Cited by 19COVID-19 and healthcare impactsAdolescent and Pediatric HealthcareChild and Adolescent Health

Changes in Use and Access to Care for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic

Open access
Gigli, Kristin Hittle, Graaf, Genevieve·2023·Journal of Pediatric Health Care

Abstract

Introduction Children and youth with special health care needs (CYSHCN) are vulnerable to health care disruption, and policies were adopted to mitigate COVID-19-related disruptions. We compare CYSHCN use of and access to care in 2019 to 2020. Method Using the National Survey of Children's Health, we identified CYSHCN and assessed differences in health care use, unmet health care needs, frustrations accessing care, and barriers to care using multivariable logistic regression analysis. Results The final sample included 17,065 CYSHCN. In the fully adjusted analysis, there was a significant decrease in odds of accessing preventive dental care (adjusted odds ratio [AOR], 0.63; 95%confidence interval [CI], 0.51-0.77) and increased odds of unmet mental health care needs (AOR,1.34; 95% CI, 1.02-1.77). The inability to obtain an appointment was a barrier that increased during the study period (AOR, 2.77; 95% CI, 1.71-4.46). Discussion Novel pandemic related policies may have mitigated negative impacts on health care access for CYSHCN.

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

A few free checks a day · papers already verified open instantly · results are public

Integrity signals

Registry

Crossref · 10.1016/j.pedhc.2022.09.008

Cites

Statistics

Claims the paper makes

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

A few free checks a day · papers already verified open instantly · results are public

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

  • The COVID-19 pandemic resulted in increased unmet mental health need for some children and increased barriers to accessing mental health care.

    “resulting in increased unmet mental health need for some children (Gigli & Graaf, 2022) and increased barriers to accessing mental health care (, Graaf, et al., Under review).”

Self-check

Percentages, sums and reported differences re-computed from the paper’s own numbers.

The self-check needs the paper’s full text.

Cites

No references could be resolved yet.

