Cited by 10Palliative Care and End-of-Life IssuesMobile Health and mHealth ApplicationsPalliative and Oncologic Care

How a Digital Case Management Platform Affects Community-Based Palliative Care of Sub-Saharan African Cancer Patients: Clinician-Users' Perspectives

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Ho, Yun Xian, Morse, Robert S., Lambden, Kaley, Mushi, Beatrice P., Ngoma, Mamsau, Mahuna, Habiba, Ngoma, Twalib, Miesfeldt, Susan·2022·Applied Clinical Informatics

Abstract

Background Symptom control among cancer patients is a Tanzanian public health priority impacted by limited access to palliative care (PC) specialists and resources. Mobile Palliative Care Link (mPCL), a mobile/web application, aims to extend specialist access via shared care with local health workers (LHWs) with the African Palliative care Outcome Scale (POS) adapted for regular, automated symptom assessment as a core feature. Objective The aim of the study is to assess clinicians' attitudes, beliefs, and perceptions regarding mPCL usability and utility with their patients within a government-supported, urban Tanzanian cancer hospital setting. Methods We used a mixed methods approach including surveys, qualitative interviews, and system usage data to assess clinicians' experience with mPCL in a field study where discharged, untreatable cancer patients were randomized to mPCL or phone-contact POS collection. Results All six specialists and 10 LHWs expressed overall satisfaction with mPCL among 49 intervention arm patients. They perceived mPCL as a way to stay connected with patients and support remote symptom control. Timely access to POS responses and medical records were identified as key benefits. Some differences in perceptions of mPCL use and utility were seen between clinician groups; however, both expressed strong interest in continuing app use, recommending it to colleagues, and extending use throughout Tanzania. Primary use was for clinical status communication and care coordination. Pain and other symptom progression were the most frequently reported reasons for provider–patient interactions accounting for 34% (n = 44) and 12% (n = 15) of reasons, respectively. Usage barriers included time required to create a new clinical record, perceived need for response to non-urgent reminders or alerts, and training. necessary for competent use. System-level implementation barriers included variable patient access to smartphones and SIM cards and unreliable Internet access. Conclusion This work demonstrates broad clinician desire for digital health tools to support remote community-based PC among cancer patients, particularly pain management.

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  • A human-centered mobile and web application (mPCL) in Tanzania extended functionality beyond patient-facing use to support coordinated palliative care among patients, caregivers, and local health workers.

    “a human-centered mobile and web application (mPCL) [23] in Tanzania, which extended functionality beyond patient-facing use to support coordinated palliative care among patients, caregivers, and local health workers.”
  • The mPCL project by Ho et al [23] incorporated local health workers in Tanzania to co-design a mobile platform for palliative care, ensuring cultural and contextual relevance in a low-resource setting.

    “Similarly, the mPCL project by Ho et al [23] incorporated local health workers in Tanzania to co-design a mobile platform for palliative care, ensuring cultural and contextual relevance in a low-resource setting.”

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Authors
Ho, Y. X., Morse, R. S., Lambden, K., Mushi, B. P., Ngoma, M., Mahuna, H., Ngoma, T., & Miesfeldt, S.
Affiliations
  • Dimagi (United States) (US)
  • DaVinci Usability, Inc., Lexington, Massachusetts, United States
  • Muhimbili University of Health and Allied Sciences (TZ)
  • Ocean Road Cancer Institute (TZ)
  • Maine Medical Center (US)
Venue
Applied Clinical Informatics
Published
2022-10
Volume
13
Issue
05
Pages
1092-1099
ISSN
1869-0327 (ISSN-L)
OpenAlex
W4309146628
Cited by
10
References
3
Citations by year
2026: 3 · 2025: 2 · 2024: 4 · 2023: 1
FWCI
1.55
Type
journal article
Language
en
Open access
Locations
  • Applied Clinical Informatics (publishedVersion, cc-by-nc-nd)
  • PubMed Central (publishedVersion, cc-by-nc-nd)
  • PubMed (publishedVersion)
Funders
Fogarty International Center (R21TW010190)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords
community-based palliative care, cancer patients, mobile health apps, symptom assessment, clinician perceptions, usability, pain management, implementation barriers, Tanzania
MeSH terms
Humans, Neoplasms, Palliative Care, Specialization, Africa South of the Sahara, Case Management

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