Cited by 4,137Patient-Provider Communication in HealthcarePalliative Care and End-of-Life IssuesEthics and bioethics in healthcare

The DOI matches its Crossref record; 68 of the 68 references it cites were found in a registry or an index.

Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango)

Charles, Cathy, Gafni, Amiram, Whelan, Tim·1997·Social Science & Medicine

DOI 10.1016/s0277-9536(96)00221-3

Open this paper in CoChat — free account

Abstract

Shared decision-making is increasingly advocated as an ideal model of treatment decision-making in the medical encounter. To date, the concept has been rather poorly and loosely defined. This paper attempts to provide greater conceptual clarity about shared treatment decision-making, identify some key characteristics of this model, and discuss measurement issues. The particular decision-making context that we focus on is potentially life threatening illnesses, where there are important decisions to be made at key points in the disease process, and several treatment options exist with different possible outcomes and substantial uncertainty. We suggest as key characteristics of shared decision-making (1) that at least two participants-physician and patient be involved; (2) that both parties share information; (3) that both parties take steps to build a consensus about the preferred treatment; and (4) that an agreement is reached on the treatment to implement. Some challenges to measuring shared decision-making are discussed as well as potential benefits of a shared decision-making model for both physicians and patients.

Integrity signals

Registry

Crossref · 10.1016/s0277-9536(96)00221-3

Cites

68 of 68 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Untitled work
(1951) · Cited by 8,693
Clinical Epidemiology: A Basic Science for Clinical Medicine.
(1991) · Annals of Internal Medicine · doi:10.7326/0003-4819-114-9-825_9 · Cited by 3,497
Four Models of the Physician-Patient Relationship
Emanuel, E. J. (1992) · JAMA · doi:10.1001/jama.1992.03480160079038 · Cited by 2,453
Doctor-patient communication: a review of the literature
Ong, L. M. L., de Haes, J. C. J. M., Hoos, A. M., & Lammes, F. B. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00155-m · Cited by 2,430
Expanding Patient Involvement in Care
Greenfield, S., Kaplan, S. H., & Ware, J. E. (1985) · Annals of Internal Medicine · doi:10.7326/0003-4819-102-4-520 · Cited by 1,459
Reduction of Postoperative Pain by Encouragement and Instruction of Patients
Egbert, L. D., Battit, G. E., Welch, C. E., & Bartlett, M. K. (1964) · New England Journal of Medicine · doi:10.1056/nejm196404162701606 · Cited by 1,147
Information and Participation Preferences Among Cancer Patients
Cassileth, B. R., ZUPKIS, R. V., SUTTON-SMITH, K., & MARCH, V. (1980) · Annals of Internal Medicine · doi:10.7326/0003-4819-92-6-832 · Cited by 1,135
Patients’ participation in medical care
Greenfield, S., Kaplan, S. H., Ware, J. E., Yano, E. M., & Frank, H. J. L. (1988) · Journal of General Internal Medicine · doi:10.1007/bf02595921 · Cited by 1,117
Decision making during serious illness: What role do patients really want to play?
Degner, L. F., & Sloan, J. A. (1992) · Journal of Clinical Epidemiology · doi:10.1016/0895-4356(92)90110-9 · Cited by 1,012
Measuring patients’ desire for autonomy
Ende, J., Kazis, L. E., Ash, A. S., & Moskowitz, M. A. (1989) · Journal of General Internal Medicine · doi:10.1007/bf02596485 · Cited by 938

Show all 68 references

Research works printed but not linked: 1

Llewellyn-Thomas, 1992, Studying patients' preferences in health care decision making, Canadian Medical Association Journal, 147, 859

