From chronic disease management to person-centered eHealth; a review on the necessity for blended care
Open accessAbstract
Background A growing need for structural changes in the organization of the health care system has emerged from the fast-growing number of people with chronic illnesses. eHealth supported self-management programs offer a way to change the traditional approach to person-centered care. Objective Inclusion and evaluation of the studies e-Vita and PORTALS, which focused on the necessary elements for implementation of eHealth supported self-management for Chronic Obstructive Pulmonary Disease (COPD) and Oral Anticoagulation Therapy (OAT) patients. Summary Based on this narrative review of the e-Vita COPD study and the PORTALS study, we conclude that eHealth supported self-management integrated into usual care can help patients with COPD and OAT to manage their disease better. We assume that blended care with total integration of eHealth and usual care will provide better quality of care in the long term. While eHealth-supported self-management was not superior to usual care for health status, the studies reported no negative effects, suggesting that eHealth is a safe option for delivery of self-management support and high quality disease management. Usage of the eHealth platforms is better under conditions of perfect integration into usual care and with personal assistance and coaching of patients. The usage is the highest for the patients with platforms that add high practical value to day to day life. The need to educate and coach patients in the use of web-based platforms and to educate healthcare professionals to take a different role, is of great importance. Furthermore, eHealth supported self-management programs need to be offered for a sufficient period to give patients the chance to change their behavior, and finally achieve a better health status. Implications for future research and clinical practice More studies are needed (preferably with larger sample groups, and including non-users) to gain more insight into the optimal combination of usual care and eHealth based self-management, the preferences and needs of various patients, the necessary education for healthcare professionals and patients, the best platform for patients that is easy to use, as well as the related costs.
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Many existing digital interventions for pain self-management lack user-centeredness, with limited involvement of end users and health care providers in the development process.
“Many existing digital interventions for pain self-management also lack user-centeredness, with the limited involvement of end users (ie, people with chronic pain) and health care providers in the development process [21,23,24].”
From Short-Term Findings From Testing EPIO, a Digital Self-Management Program for People Living With Chronic Pain: Randomized Controlled Trial (2023) · cites this paper as [23]
It is possible that the way the EPIO program has been designed in line with existing recommendations, based on end-user and stakeholder input, plays a role in the perception, use, and ultimate effect of the program.
“It is also possible that the way the EPIO program has been designed in line with existing recommendations [23,24], based on end-user and stakeholder input [30], plays a role in the perception, use, and ultimate effect of the program.”
From Short-Term Findings From Testing EPIO, a Digital Self-Management Program for People Living With Chronic Pain: Randomized Controlled Trial (2023) · cites this paper as [23]
Reviews have indicated that professionally guided digital self-management interventions may be more effective than self-guided interventions and that guided digital CBT-based programs may be more beneficial than unguided programs in terms of depression.
“Reviews have indicated that professionally guided digital self-management interventions may be more effective than self-guided interventions [23,71] and that guided digital CBT-based programs may be more beneficial than unguided programs in terms of depression [72].”
From Short-Term Findings From Testing EPIO, a Digital Self-Management Program for People Living With Chronic Pain: Randomized Controlled Trial (2023) · cites this paper as [23]
Systematic reviews have concluded that eHealth interventions are more likely to be successful if developed with a user-centered focus, increasing the likelihood of matching the user's needs and requirements.
“Systematic reviews have concluded that eHealth interventions are more likely to be successful if developed with a user-centered focus, increasing the likelihood of matching the user’s needs and requirements [29,30].”
From Digital Self-Management in Support of Patients Living With Chronic Pain: Feasibility Pilot Study (2020) · cites this paper as [29]
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References 40 · Cited by 86
- Authors
- Talboom-Kamp, E. P. W. A., Verdijk, N. A., Kasteleyn, M. J., Numans, M. E., & Chavannes, N. H.
- Affiliations
- Leiden University Medical Center (NL)
- Corresponding author
- Chavannes, Niels H.
- ORCID
- Venue
- Clinical eHealth
- Publisher
- Elsevier BV
- Published
- 2018-03
- Volume
- 1
- Issue
- 1
- Pages
- 3-7
- ISSN
- 2588-9141 (ISSN-L)
- OpenAlex
- W2791530466
- Cited by
- 86
- References
- 40
- Citations by year
- 2026: 6 · 2025: 6 · 2024: 11 · 2023: 14 · 2022: 18 · 2021: 14 · 2020: 9 · 2019: 5 · 2018: 2
- FWCI
- 11.45
- Type
- journal article
- Language
- en
- Update notices
- erratum (2020-01-01)
- Open access
- gold
- doi.org
- Licence
- Locations
- Clinical eHealth (publishedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Chronic Obstructive Pulmonary Disease (COPD) Research
- Keywords
- e-health, blended care, self-management, chronic disease management, person-centred care, chronic obstructive pulmonary disease, oral anticoagulation, portal, patient coaching, health professions education, web platform, health behavior change
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