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Assessing the Impact of Psoriasis and the Relevance of Qualitative Research
Open accessAbstract
Living with psoriasis is a lifetime experience. The lack of a cure combines with a peculiar public response of disinterest if not prejudice and stigmatization. Various factors account for changes in quality of life measures that seem independent from disease severity and effectiveness of treatment. Merging a qualitative and individual case analysis with assessment of quality of life would represent a direction for future studies.
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The utilisation of mixed methods in this research study would allow a more complete picture of how social work student engagement with an MBP may lead to improved stress, burnout, anxiety and well-being.
“The utilisation of mixed methods in this research study would therefore allow a more complete picture of how social work student engagement with an MBP may lead to improved stress, burnout, anxiety and well-being (Jobling and Naldi, 2006).”
From Exploring the Potential Mechanisms of Action of the Mindfulness-based Social Work and Self-care Programme. (2022) · cites this paper as Jobling and Naldi, 2006
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Cited by
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“It has been repeatedly documented that public response to skin disease is not understanding or empathy, as one would expect, but rather, disinterest and stigmatization.([3]) Naldi and Minelli([9]) noted that, ‘‘the origins of such a response are to be found deeply rooted in history and culture.”
BackgroundSelf-citationRecognition of need in health care consultations: a qualitative study of people with psoriasis
Nelson, P. A., Chew-Graham, C. A., Griffiths, C. E. M., Cordingley, L., & on behalf of the IMPACT Team (2012) · British Journal of Dermatology · doi:10.1111/j.1365-2133.2012.11217.x · Cited by 81
Schmid-Ott, G., Schallmayer, S., & Calliess, I. (2007) · Clinical Dermatology · doi:10.1016/j.clindermatol.2007.08.008 · Cited by 86
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Magin, P., Heading, G., Adams, J., & Pond, D. (2010) · Psychology, Health & Medicine · doi:10.1080/13548506.2010.484463 · Cited by 65
“…that qualitative research ‘‘is the first key to determining, unraveling, and understanding’’ complexities in the patient’s experience of skin disease (Jobling & Naldi, 2006) and that ‘‘the method allows the interviewer to obtain a more coherent picture of the subject as a person’’(Metz & Jemec,…”
Patients’ Perspectives on the Impact of Genital Psoriasis: A Qualitative Study
Cather, J., Ryan, C., Meeuwis, K., Bleakman, A. J. P., Naegeli, A., Edson-Heredia, E., Poon, J., Jones, C. A., Wallace, A., Guenther, L., et al. (2017) · Dermatologic Therapy · doi:10.1007/s13555-017-0204-3 · Cited by 62
“The details of patients’ ‘‘lived experience’’ in illuminating theburdenand impactofGenPs attests toa role for qualitative research in psoriasis research [19, 27].”
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Ghazizadeh, R., Tosa, M., & Ghazizadeh, M. (2011) · American Journal of the Medical Sciences · doi:10.1097/maj.0b013e3181ff8eeb · Cited by 49
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Nelson, P. (2015) · British Journal of Dermatology · doi:10.1111/bjd.13720 · Cited by 37
Major life changing decisions and cumulative life course impairment
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Chern, E., Yau, D., Ho, J., Wu, W.-M., Wang, C.-Y., Chang, H.-W., & Cheng, Y.-W. (2011) · Acta Dermato-Venereologica · doi:10.2340/00015555-1096 · Cited by 24
Coimbra, S., Oliveira, H., Figueiredo, A., Rocha-Pereira, P., & Santos-Silva, A. (2012) · InTech eBooks · doi:10.5772/26474 · Cited by 19
“Psoriasis deeply affects the well-being of the patient and has emotional and social consequences (Jobling and Naldi 2006).”
Severity and management of psoriasis within primary care
Wade, A., Crawford, G., Young, D., Leman, J., & Pumford, N. (2016) · BMC Family Practice · doi:10.1186/s12875-016-0544-6 · Cited by 18
“The combination of qualitative and individual case analysis with quantitative assessments of QoL could make a valuable impact on future research into psoriasis and the development of suitable treatments [14].”
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Barisone, M., Bagnasco, A., Hayter, M., Rossi, S., Aleo, G., Zanini, M., Catania, G., Pellegrini, R., Dasso, N., Ghirotto, L., et al. (2020) · Journal of Clinical Nursing · doi:10.1111/jocn.15375 · Cited by 16
Maddock, A., & McCusker, P. (2022) · The British Journal of Social Work · doi:10.1093/bjsw/bcac066 · Cited by 15
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“Psoriatic lesions are visible to others and may have emotional and relational consequences that go far beyond the skin [6] .”
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“To gain insight into the impact of skin disease on a patient’s everyday life (for example, to understand the implications of continuous treatment), a qualitative research approach is needed (5).”
