Informed consent: A broken contract
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
There is a chasm between the theoretical ideals of informed consent and what it accomplishes in actual practice.
“There is a chasm between the theoretical ideals of informed consent and what it accomplishes in actual practice (46, 53, 55).”
From Lessons from HeLa Cells: The Ethics and Policy of Biospecimens (2016) · cites this paper as [53]
Cited by
Sorted by citations
Forgetting personal data and revoking consent under the GDPR: Challenges and proposed solutions
Politou, E., Alepis, E., & Patsakis, C. (2018) · Journal of Cybersecurity · doi:10.1093/cybsec/tyy001 · Cited by 313 · see citing works
Lessons from HeLa Cells: The Ethics and Policy of Biospecimens
Beskow, L. M. (2016) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev-genom-083115-022536 · Cited by 146 · see citing works
“There is a chasm between the theoretical ideals of informed consent and what it accomplishes in actual practice (46, 53, 55).”
BackgroundFit for purpose? The GDPR and the governance of European digital health
Marelli, L., Lievevrouw, E., & Van Hoyweghen, I. (2020) · Policy Studies · doi:10.1080/01442872.2020.1724929 · Cited by 137 · see citing works
Direct-to-consumer genomics on the scales of autonomy
Vayena, E. (2015) · Journal of Medical Ethics · doi:10.1136/medethics-2014-102026 · Cited by 62 · see citing works
Caught in the web: informed consent for online health research
Vayena, E., Mastroianni, A., & Kahn, J. (2013) · Science Translational Medicine · doi:10.1126/scitranslmed.3004798 · Cited by 53 · see citing works
- Authors
- Check Hayden, E.
- Venue
- Nature
- Published
- 2012-06-20
- Volume
- 486
- Issue
- 7403
- Pages
- 312-314
- ISSN
- 0028-0836 (ISSN-L)
- 1476-4687
- OpenAlex
- W1972296896
- Cited by
- 53
- References
- 0
- Citations by year
- 2024: 1 · 2023: 1 · 2022: 1 · 2021: 4 · 2020: 1 · 2019: 2 · 2018: 4 · 2017: 3 · 2016: 9 · 2015: 2 · 2014: 11 · 2013: 12 · 2012: 2
- Type
- other
- Language
- en
- Open access
- closed
- Licence
- Locations
- Nature (publishedVersion)
- PubMed (publishedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Physical Sciences › Computer Science › Information Systems › Research Data Management Practices
- Keywords
- informed consent, research ethics, data reuse, data sharing, participant rights
- MeSH terms
- Genetic Testing, Humans, Informed Consent, Parkinson Disease, Patents as Topic, Patient Advocacy, Databases, Genetic, Consent Forms
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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