Alternative consent approaches for biobank research
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Broad consent is commonly conceptualized as consent to governance.
“Broad consent is commonly conceptualized as consent to governance (82, 91), and studies of public opinion about broad consent are predicated on descriptions that involve entrusting decisions about specific studies to an ethics review board or other oversight body.”
From Lessons from HeLa Cells: The Ethics and Policy of Biospecimens (2016) · cites this paper as [91]
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Lessons from HeLa Cells: The Ethics and Policy of Biospecimens
Beskow, L. M. (2016) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev-genom-083115-022536 · Cited by 146 · see citing works
“Broad consent is commonly conceptualized as consent to governance (82, 91), and studies of public opinion about broad consent are predicated on descriptions that involve entrusting decisions about specific studies to an ethics review board or other oversight body.”
BackgroundInclusion of Residual Tissue in Biobanks: Opt-In or Opt-Out?
Giesbertz, N. A. A., Bredenoord, A. L., & van Delden, J. J. M. (2012) · PLoS Biology · doi:10.1371/journal.pbio.1001373 · Cited by 48 · see citing works
- Authors
- Maschke, K. J.
- Affiliations
- Hastings Center (US)
- Corresponding author
- Maschke, Karen J
- ORCID
- Maschke, Karen J
- Venue
- The Lancet Oncology
- Publisher
- Elsevier BV
- Published
- 2006-03
- Volume
- 7
- Issue
- 3
- Pages
- 193-194
- ISSN
- 1470-2045 (ISSN-L)
- OpenAlex
- W2023139668
- Cited by
- 38
- References
- 0
- Citations by year
- 2021: 1 · 2017: 1 · 2016: 6 · 2015: 1 · 2014: 2 · 2013: 2 · 2012: 4
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Lancet Oncology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Health Sciences › Medicine › Physiology › Biomedical Ethics and Regulation
- Keywords
- informed consent, biobank research, broad consent, proxy consent, research ethics, ethical review, research participants
- MeSH terms
- Ethics, Medical, Humans, Informed Consent, Risk Factors, Tissue Banks, Genetic Predisposition to Disease, Personal Autonomy
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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