The DOI matches its Crossref record; 51 of the 51 references it cites were found in a registry or an index.
Navigating care after a baby dies: a systematic review of parent experiences with health providers
Abstract
Introduction Health care providers are on the front lines of care when a baby dies, but there is no consensus about which behaviors are most helpful or harmful for families.Materials and methods This systematic review of more than 1100 English-language articles from 1966 to 2006 addressed fetal and early infant loss and extracted information about interactions with health providers.Results Sixty-one studies, covering over 6000 parents, met criteria. Nurses were generally viewed as more emotionally supportive than physicians. Parents valued emotional support, attention to mother and baby and grief education. Avoidance, insensitivity and poor staff communication were the most distressing behaviors encountered.Discussion Interactions with health providers has profound effects on parents with perinatal losses. Grieving parents perceive many behaviors to be thoughtless or insensitive. Physicians and nurses may benefit from increased training in bereavement support.
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In the citing paper
“Miscarriage, stillbirth and neonatal death are intensely painful and traumatic for many parents1 and associated with substantial direct and indirect, psychological and social costs to women, families and society.2”
From Parents’ experiences of care following the loss of a baby at the margins between miscarriage, stillbirth and neonatal death: a UK qualitative study (2020) · cites this paper as [1]
In the citing paper
“The use of sedation or tranquilizers was identified in older literature, although this practice was also identified in a few more recent sources.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [53]
In the citing paper
“Parents’ mental health outcomes related to making meaning/memories were documented in 29 reports,17,25,53,54,58,60,63,64,69,70,76,86,89,98,103,107,110,111,116,119,121,122,127,137–139,148,149,154 and included coping, anxiety, and depression.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [53]
In the citing paper
“Other specific recommendations also found in older literature are no longer practiced (eg, announcing the loss on the ward, suggestion to hold someone else’s newborn).”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [53]
In the citing paper
“One way that parents desire acknowledgment of this unique situation is to have a picture of all their children together and separately of the baby who died.53,188,223”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [53]
In the citing paper
“Our findings confirm a shared theme in the literature on the psychological impact of stillbirth on parents: the grief and devastation are deeply felt but not socially recognized [7,24,27-30].”
From Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis (2012) · cites this paper as [29]
In the citing paper
“Despite these limitations, the dominant themes that emerged from this analysis, including the depth of the parents’ grief surrounding the loss, and the lack of social support or empathy during the grieving process, echo themes found in the emerging U.S. and international data on the experience of stillbirth and confirm their broader validity [27,29,31,32].”
From Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis (2012) · cites this paper as [29]
Citations
Cites
Meta-analysis of Observational Studies in Epidemiology<SUBTITLE>A Proposal for Reporting</SUBTITLE>
Stroup, D. F. (2000) · JAMA · doi:10.1001/jama.283.15.2008 · Cited by 20,623
Gynecologists (1983) · Medical Entomology and Zoology · Cited by 910
Bereavement: Reactions, Consequences, and Care.
Owen, G., Osterweis, M., Solomon, F., & Green, M. (1985) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2071413 · Cited by 497
When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families
Children, E.-O.-L. C. F., Families, T., Field, M. J., & Behrman, R. E. (2003) · Cited by 416
The Mourning Response of Parents to the Death of a Newborn Infant
Kennell, J. H., Slyter, H., & Klaus, M. H. (1970) · New England Journal of Medicine · doi:10.1056/nejm197008132830706 · Cited by 304
Bereavement: Reactions, consequences and care
Schotsmans, P. T. (1985) · Health Policy · doi:10.1016/0168-8510(85)90071-5 · Cited by 207
When Children Die: Improving Palliative and End-of-Life care for Children and their Families
Chambers, T. L. (2003) · Journal of the Royal Society of Medicine · doi:10.1258/jrsm.96.8.419-a · Cited by 157
Grief response of parents to neonatal death and parent participation in deciding care
Benfield, D. G., Leib, S. A., & Vollman, J. H. (1978) · Pediatrics · doi:10.1542/peds.62.2.171 · Cited by 154
Follow-up of Families Who Experience a Perinatal Death
Rowe, J., Clyman, R. I., Green, C., Mikkelsen, C., Haight, J., & Ataide, L. (1978) · PEDIATRICS · doi:10.1542/peds.62.2.166 · Cited by 147
Some questions of identity: Late miscarriage, stillbirth and perinatal loss
Lovell, A. (1983) · Social Science & Medicine · doi:10.1016/0277-9536(83)90264-2 · Cited by 144
Research works printed but not linked: 5
- Kavanaugh KL . Death of an Infant Weighing Less than 500 Grams at Birth: the Parental Experience [dissertation]. University of Illinois at Chicago: Chicago, IL, 1991.
- Lukas ML . Paternal Grief, Mourning, and Adaptation Following Perinatal Loss [dissertation]. Wilmington College: Dover, DE, 1998.
- Sychowski SMP . Life and death: in the all at once. Mother Baby J 1998; 3 (1): 33–39.
- Colsen T . Fathers and Perinatal Loss: their Conscious and Unconscious Experiences [dissertation]. California School of Professional Psychology: San Diego, CA, 2001.
- Wing DG . Grief Following Perinatal Loss and the Impact of Hospital-Based Support Services [dissertation]. Georgia State University: Atlanta, GA, 2002.
Cited by
Sorted by citations
Kelley, M. C., & Trinidad, S. B. (2012) · BMC Pregnancy and Childbirth · doi:10.1186/1471-2393-12-137 · Cited by 164
“and international data on the experience of stillbirth and confirm their broader validity [27,29,31,32].”
BackgroundInfluentialThe effects of social support on maternal anxiety and depression after stillbirth
Cacciatore, J., Schnebly, S. M., & Frøen, J. F. (2008) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2008.00814.x · Cited by 131
Smith, L., Dickens, J., Bender Atik, R., Bevan, C., Fisher, J., & Hinton, L. (2020) · BJOG: An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.16113 · Cited by 119
State of the Science on Perinatal Palliative Care
Wool, C. (2013) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1111/1552-6909.12034 · Cited by 117
Parent’s Perceptions of Health Care Providers Actions Around Child ICU Death
Brooten, D. A., Youngblut, J. M., Seagrave, L., Caicedo, C., Hawthorne, D. M., Hidalgo, I. M., & Roche, R. M. (2012) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909112444301 · Cited by 118
Metadata
- Authors
- Gold, K. J.
- Affiliations
- Michigan Medicine (US)
- Corresponding author
- Gold, K J
- ORCID
- Gold, K J
- Venue
- Journal of Perinatology
- Published
- 2007-03-22
- Volume
- 27
- Issue
- 4
- Pages
- 230-237
- ISSN
- 0743-8346 (ISSN-L)
- 1476-5543
- OpenAlex
- W1974744759
- Cited by
- 219
- References
- 51
- Citations by year
- 2026: 4 · 2025: 4 · 2024: 8 · 2023: 22 · 2022: 10 · 2021: 13 · 2020: 6 · 2019: 13 · 2018: 19 · 2017: 16 · 2016: 20 · 2015: 19 · 2014: 10 · 2013: 8 · 2012: 16
- FWCI
- 1.31
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Perinatology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Robert Wood Johnson Foundation
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- perinatal loss, fetal death, infant death, parental experiences, nurses, physicians, bereavement support, emotional support, internal communication, grief education
- MeSH terms
- Bereavement, Fetal Death, Humans, Infant Mortality, Infant, Newborn, Parents, Professional-Patient Relations, Sudden Infant Death, Patient Satisfaction, Neonatal Nursing
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