The DOI matches its Crossref record.
In Defense of Broad Consent
Abstract
Proper procedures for informed consent are widely recognized as an ethical requirement for biomedical research involving human beings, in particular as a means to respect the autonomy and personal integrity of potential and actual research participants.
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With regard to the collection of biospecimens specifically for research, the ethical acceptability of broad consent for future unspecified use has long been discussed, but surveys suggest that it is now common in the United States and possibly other countries.
“With regard to the collection of biospecimens specifically for research, the ethical acceptability of broad consent for future unspecified use has long been discussed (21, 52, 54, 61, 75, 109), but surveys suggest that it is now common in the United States (57) and possibly other countries (40, 109).”
From Lessons from HeLa Cells: The Ethics and Policy of Biospecimens (2016) · cites this paper as [54]
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Research works printed but not linked: 24
- Rubin, 2010, Havasupai tribe win nice settlement from ASU in scandalous blood-sample case, Phoenix New Times
- Dillner, 1994, A population-based seroepidemiological study of cervical cancer, Cancer Research, 54, 134
- 10.1038/sj.ejhg.5201458 · DOI
- Faden, 1986, A History and Theory of Informed Consent
- 10.1016/j.socscimed.2009.10.004 · DOI
- 10.1111/j.1467-8519.2004.00377.x · DOI
- 10.1111/j.1748-720X.2005.tb00205.x · DOI
- 10.1038/sj.embor.7400740 · DOI
- Beauchamp, 2009, Principles of Biomedical Ethics
- 10.1183/09031936.00165006 · DOI
- 10.1080/09615768.2007.11427674 · DOI · Paper page
- Harmon, 2010, Where’d you go with my DNA, The New York Times
- Haga, 2008, Ethical, legal, and social implications of biobanks for genetic research, Advances in Genetics, 60, 505, 10.1016/S0065-2660(07)00418-X · DOI
- 10.1038/nbt0505-539 · DOI
- 10.1016/S1470-2045(06)70618-0 · DOI · Paper page
- Harmon, 2010, Indian tribe wins fight to limit research of its DNA, The New York Times
- 10.1038/sj.bjc.6600454 · DOI
- 10.1136/jme.2005.012013 · DOI
- 10.1016/j.shpsc.2006.06.007 · DOI
- 10.1136/jme.2008.024851 · DOI
- Harmon, 2010, Havasupai case highlights risks in DNA research, The New York Times
- Elger, 2008, Ethical Issues in Governing Biobanks: Global Perspectives, 57
- 10.1038/nbt0506-496 · DOI
- 10.1038/nbt0908-979b · DOI
Cited by
Sorted by citations
Mostert, M., Bredenoord, A. L., Biesaart, M. C. I. H., & van Delden, J. J. M. (2016) · European Journal of Human Genetics · doi:10.1038/ejhg.2015.239 · Cited by 143
Lessons from HeLa Cells: The Ethics and Policy of Biospecimens
Beskow, L. M. (2016) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev-genom-083115-022536 · Cited by 146
“With regard to the collection of biospecimens specifically for research, the ethical acceptability of broad consent for future unspecified use has long been discussed (21, 52, 54, 61, 75, 109), but surveys suggest that it is now common in the United States (57) and possibly other countries (40, 109).”
Background
Metadata
- Authors
- HELGESSON, G.
- Affiliations
- Karolinska Institutet (SE)
- Corresponding author
- HELGESSON, GERT
- ORCID
- HELGESSON, GERT
- Venue
- Cambridge Quarterly of Healthcare Ethics
- Publisher
- Cambridge University Press (CUP)
- Published
- 2011-12-13
- Volume
- 21
- Issue
- 1
- Pages
- 40-50
- ISSN
- 0963-1801 (ISSN-L)
- 1469-2147
- OpenAlex
- W2324281291
- Cited by
- 80
- References
- 0
- Citations by year
- 2026: 6 · 2024: 5 · 2023: 3 · 2022: 4 · 2021: 6 · 2020: 8 · 2019: 5 · 2018: 7 · 2017: 5 · 2016: 7 · 2015: 8 · 2014: 7 · 2013: 5 · 2012: 4
- FWCI
- 5.03
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Cambridge Quarterly of Healthcare Ethics (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Social Sciences › Law › Medical and Health Sciences Research
- Keywords
- broad consent, informed consent, research ethics, human subjects research, participant autonomy, personal integrity, research participant protection
- MeSH terms
- Diabetes Mellitus, Forecasting, Humans, Indians, North American, Informed Consent, Risk, Tissue Banks, United States, Personal Autonomy, Ethics Committees, Research, Comprehension, Ethics, Research, Information Dissemination, Trust, Research Subjects, Genetic Research
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