Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5
Abstract
Objective To develop and validate a short form version of the Endometriosis Health Profile-30 questionnaire which consists of a 30-item core questionnaire and a 23 item modular questionnaire. Methods Three studies were carried out to develop the Endometriosis Health Profile-5. Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. Study 2: the results were verified in a new data set. Study 3: a short form version of the 23 item modular questionnaire was produced. The modular questionnaire contains six dimensions which may not be applicable to every woman with endometriosis and is used to supplement the five scales on the core questionnaire when required. Results The final instrument contained 11 items: five items from the core questionnaire and six items from the modular questionnaire. The 95% confidence intervals for Study 1 indicated that the scale scores overlapped with each item score and were confirmed in the second analysis (study 2). Each item was most highly correlated to its parent scale and less with the remaining four core questionnaire scales which was verified in study 2. In both studies all correlations were significant at the 0.01 level (two tailed test). Conclusion The Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required. It will be especially useful in clinical settings where a short and…
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EHP-30 and its abbreviated form EHP-5 are the sole validated instruments specific to endometriosis for measuring HRQoL.
“To date, the only validated endometriosis-specific HRQoL instruments are EHP-30 and its shorter version, EHP-5 (25-29).”
From Quantification of the impact of endometriosis symptoms on health-related quality of life and work productivity (2011) · cites this paper as [29]
The EHP-5 was created and validated as a brief endometriosis-specific HRQoL measure.
“The endometriosis-specific EHP-5 survey was developed and validated in an effort to have a condensed HRQoL instrument that could be used in a time-effective manner during a clinical consult and/or encounters with researchers (29).”
From Quantification of the impact of endometriosis symptoms on health-related quality of life and work productivity (2011) · cites this paper as [29]
Only a few patient-reported outcome studies have quantified the impact of endometriosis.
“Despite the fact that endometriosis is a common gynecologic disorder that poses a significant economic impact to health care systems around the world, only a few Patient-Reported Outcome (PRO) studies have been conducted to quantify its impact (21-24).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [24]
Prior patient-reported outcome studies concluded that endometriosis impairs health-related quality of life, particularly physical, psychological, and social function.
“These studies concluded that endometriosis impairs health related quality of life (HRQoL), specifically in areas related to physical, psychological, and social function.”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [24]
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References 17 · Cited by 137
- Authors
- Jones, G., Jenkinson, C., & Kennedy, S.
- Affiliations
- University of Oxford (GB)
- Corresponding author
- Jones, Georgina
- Venue
- Quality of Life Research
- Published
- 2004-04
- Volume
- 13
- Issue
- 3
- Pages
- 695-704
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2015901402
- Cited by
- 137
- References
- 17
- Citations by year
- 2026: 16 · 2025: 11 · 2024: 13 · 2023: 8 · 2022: 15 · 2021: 8 · 2020: 7 · 2019: 6 · 2018: 12 · 2017: 5 · 2016: 1 · 2015: 5 · 2014: 6 · 2013: 4 · 2012: 3
- FWCI
- 1.62
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Education › Health Education and Validation
- Keywords
- endometriosis, short-form questionnaire, Endometriosis Health Profile-30, health status measurement, questionnaire development, psychometric validation, quality of life
- MeSH terms
- Adolescent, Adult, Endometriosis, Female, United Kingdom, Humans, Middle Aged, Pain, Psychometrics, Quality of Life, Surveys and Questionnaires, Sickness Impact Profile
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