BackgroundQuintard, B., Constant, A., Bouyssou-Gauthier, M.-L., Paul, C. F., Truchetet, F., Thomas, P., Guiguen, Y., & Taı̈eb, A. (2011) · Acta Dermato Venereologica · doi:10.2340/00015555-1137 · Cited by 13
Coimbra, S., Oliveira, H., Reis, F., Belo, L., Carvalho, A., Figueiredo, A., Teixeira, F., Castro, E., Rocha-Pereira, P., & Santos-Silva, A. (2011) · Journal of dermatology (Print) · doi:10.1111/j.1346-8138.2010.01087.x · Cited by 10
Newi, A.-L., Tsianakas, A., von Martial, S., Sommer, R., & Blome, C. (2022) · Quality of Life Research · doi:10.1007/s11136-022-03189-w · Cited by 9
“However, it has been questioned how much these indicators really capture the full life impact of a long-term condition such as psoriasis [21].”
BackgroundPotential role of ustekinumab in the treatment of chronic plaque psoriasis
Naldi, L. (2010) · Biologics · doi:10.2147/btt.s4921 · Cited by 7
“The disease deeply affects well being and has emotional and relational consequences which go far beyond the skin.(1) In addition, a link has been repeatedly suggested between the inflammatory process sustaining psoriasis and metabolic derangements.”
Self-citationHashimoto, T., Kawakami, T., Tsuruta, D., Hamada, T., Natsuaki, Y., Fukuda, S., Koga, H., Sogame, R., Ohyama, B., Ono, F., et al. (2012) · Australasian Journal of Dermatology · doi:10.1111/j.1440-0960.2011.00870.x · Cited by 6
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Finlay, A. Y., & Smith, C. H. (2010) · Wiley eBooks · doi:10.1002/9781444317633.ch72 · Cited by 3
Al-zubi, M., Seetan, K., Jarrar, B., Aldebei, A., Rubbai, Y., & Daradkeh, S. (2021) · doi:10.31083/jomh.2021.075 · Cited by 2
“Psoriasis dramatically impairs quality of life and wellbeing, and in addition to skin manifestations, it carries a variety of emotional and psychological consequences [5].”
BackgroundClinical Presentation of Psoriasis
Mitra, A., & Mitra, A. (2013) · InTech eBooks · doi:10.5772/55866 · Cited by 1
“The disease imparts a huge socio-economic burden [6, 7] and the diagnosis of psoriasis is purely based on clinical features.”
BackgroundMATHEMATICAL MODELING REGULATORY MECHANISMS OF PSORIASIS PATHOGENESIS
Hidirova, M., Shakarov, A., & Saidalieva, M. (2017) · doi:10.15863/tas.2017.10.54.2
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Naldi, L., Cazzaniga, S., & Rao, G. (2014) · doi:10.1002/9781118661796.ch1
Self-citationWhere Does Qualitative Research Fit Into Evidence‐Based Dermatology?
Jobling, R., & Naldi, L. (2014) · doi:10.1002/9781118357606.ch17
Self-citationCorey, K. C., Mattei, P., Houston, N. A. M., Tebbey, P., Menter, A., van de Kerkhof, P., & Kimball, A. (2012) · doi:10.4155/cli.12.57
Wolfe, B., O'Toole, A., Tan, J., & Sirois, F. (2011) · doi:10.1177/247553031117a00407
Manifestation of psoriatic lesions in a cooling pillow user
Miyoshi, K., Takamura, S., Nakajima, H., & Sano, S. (2011) · Journal of dermatology (Print) · doi:10.1111/j.1346-8138.2010.01085.x
Metadata
- Authors
- Jobling, R., & Naldi, L.
- Affiliations
- University of Cambridge (GB)
- Centro Studi GISED (IT)
- Corresponding author
- Naldi, Luigi
- ORCID
- Naldi, Luigi
- Venue
- Journal of Investigative Dermatology
- Publisher
- Elsevier BV
- Published
- 2006-07
- Volume
- 126
- Issue
- 7
- Pages
- 1438-1440
- ISSN
- 0022-202X (ISSN-L)
- OpenAlex
- W1972677318
- Cited by
- 38
- References
- 18
- Citations by year
- 2025: 1 · 2022: 3 · 2021: 2 · 2020: 1 · 2018: 1 · 2017: 1 · 2016: 1 · 2015: 1 · 2014: 3 · 2013: 2 · 2012: 6
- FWCI
- 0.76
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Investigative Dermatology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Immunology and Microbiology › Immunology › Psoriasis: Treatment and Pathogenesis
- Health Sciences › Medicine › Dermatology › Dermatology and Skin Diseases
- Health Sciences › Medicine › Rheumatology › Spondyloarthritis Studies and Treatments
- Keywords
- psoriasis, quality of life, stigma, social prejudice, lived experience, qualitative research, case analysis, disease severity, treatment effectiveness
- MeSH terms
- Chronic Disease, Disability Evaluation, Humans, Psoriasis, Quality of Life, Research, Self-Assessment, Severity of Illness Index, Time Factors, Qualitative Research
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