Sorted by citations

Items 801–900 of 1,010

Women’s views of optimal risk communication and decision making in general practice consultations about the menopause and hormone replacement therapy
Walter, F. M., Emery, J. D., Rogers, M., & Britten, N. (2004) · Patient Education and Counseling · doi:10.1016/j.pec.2003.11.001 · Cited by 52
A multicentre randomised controlled trial assessing the costs and benefits of using structured information and analysis of women's preferences in the management of menorrhagia
Kennedy, A. D. M., Sculpher, M. J., Coulter, A., Dwyer, N., Rees, M., Horsley, S., Cowley, D., Kidson, C., Kirwin, C., Naish, C., et al. (2003) · Health Technology Assessment · doi:10.3310/hta7080 · Cited by 49
When patient-centred care is worth doing well: informed consent or shared decision-making
Kunneman, M., & Montori, V. M. (2016) · BMJ Quality & Safety · doi:10.1136/bmjqs-2016-005969 · Cited by 50
Strategic Maneuvering in Treatment Decision-Making Discussions: Two Cases in Point
Labrie, N. (2011) · Argumentation · doi:10.1007/s10503-011-9228-5 · Cited by 49
“…a situation of pseudo-equipoise exists as the patient assumes that antibiotics form a suitable treatment option, while medical evidence counters this conviction. build a consensus about the preferred treatment, and reaching an agreement about which treatment to implement3 (Charles et al. 1997).”
BackgroundInfluential
The health professional–patient-relationship in conventional versus complementary and alternative medicine. A qualitative study comparing the perceived use of medical shared decision-making between two different approaches of medicine
Berger, S. A., Brähler, E., & Ernst, J. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.01.003 · Cited by 49
“[2] and other authors [3], extensive research has been presented investigating the implementation of SDM in practice.”
The experiential health information processing model: supporting collaborative web-based patient education
O'Grady, L. A., Witteman, H. O., & Wathen, C. N. (2008) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-8-58 · Cited by 49
Patientenbeteiligung bei medizinischen Entscheidungen
Loh, A., Simón, D., Niebling, W., & Härter, M. C. (2005) · Zeitschrift für Allgemeinmedizin · doi:10.1007/bf03652169 · Cited by 49
Toward Shared Decision Making: Using the OPTION Scale to Analyze Resident–Patient Consultations in Family Medicine
Pellerin, M., Elwyn, G. J., Rousseau, M., Stacey, D., Robitaille, H., & Légaré, F. (2011) · Academic Medicine · doi:10.1097/acm.0b013e31822220c5 · Cited by 49
Shared Decision Making in Antipsychotic Management
Mistler, L. A., & Drake, R. E. (2008) · Journal of Psychiatric Practice · doi:10.1097/01.pra.0000341889.97759.54 · Cited by 48
Dissatisfaction of hospital patients, their relatives, and friends: Analysis of accounts collected in a complaints center
Schaad, B., Bourquin, C., Bornet, F., Currat, T., Saraga, M., Panese, F., & Stiefel, F. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.02.019 · Cited by 49
“This contributes to the redistribution of their mutual expectations [9–11] and their respective roles and the responsibility each has within the treatment framework [12–14].”
Background
A Push for Progress With Shared Decision-making in Pediatrics
Opel, D. J. (2017) · PEDIATRICS · doi:10.1542/peds.2016-2526 · Cited by 51
Canadian Guidelines for the Assessment and Diagnosis of Patients with Schizophrenia Spectrum and Other Psychotic Disorders
Addington, D. E., Abidi, S., Ortega, I., Honer, W. G., & Ismail, Z. (2017) · The Canadian Journal of Psychiatry · doi:10.1177/0706743717719899 · Cited by 49
“An early definition of shared decision making suggested that at least 2 participants need to be involved, both parties need to share information, both parties need to build a consensus about the preferred treatment, and agreement needs to be reached.(62) A more recent review has developed an integrative model based on…”
Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation
Rahn, A. C., Köpke, S., Backhus, I., Kasper, J., Anger, K., Untiedt, B., Alegiani, A. C., Kleiter, I., Mühlhauser, I., & Heesen, C. (2017) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2017.08.011 · Cited by 50
“Health professionals’ tasks are redistributed by giving nurses a central role in supporting treatment decision-making based on evidence-based patient information materials (Bunge et al., 2010) and a shared decision-making approach (Charles et al., 1997).”
Background
An in-depth analysis of the use of shared decision making in contraceptive counseling
Chen, M., Lindley, A. R., Kimport, K., & Dehlendorf, C. E. (2018) · Contraception · doi:10.1016/j.contraception.2018.11.009 · Cited by 49
Perspectives on team communication challenges in caring for children with medical complexity
Adams, S. L., Beatty, M., Moore, C., Desai, A. D., Bartlett, L., Culbert, E., Cohen, E., Stinson, J., & Orkin, J. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06304-8 · Cited by 50
“SDM is a principle of communication [50] that forms the basis of patient and FCC [51] and occurs when parents and HCPs collaborate in all phases of the decision-making process to agree upon a treatment plan together [51, 52].”
Background
Expressing medicine side effects: Assessing the effectiveness of absolute risk, relative risk, and number needed to harm, and the provision of baseline risk information
Berry, D. C., Knapp, P., & Raynor, T. (2005) · Patient Education and Counseling · doi:10.1016/j.pec.2005.09.003 · Cited by 50
Risk Communication and Shared Decision Making in the Care of Patients With Osteoporosis
Lewiecki, E. M. (2010) · Journal of Clinical Densitometry · doi:10.1016/j.jocd.2010.06.005 · Cited by 49
A Metasynthesis of Phenomenographic Articles on Understandings of Work Among Healthcare Professionals
