The DOI matches its Crossref record; 26 of the 27 references it cites were found in a registry or an index.
The FAIR guiding principles for data stewardship: fair enough?
Open accessAbstract
The FAIR guiding principles for research data stewardship (findability, accessibility, interoperability, and reusability) look set to become a cornerstone of research in the life sciences. A critical appraisal of these principles in light of ongoing discussions and developments about data sharing is in order. The FAIR principles point the way forward for facilitating data sharing more systematically-provided that a number of ethical, methodological, and organisational challenges are addressed as well.
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“The Global Indigenous Data Alliance developed the CARE—Collective benefit, Authority to control, Responsibility, and Ethics— Principles as a response to a movement towards FAIR—Findable, Accessible, Interoperable, Reusable—Principles, which are based on universalized access to data (Boeckhout, Zielhuis, & Bredenoord, 2018; GO FAIR, n.d.).”
From Addressing the need for indigenous and decolonized quantitative research methods in Canada (2021) · cites this paper as Boeckhout, Zielhuis, & Bredenoord, 2018
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Cites
The FAIR Guiding Principles for scientific data management and stewardship
Wilkinson, M. D., Dumontier, M., Aalbersberg, I. J., Appleton, G., Axton, M., Baak, A., Blomberg, N., Boiten, J.-W., da Silva Santos, L. B., Bourne, P. E., et al. (2016) · Scientific Data · doi:10.1038/sdata.2016.18 · Cited by 18,423
A manifesto for reproducible science
Munafò, M. R., Nosek, B. A., Bishop, D. V. M., Button, K. S., Chambers, C. D., Percie du Sert, N., Simonsohn, U., Wagenmakers, E.-J., Ware, J. J., & Ioannidis, J. P. A. (2017) · Nature Human Behaviour · doi:10.1038/s41562-016-0021 · Cited by 3,397
Bibliometrics: The Leiden Manifesto for Research Metrics
Hicks, D., Wouters, P., Waltman, L., de Rijcke, S., & Rafols, I. (2015) · Nature · doi:10.1038/520429a · Cited by 2,828
The Extent and Consequences of P-Hacking in Science
Head, M. L., Holman, L., Lanfear, R., Kahn, A. T., & Jennions, M. D. (2015) · PLOS Biology · doi:10.1371/journal.pbio.1002106 · Cited by 1,388
Dynamic consent: a patient interface for twenty-first century research networks
Kaye, J., Whitley, E. A., Lund, D., Morrison, M., Teare, H., & Melham, K. (2015) · European Journal of Human Genetics · doi:10.1038/ejhg.2014.71 · Cited by 780
The ethics of big data: current and foreseeable issues in biomedical contexts
Mittelstadt, B. D., & Floridi, L. (2016) · Science and Engineering Ethics · doi:10.1007/s11948-015-9652-2 · Cited by 714
Big Data, Little Data, No Data
Borgman, C. L. (2015) · The MIT Press eBooks · doi:10.7551/mitpress/9963.001.0001 · Cited by 598
Mons, B., Neylon, C., Velterop, J., Dumontier, M., Santos, L. O. B. D. S., & Wilkinson, M. D. (2017) · Information Services & Use · doi:10.3233/isu-170824 · Cited by 432
What Drives Academic Data Sharing?
