Characterising burden of treatment in cystic fibrosis to identify priority areas for clinical trials

Davies, Gwyneth; Rowbotham, Nicola J; Smith, Sherie; Elliot, Zoe C; Gathercole, Katie; Rayner, Oli; Leighton, Paul A; Herbert, Sophie; Duff, Alistair JA; Chandran, Suja; Daniels, Tracey; Nash, Edward F; Smyth, Alan R

doi:10.1016/j.jcf.2019.10.025

Characterising burden of treatment in cystic fibrosis to identify priority areas for clinical trials

In a recent James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF) the top priority clinical research question was: "What are effective ways of simplifying the treatment burden of people with CF?" We aimed to summarise the lived experience of treatment burden and suggest researc…