Röing, M., Holmström, I. K., & Larsson, J. (2017) · Qualitative Health Research · doi:10.1177/1049732317719433 · Cited by 48
Conditions for shared decision making in the care of transgender youth in Canada
Clark, D. B. A., Virani, A., Marshall, S. K., & Saewyc, E. (2020) · Health Promotion International · doi:10.1093/heapro/daaa043 · Cited by 48
A Systematic Review of Shared Decision–Making Interventions for Service Users With Serious Mental Illnesses: State of the Science and Future Directions
Thomas, E. C., Ben‐David, S., Treichler, E. B. H., Roth, S. C., Dixon, L. B., Salzer, M. S., & Zisman‐Ilani, Y. (2021) · Psychiatric Services · doi:10.1176/appi.ps.202000429 · Cited by 54
Surgeon Use of Shared Decision-making for Older Adults Considering Major Surgery
Baggett, N. D., Schulz, K. A., Buffington, A. S., Marka, N. A., Hanlon, B. M., Zimmermann, C. J., Tucholka, J. L., Fox, D., Clapp, J. T., Arnold, R. M., et al. (2022) · JAMA Surgery · doi:10.1001/jamasurg.2022.0290 · Cited by 48
Autonomy, Informed Consent and Medical Law: A Relational Challenge
Maclean, A. R. (2009) · doi:10.1017/cbo9780511576119 · Cited by 48
The role of physician–patient communication in promoting patient–participatory decision making
Ruiz‐Moral, R. (2009) · Health Expectations · doi:10.1111/j.1369-7625.2009.00578.x · Cited by 48
Perceptions of Patients and Physiotherapists on Patient Participation: A Narrative Synthesis of Qualitative Studies
Schoeb, V., & Bürge, E. (2011) · Physiotherapy Research International · doi:10.1002/pri.516 · Cited by 48
Uncovering the desired qualities and behaviours of general practitioners (GPs) during medical (service recovery) encounters
Gruber, T., & Frugone, F. (2011) · Journal of service management · doi:10.1108/09564231111155097 · Cited by 51
“This means that patients look for a shared model in which they can exchange information with the physician and have a more active role in the treatment decision making ( Charles et al. , 1997”
Background
Enhancing decision making about participation in cancer clinical trials: development of a question prompt list
Brown, R., Shuk, E., Leighl, N. B., Butow, P. N., Ostroff, J. S., Edgerson, S., & Tattersall, M. (2010) · Supportive Care in Cancer · doi:10.1007/s00520-010-0942-6 · Cited by 48
“Although shared decision making about treatment options is a well-accepted approach [46, 50, 51], paternalistic decision making was desired by our sample.”
Background
Patient decision aids in knee replacement surgery
Jayadev, C., Khan, T. R., Coulter, A., Beard, D. J., & Price, A. J. (2012) · The Knee · doi:10.1016/j.knee.2012.02.001 · Cited by 47
“This is based on the best available clinical evidence and the patient's needs, priorities, perceptions and values [6,7].”
Background
Disparities in collaborative patient-provider communication about human papillomavirus (HPV) vaccination
Moss, J. L., Gilkey, M. B., Rimer, B. K., & Brewer, N. T. (2016) · Human Vaccines & Immunotherapeutics · doi:10.1080/21645515.2015.1128601 · Cited by 50
“Explanations for these inequities include providers’ assumptions about the most effective mode of communication,(13) difficulties with cross-cultural communication,(14) and, in some cases, patient preferences.(9,15) In promoting health equity, the ideal outcome would be increasing and equalizing opportunities for vacc…”
Background
Oncologists’ and oncology nurses’ attitudes and practices towards family involvement in cancer consultations
Laidsaar‐Powell, R., Butow, P. N., Bu, S., Fisher, A. C., & Juraskova, I. (2016) · European Journal of Cancer Care · doi:10.1111/ecc.12470 · Cited by 48
Mental health pharmacists views on shared decision-making for antipsychotics in serious mental illness
Younas, M., Bradley, E., Holmes, N., Sud, D., & Maidment, I. (2016) · International Journal of Clinical Pharmacy · doi:10.1007/s11096-016-0352-z · Cited by 42
What are the decision-making preferences of patients in vascular surgery? A mixed-methods study
Santema, T. B., Stoffer, E. A., Kunneman, M., Koelemay, M. J. W., & Ubbink, D. T. (2017) · BMJ Open · doi:10.1136/bmjopen-2016-013272 · Cited by 51
Shared decision-making in older patients with colorectal or pancreatic cancer: Determinants of patients’ and observers’ perceptions
Geessink, N. H., Ofstad, E. H., Rikkert, M. G. M. O., van Goor, H., Kasper, J., & Schoon, Y. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.06.005 · Cited by 48
Developing a Conversation Aid to Support Shared Decision Making: Reflections on Designing Anticoagulation Choice
Zeballos-Palacios, C. L., Hargraves, I. G., Noseworthy, P. A., Branda, M. E., Kunneman, M., Burnett, B., Gionfriddo, M. R., McLeod, C. J., Gorr, H. S., Brito, J. P., et al. (2019) · Mayo Clinic Proceedings · doi:10.1016/j.mayocp.2018.08.030 · Cited by 48
Exploring the potential benefits of digital health technology for the management of COPD: a qualitative study of patient perceptions
Slevin, P., Kessie, T., Cullen, J., Butler, M. W., Donnelly, S. C., & Caulfield, B. (2019) · ERJ Open Research · doi:10.1183/23120541.00239-2018 · Cited by 48
“For the patients, these data have the potential to ensure patient-centred communication and shared decision making, which are known to have a positive impact on patient satisfaction, adherence and self-management outcomes [48, 49].”
Background
The Internet and Tobacco Cessation: The Roles of Internet Self-Efficacy and Search Task on the Information-Seeking Process
Hong, T. J. (2006) · Journal of Computer-Mediated Communication · doi:10.1111/j.1083-6101.2006.00026.x · Cited by 53
Patients' views about taking antihypertensive drugs: questionnaire study
BENSON, J. A., & Britten, N. (2003) · BMJ · doi:10.1136/bmj.326.7402.1314 · Cited by 48
“Debate continues about how best to achieve such open discussion and the related process of shared decision making.”