Fecher, B., Friesike, S., & Hebing, M. (2014) · PLoS ONE · doi:10.1371/journal.pone.0118053 · Cited by 399
The European Genome-phenome Archive of human data consented for biomedical research
Lappalainen, I., Almeida, J. P., Kumanduri, V., Senf, A., Spalding, D., Ur-Rehman, S., Saunders, G. I., Kandasamy, J., Cáccamo, M., Leinonen, R., et al. (2015) · Nature Genetics · doi:10.1038/ng.3312 · Cited by 366
Framework for responsible sharing of genomic and health-related data
Knoppers, B. M. (2014) · The HUGO Journal · doi:10.1186/s11568-014-0003-1 · Cited by 363
Big data, little data, no data: scholarship in the networked world
(2015) · Choice Reviews Online · doi:10.5860/choice.190901 · Cited by 341
Shabani, M., & Borry, P. (2017) · European Journal of Human Genetics · doi:10.1038/s41431-017-0045-7 · Cited by 173
Khoury, M. J., Bertram, L., Boffetta, P., Butterworth, A. S., Chanock, S. J., Dolan, S. M., Fortier, I., García‐Closas, M., GWINN, M. L., Higgins, J. P. T., et al. (2009) · American Journal of Epidemiology · doi:10.1093/aje/kwp119 · Cited by 146
Mostert, M., Bredenoord, A. L., Biesaart, M. C. I. H., & van Delden, J. J. M. (2016) · European Journal of Human Genetics · doi:10.1038/ejhg.2015.239 · Cited by 143
Self-citationBiomedical Big Data: New Models of Control Over Access, Use and Governance
Vayena, E., & Blasimme, A. (2017) · Journal of Bioethical Inquiry · doi:10.1007/s11673-017-9809-6 · Cited by 127
Lezaun, J., & Montgomery, C. M. (2014) · Science Technology & Human Values · doi:10.1177/0162243914542349 · Cited by 126
Redefining Genomic Privacy: Trust and Empowerment
Narayanan, A., Yocum, K., Glazer, D., Farahany, N. A., Olson, M., Stein, L. D., Williams, J. B., Witkowski, J., Kain, R. C., & Erlich, Y. (2014) · bioRxiv · doi:10.1371/journal.pbio.1001983 · Cited by 109
BBMRI-ERIC Directory: 515 Biobanks with Over 60 Million Biological Samples
Holub, P., Swertz, M. A., Reihs, R., van Enckevort, D., Müller, H., & Litton, J. (2016) · Biopreservation and Biobanking · doi:10.1089/bio.2016.0088 · Cited by 95
Consent Codes: Upholding Standard Data Use Conditions
Dyke, S. O. M., Philippakis, A., Rambla, J., Paltoo, D. N., Luetkemeier, E. S., Knoppers, B. M., Brookes, A. J., Spalding, D., Thompson, M., Roos, M., et al. (2016) · PLoS Genetics · doi:10.1371/journal.pgen.1005772 · Cited by 86
Beyond open data: realising the health benefits of sharing data: Table 1
Pisani, E., Aaby, P., Breugelmans, J. G., Carr, D. L., Groves, T., Helinski, M. E. H., Kamuya, D., Kern, S. E., Littler, K., Marsh, V., et al. (2016) · BMJ · doi:10.1136/bmj.i5295 · Cited by 80
From the principles of genomic data sharing to the practices of data access committees
Shabani, M., Knoppers, B. M., & Borry, P. (2015) · EMBO Molecular Medicine · doi:10.15252/emmm.201405002 · Cited by 65
The Double-Edged Sword of Open Access to Research Data
Spertus, J. A. (2012) · Circulation Cardiovascular Quality and Outcomes · doi:10.1161/circoutcomes.112.965814 · Cited by 25
Can Data Sharing Become the Path of Least Resistance?
Editors, T. P. M. (2016) · PLoS Medicine · doi:10.1371/journal.pmed.1001949 · Cited by 22
Thanks for sharing: the bumpy road towards truly open data
Murray, M. J. (2016) · BMJ · doi:10.1136/bmj.i849 · Cited by 4
Rich, L. E. (2017) · Journal of Bioethical Inquiry · doi:10.1007/s11673-017-9769-x · Cited by 4
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Metadata
- Authors
- Boeckhout, M., Zielhuis, G. A., & Bredenoord, A. L.
- Affiliations
- University Medical Center Utrecht (NL)
- Radboud University Medical Center (NL)
- Corresponding author
- Boeckhout, Martin
- Venue
- European Journal of Human Genetics
- Published
- 2018-05-17
- Volume
- 26
- Issue
- 7
- Pages
- 931-936
- ISSN
- 1018-4813 (ISSN-L)
- 1476-5438
- PMC
- PMC6018669
- OpenAlex
- W2804142383
- Cited by
- 290
- References
- 27
- Citations by year
- 2026: 23 · 2025: 38 · 2024: 45 · 2023: 44 · 2022: 54 · 2021: 48 · 2020: 22 · 2019: 13 · 2018: 3
- FWCI
- 3.96
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- other-oa
- www.springer.com/tdm (tdm)
- Locations
- European Journal of Human Genetics (publishedVersion, other-oa)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
- Radboud Repository (Radboud University) (submittedVersion)
- Utrecht University Repository (Utrecht University) (submittedVersion)
- Funders
- Nederlandse Organisatie voor Wetenschappelijk Onderzoek (184.033.111)
- Topics
- Physical Sciences › Computer Science › Information Systems › Research Data Management Practices
- Social Sciences › Sociology and Political Science › Data Analysis and Archiving
- Social Sciences › Decision Sciences › Information Systems and Management › Scientific Computing and Data Management
- Keywords
- FAIR principles, research data stewardship, data sharing, discoverability, accessibility, interoperability, reusability, research data management, biology research, data ethics
- MeSH terms
- Biological Science Disciplines, Humans, Research, Databases, Factual, Information Dissemination
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