How a Digital Case Management Platform Affects Community-Based Palliative Care of Sub-Saharan African Cancer Patients: Clinician-Users' Perspectives
Open accessAbstract
Background Symptom control among cancer patients is a Tanzanian public health priority impacted by limited access to palliative care (PC) specialists and resources. Mobile Palliative Care Link (mPCL), a mobile/web application, aims to extend specialist access via shared care with local health workers (LHWs) with the African Palliative care Outcome Scale (POS) adapted for regular, automated symptom assessment as a core feature. Objective The aim of the study is to assess clinicians' attitudes, beliefs, and perceptions regarding mPCL usability and utility with their patients within a government-supported, urban Tanzanian cancer hospital setting. Methods We used a mixed methods approach including surveys, qualitative interviews, and system usage data to assess clinicians' experience with mPCL in a field study where discharged, untreatable cancer patients were randomized to mPCL or phone-contact POS collection. Results All six specialists and 10 LHWs expressed overall satisfaction with mPCL among 49 intervention arm patients. They perceived mPCL as a way to stay connected with patients and support remote symptom control. Timely access to POS responses and medical records were identified as key benefits. Some differences in perceptions of mPCL use and utility were seen between clinician groups; however, both expressed strong interest in continuing app use, recommending it to colleagues, and extending use throughout Tanzania. Primary use was for clinical status communication and care coordination. Pain and other symptom progression were the most frequently reported reasons for provider–patient interactions accounting for 34% (n = 44) and 12% (n = 15) of reasons, respectively. Usage barriers included time required to create a new clinical record, perceived need for response to non-urgent reminders or alerts, and training. necessary for competent use. System-level implementation barriers included variable patient access to smartphones and SIM cards and unreliable Internet access. Conclusion This work demonstrates broad clinician desire for digital health tools to support remote community-based PC among cancer patients, particularly pain management.
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A human-centered mobile and web application (mPCL) in Tanzania extended functionality beyond patient-facing use to support coordinated palliative care among patients, caregivers, and local health workers.
“a human-centered mobile and web application (mPCL) [23] in Tanzania, which extended functionality beyond patient-facing use to support coordinated palliative care among patients, caregivers, and local health workers.”
From User-Centered Design for Digital Patient-Navigation Tools in Oncology: Scoping Review (2026) · cites this paper as [23]
The mPCL project by Ho et al [23] incorporated local health workers in Tanzania to co-design a mobile platform for palliative care, ensuring cultural and contextual relevance in a low-resource setting.
“Similarly, the mPCL project by Ho et al [23] incorporated local health workers in Tanzania to co-design a mobile platform for palliative care, ensuring cultural and contextual relevance in a low-resource setting.”
From User-Centered Design for Digital Patient-Navigation Tools in Oncology: Scoping Review (2026) · cites this paper as [23]
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Cited by
Sorted by citations
User-Centered Design for Digital Patient-Navigation Tools in Oncology: Scoping Review
Kheirinejad, S., White, B. M., Kheirkhah Rahimabad, P., Zink, J. A., Hashtarkhani, S., Kumsa, F. A., Rashid, R., Chinthala, L., Brett, C. L., Davis, R. L., et al. (2026) · JMIR Human Factors · doi:10.2196/87686
“As an illustrative scenario, in a pediatric oncology ward in sub-Saharan Africa, co-design workshops with caregivers could reveal the daily burdens of medication access and transportation [23].”
Influential
- Authors
- Ho, Y. X., Morse, R. S., Lambden, K., Mushi, B. P., Ngoma, M., Mahuna, H., Ngoma, T., & Miesfeldt, S.
- Affiliations
- Dimagi (United States) (US)
- DaVinci Usability, Inc., Lexington, Massachusetts, United States
- Muhimbili University of Health and Allied Sciences (TZ)
- Ocean Road Cancer Institute (TZ)
- Maine Medical Center (US)
- ORCID
- Venue
- Applied Clinical Informatics
- Publisher
- Georg Thieme Verlag KG
- Published
- 2022-10
- Volume
- 13
- Issue
- 05
- Pages
- 1092-1099
- ISSN
- 1869-0327 (ISSN-L)
- PMC
- PMC9668489
- OpenAlex
- W4309146628
- Cited by
- 10
- References
- 3
- Citations by year
- 2026: 3 · 2025: 2 · 2024: 4 · 2023: 1
- FWCI
- 1.55
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Applied Clinical Informatics (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Funders
- Fogarty International Center (R21TW010190)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- community-based palliative care, cancer patients, mobile health apps, symptom assessment, clinician perceptions, usability, pain management, implementation barriers, Tanzania
- MeSH terms
- Humans, Neoplasms, Palliative Care, Specialization, Africa South of the Sahara, Case Management
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