Background
Facilitating Participatory Decision-Making
Gotler, R. S., Flocke, S. A., Goodwin, M. A., Zyzanski, S. J., Murray, T. H., & Stange, K. C. (2000) · Medical Care · doi:10.1097/00005650-200012000-00007 · Cited by 48
Beyond rationality: Expanding the practice of shared decision making in modern medicine
Thomas, E. C., Bass, S. B., & Siminoff, L. A. (2021) · Social Science & Medicine · doi:10.1016/j.socscimed.2021.113900 · Cited by 50
A science of collaborative learning health systems
Seid, M., Hartley, D., & Margolis, P. A. (2021) · Learning Health Systems · doi:10.1002/lrh2.10278 · Cited by 49
JCS/JHFS 2025 Guideline on Diagnosis and Treatment of Heart Failure
Kitai, T., Kohsaka, S., Kato, T., Kato, E. T., Sato, K., TERAMOTO, K., Yaku, H., Akiyama, E., Ando, M., Izumi, C., et al. (2025) · Journal of Cardiac Failure · doi:10.1016/j.cardfail.2025.02.014 · Cited by 58
Patient participation in medication reviews is desirable but not evidence‐based: a systematic literature review
Willeboordse, F., Hugtenburg, J. G., Schellevis, F., & Elders, P. J. M. (2014) · British Journal of Clinical Pharmacology · doi:10.1111/bcp.12398 · Cited by 47
“[8] Participation is seen as being co-”
Deciding Together? Best Interests and Shared Decision-Making in Paediatric Intensive Care
Birchley, G. (2013) · Health Care Analysis · doi:10.1007/s10728-013-0267-y · Cited by 47
“[15] identify unilateral models where the locus of control is either with the clinician or the patient.”
BackgroundInfluential
Understanding Risk, Patient and Provider Preferences, and Obstetrical Decision Making: Approach to Delivery After Cesarean
Kaimal, A. J., & Kuppermann, M. (2010) · Seminars in Perinatology · doi:10.1053/j.semperi.2010.05.006 · Cited by 47
The Diagnosis of Tourette's Syndrome: Communication and Impact
Navarro, J. R., Cubo, E., & Almazán‐Isla, J. (2008) · Clinical Child Psychology and Psychiatry · doi:10.1177/1359104508100127 · Cited by 47
“Relatives of people with TS asked for a better understanding of the information relating to the diagnosis and expressed interest in maintaining a relationship with the physician that was closest to the decision-making model of patient–physician interaction (Charles et al., 1997; Woolf, 1997).”
BackgroundInfluential
How African American Men Decide Whether or Not to Get Prostate Cancer Screening
Jones, R. A., Steeves, R. H., & Williams, I. C. (2009) · Cancer Nursing · doi:10.1097/ncc.0b013e3181982c6e · Cited by 47
Decision‐making preferences and information needs among Greek breast cancer patients
Almyroudi, A., Degner, L. F., Paika, V., Pavlidis, N., & Hyphantis, T. N. (2010) · Psycho-Oncology · doi:10.1002/pon.1798 · Cited by 50
“In shared decision making, providers and patients exchange information, both express treatment preferences and after joint deliberation they may reach a mutually accepted decision [5,7].”
Background
Shared decision-making in the People’s Republic of China: current status and future directions
Huang, R., Gionfriddo, M. R., Leppin, A. A., Ting, H. H., Zhang, L., & Montori, V. M. (2015) · Patient Preference and Adherence · doi:10.2147/ppa.s82110 · Cited by 47
Internet forums and negotiation of healthcare knowledge cultures
Keeling, D. I., Khan, A., & Newholm, T. (2013) · Journal of Services Marketing · doi:10.1108/08876041311296383 · Cited by 48
Information and participation in decision-making about treatment: a qualitative study of the perceptions and preferences of patients with rheumatoid arthritis
Schildmann, J., Grünke, M., Kalden, J. R., & Vollmann, J. (2008) · Journal of Medical Ethics · doi:10.1136/jme.2007.023705 · Cited by 46
“4 Another line of argument uses the results of empirical research according to which the quantity and complexity of information may overburden a significant proportion of patients.(4) 5”
BackgroundInfluential
Shared Decision-Making Models Acknowledging an Interprofessional Approach: A Theory Analysis to Inform Nursing Practice
Lewis, K. B., Stacey, D., Squires, J. E., & Carroll, S. L. (2016) · Research and theory for nursing practice · doi:10.1891/1541-6577.30.1.26 · Cited by 47
“To date, most SDM conceptual models and theories focus solely on the traditional patient–physician dyad (Braddock et al., 2008; Charles et al., 1997; Charles, Gafni, & Wheelan, 1999; Eddy, 1990; Emanuel & Emanuel, 1992; Makoul & Clayman, 2006; Towle & Godolphin, 1999) with few newer models…”
Background
Influences on Decision-Making Regarding Antipsychotic Prescribing in Nursing Home Residents With Dementia: A Systematic Review and Synthesis of Qualitative Evidence
Walsh, K. A., Dennehy, R., Sinnott, C., Browne, J. P., Byrne, S., McSharry, J., Coughlan, E., & Timmons, S. (2017) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2017.06.032 · Cited by 47
Parent, patient and clinician perceptions of outcomes during and following neonatal care: a systematic review of qualitative research
Webbe, J., Brunton, G., Ali, S., Longford, N. T., Modi, N., & Gale, C. (2018) · BMJ Paediatrics Open · doi:10.1136/bmjpo-2018-000343 · Cited by 47
“34 Poor outcome selection is also a known problem in paediatric research, 8 35 involving patients and parents will help reduce research waste.”
Informed consent and ethics committee approval in laboratory medicine
Borovečki, A., Mlinarić, A., Horvat, M., & Smolčić, V. Š. (2018) · Biochemia Medica · doi:10.11613/bm.2018.030201 · Cited by 47
“The patient is always a subject in this process, never an object (10).”
Background
Measuring triadic decision making in older patients with multiple chronic conditions: Observer OPTIONMCC
Pel‐Littel, R. E., Buurman, B. M., van de Pol, M. H. J., Yılmaz, N. G., Tulner, L. R., Minkman, M. M. N., Reimer, W. J. M. S. O., Elwyn, G. J., & van Weert, J. C. M. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.06.020 · Cited by 47
