yoshiko Atsuta, Takuya Yamashita · 2021 · International Journal of Hematology
  28. Screening and prevention guidelines for hematopoietic cell transplant survivors
    Neel Sanjivbhai Bhatt, J. Douglas Rizzo, Navneet S. Majhail · 2021
  29. Correction to: Impact of cGVHD on socioeconomic outcomes in survivors with pediatric hematopoietic stem cell transplant in Japan: a cross-sectional observational study
    Takafumi Soejima, Masaaki Shiohara, Yasushi Ishida, Masami Inoue, Akira Hayakawa, Atsushi Satō, Kiyoko Kamibeppu, Yoshiko Atsuta, Takuya Yamashita · 2021 · International Journal of Hematology
  30. Impact of adherence in outcome of long‐term survivors
    Corien Eeltink, Annika Malmborg Kisch · 2021
  31. Patient reported outcomes
    Helene M. Schoemans · 2021
  32. Survivor Workbook
    Robert J. Ferguson, Karen Lee Gillock · 2021 · Oxford University Press eBooks
  33. Survivorship Issues: Practices, Guidelines and Controversies
    Shahrukh Khurshid Hashmi, Minoo Battiwalla · 2020 · Advances and controversies in hematopoietic transplantation and cell therapy
  34. Evaluation Of Oral Health-Related Quality Of Life In Children With Hematological Malignances
    Münevver Çoruh Kılıç, Sevcihan Günen Yılmaz · 2021
  35. Camino de Santiago: impresiones de un simple peregrino
    José Ángel Barrio Loza · 2002 · Dialnet (Universidad de la Rioja)
  36. Conceptualizing the psychosocial elements that should be assessed in candidates for hematopoietic cell transplantation: social workers' and psychologists' perspectives.
    Jill Randall · 2021
  37. Visit 5
    Robert J. Ferguson, Karen Lee Gillock · 2021 · Oxford University Press eBooks
  38. Visit 6
    Robert J. Ferguson, Karen Lee Gillock · 2021 · Oxford University Press eBooks
  39. Aplicativos móveis para pacientes pós transplante de medula óssea: revisão integrativa
    Keron dos Santos Sanches, Juliana Silva Herbert, Eliane Goldberg Rabin · 2022 · Revista Recien
  40. Protocol for impact of mindfulness meditation on health-related quality of life in hematopoietic cell transplantation recipients
    Deepesh Pravinkumar Lad, Madhu Chopra, Akshay Anand · 2023 · Integrative Medicine Case Reports
  41. Patient-Reported Symptoms After Hematopoietic Stem Cell Transplantation Complicated by Critical Illness
    Robert Scott Stephens · 2023 · CHEST Critical Care
  42. Hematopoietic Cell Transplantation
    Effie Wang Petersdorf · 2023 · Springer eBooks
  43. Haematopoietic stem cell transplantation: an audit of late effects on patients
    Kate Montague-Hellen, David Greenfield, John Andrew Snowden, Aileen Nield · 2024 · Cancer Nursing Practice
  44. Endocrine Disorders, Fertility, and Sexual Health
    Nina Salooja, Alicia Rovó, Jean‐Hugues Dalle · 2024 · Springer eBooks
  45. Endometriosis in a 22-Year-Old with Premature Ovarian Insufficiency Secondary to Pre-Pubertal Bone Marrow Transplant: a Case Report
    Caiyun Liao, Sangeeta Ramani, Vinita Parkash, Pinar H. Kodaman · 2024 · Reproductive Sciences
  46. Allogeneic Hematopoietic Stem Cell Transplant
    Hikmettullah Batgi, Ersin Bozan, Samet Yaman, Semih Başçı · 2024 · Elsevier eBooks
  47. Investigation of psychological distress and sleep quality in hematopoietic stem cell transplantation patients: a cross-sectional study
    Qian Wu, Jing Xu, Jing Huang, Lin Chen, Yongjia Zhang, Yuan Zhang, Tiehao Wang · 2024 · Research Square
  48. Copyright Page
    Robert J. Ferguson, Karen Lee Gillock · 2021
  49. Use of This Manual
    Robert J. Ferguson, Karen Lee Gillock · 2021
  50. Treatment Fidelity Checklists
    Robert J. Ferguson, Karen Lee Gillock · 2021 · Oxford University Press eBooks
  51. Progressive Muscle Relaxation (PMR) Protocol
    Robert J. Ferguson, Karen Lee Gillock · 2021 · Oxford University Press eBooks
  52. Systemic diseases with increased risk of neurodevelopmental disabilities
    Darrah N. Haffner, Jessica R. Durkee-Shock, Tanjala Gipson, Meghan E. O’Neill, Eliza M. Gordon‐Lipkin · 2024 · Elsevier eBooks
  53. Acceptability and feasibility of acceptance and commitment therapy for improving outcomes in hematopoietic stem cell transplant
    Rhonda M. Merwin, Patrick J. Smith, J. A. Riley, Jordan Infield, Christine O’Connell, Dorothy Mayo, Ashley A. Moskovich, Lauren Hill, Hilary M. Winthrop, Amy T. Bush et al. · 2025 · PLoS ONE
  54. What do pediatric transplant physicians think about palliative care? Results from a national survey study
    Emily C. Merkel, Christa Lea Meyer, Rafeek Adeyemi Yusuf, Caroline F. Morrison, Debra Lynch Kelly, Deena R. Levine, Thomas William LeBlanc, Christina Ullrich, Areej R El-Jawahri · 2025 · Bone Marrow Transplantation
  55. Modifiable Risk Factors in Transplant: Lifestyle Advice and Adherence in a Prospective Cohort Study
    Shawna L. Ehlers, Christi A. Patten, James R. Cerhan, Tabetha A. Brockman, Christine A. Hughes, Paul A. Decker, Janae L. Kirsch, Elizabeth L. Kacel, William J. Hogan, Angela A. Dispenzieri et al. · 2025 · American Journal of Health Behavior
