Caregiver burden in end-of-life care: Advanced cancer and final stage of dementia
Abstract
Objective Considering two advanced illnesses, cancer and end-stage dementia, the aim of this study was to describe the symptoms of caregiver psychological distress and burden. Method In this cross-sectional study, regression analyses were calculated to explain the influence of psychological distress in caregiver burden. A t test was employed to compare differences between the symptoms of caregiver burden. Results The percentage of psychological distress was similar between caregivers of cancer patients (77.6%) and caregivers of dementia patients (72.4%). In the regression analysis, cancer caregiver distress accounted for 27.9% of the variance in symptoms of burden, while dementia caregiver distress accounted for 24.4% of the variance in symptoms of burden. No significant differences were revealed when comparing caregiver burden symptoms between caregivers of the two advanced illnesses (t = 0.06; p = 0.94). Significance of results In end-of-life care for patients with dementia, due to significant levels of caregiver distress and burden symptoms, there is a need to support caregivers in the same way as is done for caregivers of cancer patients.
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Informal caregivers are not adequately prepared to handle end-of-life care for patients with advanced cancer.
“It is widely recognized that informal caregivers are not adequately prepared to handle end-of life-care for patients with advanced cancer [5, 6].”
From Preparedness, resilience and unmet needs of informal caregivers of advanced cancer patients in a Regional Mission Hospital in Kenya: Qualitative Study (2023) · cites this paper as [5]
Cites
A validation study of the hospital anxiety and depression scale (HADS) in a Spanish population
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Short-form Zarit caregiver burden interviews were valid in advanced conditions
Higginson, I. J., Gao, W., Jackson, D., Murray, J., & Harding, R. (2010) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2009.06.014 · Cited by 343 · cited 3× · see citing works
“This is a multidimensional construct that involves the physical, social, financial, and emotional com- ponents of a caregiver’s function (Higginson et al., 2010).”
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Cognitive reframing for carers of people with dementia
Vernooij-Dassen, M., Draskovic, I., McCleery, J., & Downs, M. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd005318.pub2 · Cited by 134 · see citing works
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Caregiver burden: A concept analysis
Liu, Z., Heffernan, C., & Tan, J. (2020) · International Journal of Nursing Sciences · doi:10.1016/j.ijnss.2020.07.012 · Cited by 749 · see citing works
Analysis of caregiver burden in palliative care: An integrated review
Choi, S., & Seo, J. (2019) · Nursing Forum · doi:10.1111/nuf.12328 · Cited by 124 · see citing works
Too, W., Lelei, F., Adam, M., & Halestrap, P. (2023) · BMC Palliative Care · doi:10.1186/s12904-022-01048-6 · Cited by 22 · see citing works
“It is widely recognized that informal caregivers are not adequately prepared to handle end-of life-care for patients with advanced cancer [5, 6].”
Background
- Authors
- Costa-Requena, G., Espinosa Val, M., & Cristòfol, R.
- Affiliations
- Maresme Health Consortium (ES)
- Venue
- Palliative and Supportive Care
- Publisher
- Cambridge University Press (CUP)
- Published
- 2014-03-10
- Volume
- 13
- Issue
- 3
- Pages
- 583-589
- ISSN
- 1478-9515 (ISSN-L)
- 1478-9523
- OpenAlex
- W2109915784
- Cited by
- 53
- References
- 5
- Citations by year
- 2025: 2 · 2024: 1 · 2023: 5 · 2022: 7 · 2021: 7 · 2020: 12 · 2019: 6 · 2018: 4 · 2017: 5 · 2016: 1 · 2015: 2 · 2014: 1
- FWCI
- 2.97
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Palliative & Supportive Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- caregiver burden, caregiver psychological distress, end-of-life care, advanced cancer, late-stage dementia, caregiver support, symptom burden
- MeSH terms
- Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Dementia, Female, Humans, Male, Middle Aged, Neoplasms, Palliative Care, Stress, Psychological, Caregivers, Cost of Illness
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