Mental health professionals’ experiences with shared decision-making for patients with psychotic disorders: a qualitative study
Haugom, E. W., Stensrud, B., Beston, G., Ruud, T., & Landheim, A. S. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05949-1 · Cited by 47
“SDM is closely connected to user involvement, as it aims to strengthen the patient’s decisional position [7].”
Background
Medical communication and technology: a video-based process study of the use of decision aids in primary care consultations
Kaner, E., Heaven, B., Rapley, T., Murtagh, M. J., Graham, R. H., Thomson, R., & May, C. R. (2007) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-7-2 · Cited by 45
“In primary care, increased patient engagement in health care is reflected in a range of interventions aimed at developing patient-centred approaches during consultations which take into account patients' needs and anxieties concerning treatment [4,5].”
Decision Making in Prostate-Specific Antigen Screening
Han, P. K. J., Coates, R. J., Uhler, R. J., & Breen, N. (2006) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2005.12.006 · Cited by 47
Physicians' Awareness and Attitudes Toward Decision Aids for Patients With Cancer
Brace, C., Schmocker, S., Huang, H., Victor, J. C., McLeod, R. S., & Kennedy, E. D. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.25.2874 · Cited by 47
Patient Decision Aids to Support Clinical Decision Making: Evaluating the Decision or the Outcomes of the Decision
McCaffery, K. J., Irwig, L., & Bossuyt, P. M. (2007) · Medical Decision Making · doi:10.1177/0272989x07306787 · Cited by 47
‘They leave at least believing they had a part in the discussion’: Understanding decision aid use and patient–clinician decision-making through qualitative research
Tiedje, K., Shippee, N. D., Johnson, A. M., Flynn, P. M., Finnie, D. M., Liesinger, J. T., May, C. R., Olson, M. E., Ridgeway, J. L., Shah, N. D., et al. (2013) · Patient Education and Counseling · doi:10.1016/j.pec.2013.03.013 · Cited by 45
“For the present paper, we take SDM to mean that at least two parties (clinicians and patients) take steps to participate in the process of decision making by sharing information and ultimately agreeing (including agreeing to disagree) [11,12,15].”
BackgroundMethod
Developing a Framework to Support Shared Decision Making for Youth Mental Health Medication Treatment
Crickard, E. L., O’Brien, M. S., Rapp, C. A., & Holmes, C. L. (2010) · Community Mental Health Journal · doi:10.1007/s10597-010-9327-z · Cited by 46
“towards mutual decisions about treatment (Charles et al. 1997).”
Background
Challenges and opportunities for advancing patient-centered clinical decision support: findings from a horizon scan
Dullabh, P., Sandberg, S. F., Heaney-Huls, K., Hovey, L. S., Lobach, D. F., Boxwala, A. A., Desai, P. J., Berliner, E., Dymek, C., Harrison, M. I., et al. (2022) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocac059 · Cited by 46
“This engagement may continue into the clinical encounter, where PC CDS can support shared decision-making (SDM), a process where patients, caregivers, and care teams share and discuss health information and patients’ values and preferences to reach mutually acceptable health-related decisions.(5,6) A range of use case…”
Deconstructing patient centred communication and uncovering shared decision making: an observational study
Wensing, M., Elwyn, G. J., Edwards, A., Vingerhoets, E., & Grol, R. P. T. M. (2002) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-2-2 · Cited by 46
“Whereas 'common ground' can be conceived as an agreement in broad terms, and as a platform for moving forward, SDM specifies a set of principles [17] and competences [4] that are needed to achieve the proposed goal of a negotiated decision.”
Perceived Appropriateness of Shared Decision‐making in the Emergency Department: A Survey Study
Probst, M. A., Kanzaria, H. K., Frosch, D. L., Hess, E. P., Winkel, G. H., Ngai, K. M., & Richardson, L. D. (2016) · Academic Emergency Medicine · doi:10.1111/acem.12904 · Cited by 46
“[24-27] SDM has been described as an essential part of patient-centered care.[1, 28] This positive connotation may have served to create social desirability bias in favor of endorsing SDM.”
Background
Continue, adjust, or stop antipsychotic medication: developing and user testing an encounter decision aid for people with first-episode and long-term psychosis
Zisman‐Ilani, Y., Shern, D. L., Deegan, P. E., Kreyenbuhl, J. A., Dixon, L. B., Drake, R. E., Torrey, W. C., Mishra, M. K., Gorbenko, K. O., & Elwyn, G. J. (2018) · BMC Psychiatry · doi:10.1186/s12888-018-1707-x · Cited by 47
“It gives both parties a framework and legitimacy for the discussion [24], focuses on the patient–clinician interaction, and encourages open dialogue in which both parties have expertise, which should lead to the choice of a consensus plan [25–27].”
Background
Shared decision-making within goal-setting in rehabilitation: a mixed-methods study
Rose, A., Soundy, A., & Rosewilliam, S. (2018) · Clinical Rehabilitation · doi:10.1177/0269215518815251 · Cited by 46
Systematic Review on the Content of Outcome Measurement Instruments on Scar Quality
Carrière, M. E., Kwa, K. A. A., de Haas, L. E. M., Pijpe, A., Tyack, Z. F., Ket, J. C. F., van Zuijlen, P. P. M., de Vet, H. C. W., & Mokkink, L. B. (2019) · Plastic & Reconstructive Surgery Global Open · doi:10.1097/gox.0000000000002424 · Cited by 46
“19 22 Some of these scales are not yet widely re-ported because either they are relatively new and unknown or their validation process is still ongoing.”
Pregnancy and Chronic Progressive Pulmonary Disease
Wexler, I. D., Johannesson, M., Edenborough, F. P., Sufian, B. S., & Kerem, E. (2006) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200605-598oe · Cited by 46