  56. Solid Organ Transplantation After Hematopoietic Cell Transplantation: Is the Evidence Solid Enough?
    Chethan M. Puttarajappa · 2025 · Transplantation
  57. Palliative Care for the Management of Patients with Allogeneic Hematopoietic Stem-Cell Transplantation: A Cross-Sectional Survey in Comprehensive Cancer Centers
    Anne Pralong, Marco Herling, Udo Holtick, Berenike Schoerger, Alinda Reimer, Sukhvir Kaur, Christof Scheid, Michael J. Hallek, Jithmi Weliwitage, Martin Hellmich et al. · 2025 · Oncology Research and Treatment
  58. Severe Brain Atrophy after Allogeneic Hematopoietic Stem Cell Transplantation in a Patient Suffering from Chronic Graft-versus-host Disease
    Yasutaka Masuda, Akira Honda, Reo Yoshioka, Yusuke Baba, Atsushi Sudo, Tatsushi Toda, Mineo Kurokawa · 2026 · Internal Medicine
  59. Apps in der Rheumatologie – wie kann deren Qualität beurteilt werden?
    Janette Ribaut · 2026 · Rheuma Plus / Schweiz
  60. Toward Integrated Psychosocial and Palliative Care in Hematopoietic Stem Cell Transplantation: Models, Gaps, and Practical Recommendations
    Timothy S. Sannes, Benjamin W. Brewer, Lori S. Wiener, Sheila Lahijani, Natalie Susan McAndrew, Cristina Pozo‐Kaderman, Damien M. Miran, Tamryn Fowler Gray, Pallavi V. Babu, Patricia Fank et al. · 2026 · Transplantation and Cellular Therapy
  61. A multimodal sexual health intervention among hematopoietic stem cell transplant recipients: mediating effects on quality of life and mood
    Julia Pepper, Jennifer Barsky Reese, Lara N. Traeger, Tessa Stewart, Andrea Magallanes, Caitlin Smith, Joseph A. Greer, Jennifer S. Temel, Sharon L. Bober, Don Steven Dizon et al. · 2026 · Bone Marrow Transplantation
  62. Child, Caregiver, and Nurse Symptom Reports in Oncology: Evidence for Prioritizing the Child’s Voice
    Kim Sadler, Maryam Saad Alharbi, Wesam Althaqafi, Wejdan Alghamdi, Mona Almutairi, Ahmmed Almubarak, Bushra Hamdan Alotaibi, Alya Shuaib, R Almutairi, Bashayr Albayjan et al. · 2026 · Journal of Pain and Symptom Management
  63. Adaptive, Stepped‐Care for Cancer‐Related PTSD Symptoms in HCT Survivors: Results From a SMART Trial
    Sophia K. Smith, Eric R. Kuhn, Tamara J. Somers, Eric B. Laber, Cole Manschot, Anthony Derek Sung, Sarah A. Kelleher, Catherine M. Majestic, Karen Leslie Syrjala, Deborah K. Mayer et al. · 2026 · Psycho-Oncology
  64. Patient‑Reported Late Effects in Allogeneic Hematopoietic Stem Cell Transplantation Survivorship: A Nationwide Population‑Based Study
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  65. A multimodal approach to sexual function after allogeneic hematopoietic stem cell transplantation: a randomized controlled trial
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  66. Adaptive Compared With Persistent Fatigue in Allogeneic Hematopoietic Cell Transplantation Survivors
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