Changes in Use and Access to Care for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic
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Introduction Children and youth with special health care needs (CYSHCN) are vulnerable to health care disruption, and policies were adopted to mitigate COVID-19-related disruptions. We compare CYSHCN use of and access to care in 2019 to 2020. Method Using the National Survey of Children's Health, we identified CYSHCN and assessed differences in health care use, unmet health care needs, frustrations accessing care, and barriers to care using multivariable logistic regression analysis. Results The final sample included 17,065 CYSHCN. In the fully adjusted analysis, there was a significant decrease in odds of accessing preventive dental care (adjusted odds ratio [AOR], 0.63; 95%confidence interval [CI], 0.51-0.77) and increased odds of unmet mental health care needs (AOR,1.34; 95% CI, 1.02-1.77). The inability to obtain an appointment was a barrier that increased during the study period (AOR, 2.77; 95% CI, 1.71-4.46). Discussion Novel pandemic related policies may have mitigated negative impacts on health care access for CYSHCN.
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The COVID-19 pandemic resulted in increased unmet mental health need for some children and increased barriers to accessing mental health care.
“resulting in increased unmet mental health need for some children (Gigli & Graaf, 2022) and increased barriers to accessing mental health care (, Graaf, et al., Under review).”
From Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children (2026) · cites this paper as Gigli & Graaf, 2022
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Research works printed but not linked: 21
- Arenson M. Hudson P.J. Lee N. Lai B. The evidence on school-based health centers: A review Global Pediatric Health 6 2019 2333794X19828745 PMC6381423 30815514
- Bethell C.D. Blumberg S.J. Stein R.E. Strickland B. Robertson J. Newacheck P.W. Taking stock of the CSHCN screener: A review of common questions and current reflections Academic Pediatrics 15 2 2015 165 176 25486969 PMC4778422
- Cheak-Zamora N.C. Thullen M. Disparities in quality and access to care for children with developmental disabilities and multiple health conditions Maternal and Child Health Journal 21 1 2017 36 44 27423238
- Cutler G.J. Bergmann K.R. Doupnik S.K. Hoffmann J.A. Neuman M.I. Rodean J. Zagel A.L. Zima B.T. Pediatric mental health emergency department visits and access to inpatient care: A crisis worsened by the COVID-19 pandemic Academic Pediatrics 22 6 2022 889 891 35351651 PMC8957359
- Ghandour R.M. Hirai A.H. Kenney M.K. Children and youth with special health care needs: A profile Pediatrics 149 Suppl. 7 2022 e2021056150 35642877
- Ghandour R.M. Jones J.R. Lebrun-Harris L.A. Minnaert J. Blumberg S.J. Fields J. Bethell C. Kogan M.D. The Design and implementation of the 2016 National Survey of Children's Health Maternal and Child Health Journal 22 8 2018 1093 1102 29744710 PMC6372340
- Glassgow A.E. Van Voorhees B. Behavioral health disparities among children and youth with special health care needs Pediatric Annals 46 10 2017 e382 e386 29019633
- Health Resources and Services Administration. (2021). Children and Youth with Special Health Care Needs (CYSHCN). https://mchb.hrsa.gov/programs-impact/focus-areas/children-youth-special-health-care-needs-cyshcn 38648326
- Howard-Jones A.R. Bowen A.C. Danchin M. Koirala A. Sharma K. Yeoh D.K. Burgner D.P. Crawford N.W. Goeman E. Gray P.E. Hsu P. Kuek S. McMullan B.J. Tosif S. Wurzel D. Britton P.N. COVID-19 in children: I. Epidemiology, prevention and indirect impacts Journal of Paediatrics and Child Health 58 1 2022 39 45 34643307 PMC8662210
- Kuo D.Z. Goudie A. Cohen E. Houtrow A. Agrawal R. Carle A.C. Wells N. Inequities in health care needs for children with medical complexity Health Affairs 33 12 2014 2190 2198 25489038 PMC4334319