End-of-life decisions in adult intensive care: Current research base 158 and directions for the future
Baggs, J. G., & Schmitt, M. H. (2000) · Nursing Outlook · doi:10.1067/mno.2000.100364 · Cited by 46
Patient Satisfaction - A Comparison between Public & Private Hospitals of Peshawar
Khattak, A., Alvi, M. I., Yousaf, M. A., Zain-ul, S., Shah, A., Turial, D., Akhter, S., & Memorial, K. (2012) · Cited by 45
Quality of doctor-patient communication through the eyes of the patient: variation according to the patient's educational level
Aelbrecht, K., Rimondini, M., Bensing, J., Moretti, F., Willems, S., Mazzi, M., Fletcher, I., & Deveugele, M. (2015) · Advances in Health Sciences Education · doi:10.1007/s10459-014-9569-6 · Cited by 45
“None of the subcategories stood out for the higher educated participants, probably because their expectations were met (Fiscella et al. 2002). Looking at the concept of shared decision making, McKinstry (2000) found that a lower educational level was associated with a lower preference for the shared approach.”
Background
Attitudes toward concordance in psychiatry: a comparative, cross-sectional study of psychiatric patients and mental health professionals
Cuevas, C. D. L., Rivero‐Santana, A., Perestelo‐Pérez, L., Pérez-Ramos, J., & Serrano‐Aguilar, P. (2012) · BMC Psychiatry · doi:10.1186/1471-244x-12-53 · Cited by 45
“This is a patient-centered approach in which the healthcare professional and patient exchange information on the best available treatment and discuss the implications of each option [12-14].”
Background
Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS)
F. T. C. S. G., Puschner, B., Neumann, P., Jordan, H., Slade, M., Fiorillo, A., Giacco, D., Égerházi, A., Ivánka, T., Bording, M. K., et al. (2013) · BMC Psychiatry · doi:10.1186/1471-244x-13-48 · Cited by 44
“Moreover, by exclusively assessing decision making from the perspective of the patient, instrument development has largely ignored reciprocity as a defining feature of decision making [1,21-23].”
Examining the evidence of the impact of health information technology in primary care: An argument for participatory research with health professionals and patients
Bélanger, E., Bartlett, G., Dawes, M. G., Rodríguez, C., & Hasson-Gidoni, I. (2012) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2012.07.008 · Cited by 47
“[48] C.”
Background
Current approaches to the management of new-onset ulcerative colitis
Kane, S. V., & Beery, R. M. M. (2014) · Clinical and Experimental Gastroenterology · doi:10.2147/ceg.s35942 · Cited by 45
“Shared decision making is an optimal model in such medical treatment encounters and should thus be advocated.(128) Conclusion UC is a chronic inflammatory colonic disease with a relapsing and remitting course.”
Development and Testing of Shared Decision Making Interventions for Use in Emergency Care: A Research Agenda
Melnick, E. R., Probst, M. A., Schoenfeld, E. M., Collins, S. P., Breslin, M., Walsh, C., Kuppermann, N., Dunn, P. J., Abella, B. S., Boatright, D. B., et al. (2016) · Academic Emergency Medicine · doi:10.1111/acem.13045 · Cited by 45
Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey
Lin, J. L., Cohen, E., & Sanders, L. (2017) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2017.09.001 · Cited by 45
Can the Ethical Best Practice of Shared Decision-Making lead to Moral Distress?
Prentice, T. M., & Gillam, L. H. (2018) · Journal of Bioethical Inquiry · doi:10.1007/s11673-018-9847-8 · Cited by 49
Examining Interventions Designed to Support Shared Decision Making and Subsequent Patient Outcomes in Palliative Care: A Systematic Review of the Literature
Baik, D., Cho, H., & Creber, R. M. (2018) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909118783688 · Cited by 45
Development and validation of a patient decision aid for prostate Cancer therapy: from paternalistic towards participative shared decision making
Ankolekar, A., Vanneste, B. G. L., Gurp, E. B., van Roermund, J. G. H., Limbergen, E. J. V., van de Beek, K., Marcelissen, T. A. T., Zambon, V., Oelke, M., Dekker, A. L. A. J., et al. (2019) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-019-0862-4 · Cited by 44
Emotions and Medical Decision-Making
Gengler, A. M. (2020) · Social Psychology Quarterly · doi:10.1177/0190272519876937 · Cited by 49
“…have led patients and caregivers to play a more agentic and influential role in their medical care than ever before (Boyer and Lutfey 2010), and responsibility for decision-making is increasingly ‘‘shared’’ between patients, families, and health care providers (Charles, Gafni, and Whelan 1997).”
Background
Shared treatment decision making in a collectively funded health care system: possible conflicts and some potential solutions
Sculpher, M. J., Gafni, A., & Watt, I. S. (2002) · Social Science & Medicine · doi:10.1016/s0277-9536(01)00103-4 · Cited by 44
Medizinsystem und Gesundheitswissenschaften – Rekonstruktion einer schwierigen Beziehung
Vogd, W. (2005) · Soziale Systeme · doi:10.1515/sosys-2005-0204 · Cited by 44
“…(s. etwa Mannebach 2001; Troschke 2001) beschreibt dabei ein normatives Modell gesellschaftlichpolitischer Provenienz, welches sich eher am autonomen Gesunden als am hilfsbedürftigen Kranken orientiert (s. hierzu Charles et al. 1999; Charles et al. 1997; Deber et al. 1996; Guadagnoli/Ward 1998).”
Background
Perceptions of shared decision making among health care professionals
Chung, M., Juang, W., & Li, Y. (2019) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.13249 · Cited by 45
Confucian Familism and Shared Decision Making in End-of-Life Care for Patients with Advanced Cancers
Yang, Y., Qu, T., Yang, J., Ma, B., & Leng, A. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph191610071 · Cited by 44
