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Cited by 147Survey Methodology and NonresponseHealth Systems, Economic Evaluations, Quality of LifeHealth Education and Validation

The DOI matches its Crossref record; 19 of the 19 references it cites were found in a registry or an index.

Electronic collection of health-related quality of life data: Validity, time benefits, and patient preference

Bliven, Brent D., Kaufman, Stanley E., Spertus, John A.·2001·Quality of Life Research
DOI 10.1023/a:1016740312904
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Abstract

This study sought to validate World Wide Web-compliant software tools used to collect health-related quality of life (HRQOL) data, relative to pencil-and-paper collection. The RAND-36 general health survey and the Seattle Angina questionnaire (SAQ), a disease-specific functional status measure for patients with coronary artery disease, were each administered in paper and electronic format to 55 consecutive patients visiting the cardiology outpatient clinic of a public hospital. All eight sub-scale scores of the RAND-36 (interclass correlation coefficient range = 0.54-0.75, p < 0.01) and all five domains of the SAQ (interclass correlation coefficient range = 0.84-0.90, p < 0.01) collected using the software were significantly correlated with those collected using the paper version of questionnaires. Computer literacy, educational level, age, sex, and race were not significantly associated with the ability to successfully complete the computer-assisted questionnaire. Eighty-two percent of patients preferred the computer-assisted administration to paper, and 89% reported that they would feel comfortable using the software in the future without any technical assistance. This pilot study suggests that HRQOL measures can be reliably collected using software operating over the World Wide Web. Data collected in this manner are valid and of comparable quality to self-reported, HRQOL data obtained via paper survey.

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Research works printed but not linked: 2

  1. Guyatt GH, Jaeschke R, Feeny DH, Patrick DL. Measurements in clinical trials: Choosing the right approach. In: Spilker B (ed.), Quality of Life and Pharamcoeconomics in Clinical Trials, Philadelphia, PA: Lipincott-Raven, 1996.
  2. Anonymous. AMA launches physician accreditation program: Will AMAP become the gold standard? Health Care Business Digest 1988; 3: 35–43.

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Metadata

Authors
Bliven, B. D., Kaufman, S. E., & Spertus, J. A.
Affiliations
University of Missouri–Kansas City (US)
Corresponding author
  • Bliven, Brent D.
  • Spertus, John A.
ORCID
Spertus, John A.
Venue
Quality of Life Research
Publisher
Springer Science and Business Media LLC
Published
2001-01
Volume
10
Issue
1
Pages
15-21
ISSN
  • 0962-9343 (ISSN-L)
  • 1573-2649
DOI
10.1023/a:1016740312904
OpenAlex
W3347162
Cited by
146
References
19
Citations by year
2025: 1 · 2024: 4 · 2023: 1 · 2022: 2 · 2021: 8 · 2020: 4 · 2019: 9 · 2018: 10 · 2017: 5 · 2016: 2 · 2015: 6 · 2014: 6 · 2013: 8 · 2012: 6
FWCI
16.47
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Quality of Life Research (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Health Sciences › Nursing › Research and Theory › Health Education and Validation
Keywords
health-related quality of life, electronic data collection, web-based questionnaire, RAND-36, Seattle Angina Questionnaire, coronary artery disease, questionnaire validity, computer literacy, patient preferences, time savings, self-reported outcomes
MeSH terms
Adult, Aged, Aged, 80 and over, Data Collection, Female, Health Surveys, Humans, Male, Middle Aged, Pilot Projects, Quality of Life, Reproducibility of Results, Linear Models, Logistic Models, Internet

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