- Langkamp D.L. Lehman A. Lemeshow S. Techniques for handling missing data in secondary analyses of large surveys Academic Pediatrics 10 3 2010 205 210 20338836 PMC2866831
- Lebrun-Harris L.A. Sappenfield O.R. Warren M.D. Missed and delayed preventive health care visits among US children due to the COVID-19 pandemic Public Health Reports 137 2 2022 336 343 34969335 PMC8900224
- Lopez L. 3rd Hart L.H. 3rd Katz M.H. Racial and ethnic health disparities related to COVID-19 JAMA 325 8 2021 719 720 33480972
- Mitchell S.M. True resilience: A look inside COVID’s effect on children with medical complexity and their families Current Pediatrics Reports 9 2021 171 177 34659915 PMC8501934
- Poghosyan L. Pulcini J. Chan G.K. Dunphy L. Martsolf G.R. Greco K. Todd B.A. Brown S.C. Fitzgerald M. McMenamin A.L. Solari-Twadell P.A. State responses to COVID-19: Potential benefits of continuing full practice authority for primary care nurse practitioners Nursing Outlook 70 1 2022 28 35 34763899 PMC8346350
- Rosen-Reynoso M. Porche M.V. Kwan N. Bethell C. Thomas V. Robertson J. Hawes E. Foley S. Palfrey J. Disparities in access to easy-to-use services for children with special health care needs Maternal and Child Health Journal 20 5 2016 1041 1053 26728898
- Schweiberger K. Patel S.Y. Mehrotra A. Ray K.N. Trends in pediatric primary care visits during the coronavirus disease of 2019 pandemic Academic Pediatrics 21 8 2021 1426 1433 33984496 PMC8561008
- Shankar L.G. Habich M. Rosenman M. Arzu J. Lales G. Hoffmann J.A. Mental health emergency department visits by children before and during the COVID-19 pandemic Academic Pediatrics 22 7 2022 1127 1132 35667622 PMC9164513
- Vish N.L. Stolfi A. Relationship of children's emotional and behavioral disorders with health care utilization and missed school Academic Pediatrics 20 5 2020 687 695 32087381
- Yu J.A. McKernan G. Hagerman T. Schenker Y. Houtrow A. Most children with medical complexity do not receive care in well-functioning health care systems Hospital Pediatrics 11 2 2021 183 191 33408158 PMC7831373
- Yue D. Pourat N. Chen X. Lu C. Zhou W. Daniel M. Hoang H. Sripipatana A. Ponce N.A. Enabling services improve access to care, preventive services, and satisfaction among health center patients Health Affairs 38 9 2019 1468 1474 31479374
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Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children
Graaf, G., Gigli, K., Hughes, P., & Thomas, K. C. (2026) · Child and Adolescent Social Work Journal · doi:10.1007/s10560-026-01101-w
Self-citation
- Authors
- Gigli, K. H., & Graaf, G.
- Affiliations
- The University of Texas at Arlington (US)
- Corresponding author
- Gigli, Kristin Hittle
- Venue
- Journal of Pediatric Health Care
- Publisher
- Elsevier BV
- Published
- 2023-03
- Volume
- 37
- Issue
- 2
- Pages
- 185-192
- ISSN
- 0891-5245 (ISSN-L)
- PMC
- PMC9489986
- OpenAlex
- W4296664256
- Cited by
- 19
- References
- 0
- Citations by year
- 2026: 5 · 2025: 6 · 2024: 5 · 2023: 2 · 2022: 1
- FWCI
- 1.46
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Pediatric Health Care (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute of Mental Health (K01MH129991)
- Topics
- Health Sciences › Medicine › Oncology › COVID-19 and healthcare impacts
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Keywords
- children and youth with special health care needs, COVID-19 pandemic, health care access, health care utilization, unmet health needs, preventive dentistry, mental health needs, barriers to care, appointment access, pandemic mitigation policy
- MeSH terms
- COVID-19, Adolescent, Child, Child Health Services, Health Services Accessibility, Health Services Needs and Demand, Humans, Children with Disabilities, Disabled Children, Pandemics
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