Research works printed but not linked: 21

  1. Arenson M. Hudson P.J. Lee N. Lai B. The evidence on school-based health centers: A review Global Pediatric Health 6 2019 2333794X19828745 PMC6381423 30815514
  2. Bethell C.D. Blumberg S.J. Stein R.E. Strickland B. Robertson J. Newacheck P.W. Taking stock of the CSHCN screener: A review of common questions and current reflections Academic Pediatrics 15 2 2015 165 176 25486969 PMC4778422
  3. Cheak-Zamora N.C. Thullen M. Disparities in quality and access to care for children with developmental disabilities and multiple health conditions Maternal and Child Health Journal 21 1 2017 36 44 27423238
  4. Cutler G.J. Bergmann K.R. Doupnik S.K. Hoffmann J.A. Neuman M.I. Rodean J. Zagel A.L. Zima B.T. Pediatric mental health emergency department visits and access to inpatient care: A crisis worsened by the COVID-19 pandemic Academic Pediatrics 22 6 2022 889 891 35351651 PMC8957359
  5. Ghandour R.M. Hirai A.H. Kenney M.K. Children and youth with special health care needs: A profile Pediatrics 149 Suppl. 7 2022 e2021056150 35642877
  6. Ghandour R.M. Jones J.R. Lebrun-Harris L.A. Minnaert J. Blumberg S.J. Fields J. Bethell C. Kogan M.D. The Design and implementation of the 2016 National Survey of Children's Health Maternal and Child Health Journal 22 8 2018 1093 1102 29744710 PMC6372340
  7. Glassgow A.E. Van Voorhees B. Behavioral health disparities among children and youth with special health care needs Pediatric Annals 46 10 2017 e382 e386 29019633
  8. Health Resources and Services Administration. (2021). Children and Youth with Special Health Care Needs (CYSHCN). https://mchb.hrsa.gov/programs-impact/focus-areas/children-youth-special-health-care-needs-cyshcn 38648326
  9. Howard-Jones A.R. Bowen A.C. Danchin M. Koirala A. Sharma K. Yeoh D.K. Burgner D.P. Crawford N.W. Goeman E. Gray P.E. Hsu P. Kuek S. McMullan B.J. Tosif S. Wurzel D. Britton P.N. COVID-19 in children: I. Epidemiology, prevention and indirect impacts Journal of Paediatrics and Child Health 58 1 2022 39 45 34643307 PMC8662210
  10. Kuo D.Z. Goudie A. Cohen E. Houtrow A. Agrawal R. Carle A.C. Wells N. Inequities in health care needs for children with medical complexity Health Affairs 33 12 2014 2190 2198 25489038 PMC4334319
  11. Langkamp D.L. Lehman A. Lemeshow S. Techniques for handling missing data in secondary analyses of large surveys Academic Pediatrics 10 3 2010 205 210 20338836 PMC2866831
  12. Lebrun-Harris L.A. Sappenfield O.R. Warren M.D. Missed and delayed preventive health care visits among US children due to the COVID-19 pandemic Public Health Reports 137 2 2022 336 343 34969335 PMC8900224
  13. Lopez L. 3rd Hart L.H. 3rd Katz M.H. Racial and ethnic health disparities related to COVID-19 JAMA 325 8 2021 719 720 33480972
  14. Mitchell S.M. True resilience: A look inside COVID’s effect on children with medical complexity and their families Current Pediatrics Reports 9 2021 171 177 34659915 PMC8501934
  15. Poghosyan L. Pulcini J. Chan G.K. Dunphy L. Martsolf G.R. Greco K. Todd B.A. Brown S.C. Fitzgerald M. McMenamin A.L. Solari-Twadell P.A. State responses to COVID-19: Potential benefits of continuing full practice authority for primary care nurse practitioners Nursing Outlook 70 1 2022 28 35 34763899 PMC8346350
  16. Rosen-Reynoso M. Porche M.V. Kwan N. Bethell C. Thomas V. Robertson J. Hawes E. Foley S. Palfrey J. Disparities in access to easy-to-use services for children with special health care needs Maternal and Child Health Journal 20 5 2016 1041 1053 26728898
  17. Schweiberger K. Patel S.Y. Mehrotra A. Ray K.N. Trends in pediatric primary care visits during the coronavirus disease of 2019 pandemic Academic Pediatrics 21 8 2021 1426 1433 33984496 PMC8561008
  18. Shankar L.G. Habich M. Rosenman M. Arzu J. Lales G. Hoffmann J.A. Mental health emergency department visits by children before and during the COVID-19 pandemic Academic Pediatrics 22 7 2022 1127 1132 35667622 PMC9164513
  19. Vish N.L. Stolfi A. Relationship of children's emotional and behavioral disorders with health care utilization and missed school Academic Pediatrics 20 5 2020 687 695 32087381
  20. Yu J.A. McKernan G. Hagerman T. Schenker Y. Houtrow A. Most children with medical complexity do not receive care in well-functioning health care systems Hospital Pediatrics 11 2 2021 183 191 33408158 PMC7831373
  21. Yue D. Pourat N. Chen X. Lu C. Zhou W. Daniel M. Hoang H. Sripipatana A. Ponce N.A. Enabling services improve access to care, preventive services, and satisfaction among health center patients Health Affairs 38 9 2019 1468 1474 31479374

Cited by

Sorted by citations

Authors
Gigli, K. H., & Graaf, G.
Affiliations
The University of Texas at Arlington (US)
Corresponding author
Gigli, Kristin Hittle
Venue
Journal of Pediatric Health Care
Publisher
Elsevier BV
Published
2023-03
Volume
37
Issue
2
Pages
185-192
ISSN
0891-5245 (ISSN-L)
OpenAlex
W4296664256
Cited by
19
References
0
Citations by year
2026: 5 · 2025: 6 · 2024: 5 · 2023: 2 · 2022: 1
FWCI
1.46
Type
journal article
Language
en
Open access
Locations
  • Journal of Pediatric Health Care (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Funders
National Institute of Mental Health (K01MH129991)
Topics
  • Health Sciences › Medicine › Oncology › COVID-19 and healthcare impacts
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
  • Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
Keywords
children and youth with special health care needs, COVID-19 pandemic, health care access, health care utilization, unmet health needs, preventive dentistry, mental health needs, barriers to care, appointment access, pandemic mitigation policy
MeSH terms
COVID-19, Adolescent, Child, Child Health Services, Health Services Accessibility, Health Services Needs and Demand, Humans, Children with Disabilities, Disabled Children, Pandemics

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review