Trends, challenges, and priorities for shared decision making in mental health: The first umbrella review
Chmielowska, M., Zisman‐Ilani, Y., Saunders, R., & Pilling, S. (2023) · International Journal of Social Psychiatry · doi:10.1177/00207640221140291 · Cited by 45
“Although early definitions of SDM suggest some form of family, friend, or carer involvement in patients’ mental healthcare (Charles et al., 1997), most interventions do not explicitly address SNs in SDM. Polyadic SDM provides opportunities for both the person with mental illness and members of…”
Background
Shared decision-making in medical encounters regarding breast cancer treatment: the contribution of methodological triangulation
Durif‐Bruckert, C., Roux, P., Morelle, M., Mignotte, H., Faure, C., & Moumjid, N. (2014) · European Journal of Cancer Care · doi:10.1111/ecc.12214 · Cited by 44
Psychiatric patients’ preferences and experiences in clinical decision-making: Examining concordance and correlates of patients’ preferences
Cuevas, C. D. L., Peñate, W., & y Revuelta, J. L. G. D. R. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.05.009 · Cited by 44
“This implies a two-way exchange of information between doctor and patient where options are made explicit, appraisal of current best evidence is negotiated, and patient desires are elicited [1].”
Background
Healthcare-associated infection and the patient experience: a qualitative study using patient interviews
Burnett, E., Lee, K., Rushmer, R. K., Ellis, M., Noble, M., & Davey, P. G. (2009) · Journal of Hospital Infection · doi:10.1016/j.jhin.2009.07.027 · Cited by 44
Hope and Noncurative Chemotherapies: Which Affects the Other?
Daneault, S., Dion, D., Sicotte, C., Yelle, L., Mongeau, S., Lussier, V., Coulombe, M., & Paillé, P. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.26.8425 · Cited by 43
Using Health Information Technology to Foster Engagement: Patients’ Experiences with an Active Patient Health Record
Rief, J., Hamm, M., Zickmund, S. L., Nikolajski, C., Lesky, D., Hess, R., Fischer, G. S., Weimer, M. B., Clark, S., Zieth, C. R., et al. (2016) · Health Communication · doi:10.1080/10410236.2016.1138378 · Cited by 46
“Major barriers to effective patient – provider communication include a lack of adequate “ information sharing ” (Charles et al., 1997, p. 682), inadequate preparation ahead of clinical encounters, and the inability to ask appropriate and relevant health-related questions (Bodenheimer, 2005;…”
Background
Melatonin 4 mg as prophylactic therapy for primary headaches: a pilot study
Bougea, A. M. (2016) · Functional Neurology · doi:10.11138/fneur/2016.31.1.033 · Cited by 45
14 Consent to Medical Care: The Importance of Fiduciary Context
Joffe, S., & Truog, R. D. (2009) · doi:10.1093/acprof:oso/9780195335149.003.0014 · Cited by 44
Diagnostic dilemmas in Alzheimer's disease: Room for shared decision making
van der Flier, W. M., Kunneman, M., Bouwman, F. H., Petersen, R. C., & Smets, E. M. A. (2017) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1016/j.trci.2017.03.008 · Cited by 43
“in cancer where in a given situation one might operate, start chemo, or decide not to initiate treatment at all [4,5].”
Background
Patients’ perception of their involvement in shared treatment decision making: Key factors in the treatment of inflammatory bowel disease
Veilleux, S., Noiseux, I., Lachapelle, N., Kohen, R., Vachon, L., White‐Guay, B., Bitton, A., & Rioux, J. D. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2017.07.028 · Cited by 44
“The most-often used definition of SDM was proposed by Charles et al.[16] and is characterized by the following elements: “(1) that at least two participants – physician and patient – be involved; (2) that both parties share information; (3) that both parties take steps to build a consensus about the preferred treatmen…”
Strategies for supporting intervention fidelity in the rehabilitation therapy in older acute heart failure patients (REHAB-HF) trial
Pastva, A. M., Duncan, P. W., Reeves, G. R., Nelson, M. B., Whellan, D. J., O’Connor, C. M., Eggebeen, J., Hewston, L. A., Taylor, K. M., Mentz, R. J., et al. (2017) · Contemporary Clinical Trials · doi:10.1016/j.cct.2017.10.014 · Cited by 45
Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review
Robertson, E. G., Wakefield, C. E., Signorelli, C., Cohn, R. J., Patenaude, A. F., Foster, C. L., Pettit, T., & Fardell, J. E. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.02.001 · Cited by 44
Treatment After Anterior Cruciate Ligament Injury: Panther Symposium ACL Treatment Consensus Group
Diermeier, T., Rothrauff, B. B., Engebretsen, L., Lynch, A. D., Ayeni, O. R., Paterno, M. V., Xerogeanes, J. W., Fu, F. H., Karlsson, J., Musahl, V., et al. (2020) · Orthopaedic Journal of Sports Medicine · doi:10.1177/2325967120931097 · Cited by 44
“Regardless of this 3-response concept, there is a strong historical view that the treatment approach should be determined through a shared decision-making process between the patient and the provider.(8) In particular, the physician should share information on the evidence-based treatment options while also considerin…”
Background
Ethical conflicts in patient-centred care
Hansson, S. O., & Fröding, B. E. E. (2020) · Clinical Ethics · doi:10.1177/1477750920962356 · Cited by 54
Psychometric Evaluation of the Japanese 9-Item Shared Decision-Making Questionnaire and Its Association with Decision Conflict and Patient Factors in Japanese Primary Care
Goto, Y., Miura, H., Son, D., Arai, H., Kriston, L., Scholl, I., Härter, M. C., Sato, K., & Kusaba, T. (2020) · JMA Journal · doi:10.31662/jmaj.2019-0069 · Cited by 47
“SDM-Q-9 SDM-Q-9 is a questionnaire-based measurement of a 9-stage model (10) constructed using characteristics (11) that are considered important in SDM.”
Method

