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Adults following a gluten-free diet report little dietary guidance in a pilot survey exploring relationships between dietary knowledge, management, and adherence in Nova Scotia, Canada
Abstract
The strict nature of a gluten-free diet (GFD) poses a challenge for patient adherence and for clinicians to provide comprehensive client-centered care. Evidence on the relationship between nutrition knowledge, food skills, dietary management, and adherence can guide healthcare professionals counseling patients following this diet. In this explanatory pilot study, a province-wide survey (phase I) with 68 community-dwelling Nova Scotians following a GFD was conducted to investigate relationships between personal, social, and health care factors and dietary adherence using a mixed-methods approach. A sub-sample of 19 survey respondents were interviewed (phase II) to explore contextual experiences related to GFD knowledge, food skills, dietary management, and adherence using a food literacy lens. Here, we report findings from phase I, in which 37 participants with self-reported celiac disease (CD) and 31 participants reporting non-celiac reasons for wheat restriction (NCWR) completed a detailed 41-item online questionnaire. Self-reported data combined for both CD and NCWR respondents showed 76% perceived their health status as good to excellent. Most (62%) reported not receiving GFD advice from a health professional. Respondents with higher frequency of intentional consumption of gluten were more likely to have fewer correct answers to a food label quiz (ρ = -0.44; P = .0002). Most participants (75%) made at least one error in identifying gluten-free and gluten-containing foods,…
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“Studies have shown that a large proportion of adult patients with CD, including those reporting strict adherence to the GFD, could not properly identify gluten-containing/gluten-free packaged foods (49-51)”
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Research works printed but not linked: 20
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Cited by
Luque, V., Crespo‐Escobar, P., Hård af Segerstad, E. M., Koltai, T., Norsa, L., Roman, E., Vreugdenhil, A., Fueyo‐Díaz, R., & Ribes‐Koninckx, C. (2024) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1002/jpn3.12079 · Cited by 44
Metadata
- Authors
- Jamieson, J. A., & Gougeon, L.
- Affiliations
- St. Francis Xavier University (CA)
- Corresponding author
- Jamieson, Jennifer A.
- Gougeon, Laura
- Venue
- Nutrition Research
- Publisher
- Elsevier BV
- Published
- 2019-06
- Volume
- 66
- Pages
- 107-114
- ISSN
- 0271-5317 (ISSN-L)
- OpenAlex
- W2915464402
- Cited by
- 15
- References
- 0
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 2 · 2022: 4 · 2021: 1 · 2020: 3
- FWCI
- 1.82
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Nutrition Research (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Nova Scotia Health Research Foundation (DI-2016-812)
- Topics
- Health Sciences › Medicine › Gastroenterology › Celiac Disease Research and Management
- Health Sciences › Nursing › Nutrition and Dietetics › Dietetics, Nutrition, and Education
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Nutritional Studies and Diet
- Keywords
- gluten-free diet, dietary adherence, celiac disease, food literacy, nutrition knowledge, food skills, nutrition counseling, Nova Scotia
- MeSH terms
- Adult, Celiac Disease, Counseling, Female, Health Status, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Nova Scotia, Patient Compliance, Patient Education as Topic, Pilot Projects, Surveys and Questionnaires, Diet, Gluten-Free, Self Report
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- Jamieson, J. A., & Gougeon, L. (2019). Adults following a gluten-free diet report little dietary guidance in a pilot survey exploring relationships between dietary knowledge, management, and adherence in Nova Scotia, Canada. Nutrition Research. https://doi.org/10.1016/j.nutres.2019.02.005
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.