Supporting bereaved parents: practical steps in providing compassionate perinatal and neonatal end-of-life care – A North American perspective
Abstract
Providing compassionate bereavement support challenges care-givers in perinatal medicine. A practical and consistent approach tailored to individual families may increase the care-giver's ability to relieve parental grief. This approach includes: (1) clear and consistent communication compassionately delivered; (2) shared decision-making; (3) physical and emotional support; and (4) follow-up medical, psychological and social care. Challenges to providing comprehensive end-of-life care include care-giver comfort, consistency of care, cultural and legal barriers, and lack of adequate training.
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One way that parents desire acknowledgment of this unique situation is to have a picture of all their children together and separately of the baby who died.
“One way that parents desire acknowledgment of this unique situation is to have a picture of all their children together and separately of the baby who died.53,188,223”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [223]
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References 45 · Cited by 84
- Authors
- Williams, C., Munson, D., Zupancic, J., & Kirpalani, H.
- Affiliations
- University of Toronto (CA)
- Children's Hospital of Philadelphia (US)
- Harvard University (US)
- Venue
- Seminars in Fetal and Neonatal Medicine
- Publisher
- Elsevier BV
- Published
- 2008-10
- Volume
- 13
- Issue
- 5
- Pages
- 335-340
- ISSN
- 1744-165X (ISSN-L)
- OpenAlex
- W2056561184
- Cited by
- 84
- References
- 45
- Citations by year
- 2025: 1 · 2023: 6 · 2022: 2 · 2021: 4 · 2020: 9 · 2019: 4 · 2018: 8 · 2017: 11 · 2016: 6 · 2015: 6 · 2014: 2 · 2013: 9 · 2012: 5
- FWCI
- 3.63
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Seminars in Fetal and Neonatal Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- parental bereavement, neonatal end-of-life care, compassionate care, shared decision-making, communication with families, bereavement support, caregiver support, follow-up care, clinician training
- MeSH terms
- Adaptation, Psychological, Attitude to Death, Bereavement, Communication, Culture, Decision Making, Empathy, Health Personnel, Humans, Infant, Newborn, Intensive Care Units, Neonatal, Palliative Care, Parents, Patient Care Team, Patient Participation, Professional-Family Relations, Social Support, Trust
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