Authors: Charles, C., Gafni, A., & Whelan, T.
Affiliations: McMaster University (CA)
Corresponding author: Charles, Cathy
ORCID: Gafni, Amiram
Venue: Social Science & Medicine
Publisher: Elsevier BV
Published: 1997-03
Volume: 44
Issue: 5
Pages: 681-692
ISSN: 0277-9536 (ISSN-L)
DOI: 10.1016/s0277-9536(96)00221-3
OpenAlex: W2040607890
Cited by: 4,137
References: 68
Citations by year: 2026: 168 · 2025: 200 · 2024: 224 · 2023: 213 · 2022: 174 · 2021: 247 · 2020: 250 · 2019: 233 · 2018: 224 · 2017: 234 · 2016: 209 · 2015: 182 · 2014: 221 · 2013: 192 · 2012: 187
FWCI: 63.23
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Social Science & Medicine (publishedVersion)
PubMed (publishedVersion)
RePEc: Research Papers in Economics (submittedVersion)
DigitalGeorgetown (Georgetown University Library) (submittedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
Keywords: shared decision-making, physician-patient relationship, treatment decision-making, shared information, consensus building, patient involvement in care
MeSH terms: Decision Making, Humans, Informed Consent, Models, Psychological, Patient Participation, Physician-Patient Relations, Patient Satisfaction

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango)

Abstract

Overview

Integrity signals

Verification

Claims the paper makes

Claims other papers make about this one

Citations

Cites

Cited by

Related

Metadata

Record

About these checks