Cited by 391HIV/AIDS Research and InterventionsMedication Adherence and ComplianceAdolescent and Pediatric Healthcare

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Stigma and social barriers to medication adherence with urban youth living with HIV

Rao, D., Kekwaletswe, T. C., Hosek, S., Martinez, J., Rodriguez, F.·2007·AIDS Care

DOI 10.1080/09540120600652303

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Abstract

Youth adherence to highly active anti-retroviral therapy (HAART) is poor, and little research exists that identifies the reasons youth have difficulty adhering to medications. Given that complete adherence is necessary for favourable health outcomes, it is essential to examine the obstacles youth face in adhering to HAART. The present investigation sought to identify these barriers and to systematically examine the experiences and attitudes youth have towards medications. Twenty-five adolescents and young adults presenting to a public primary care facility for treatment of HIV infection were asked to participate in focus groups which explored their attitudes and experiences around medication adherence. Participants provided richly detailed descriptions of the challenges of managing HIV stigma and their efforts to hide their status from friends, family, doctors, and even themselves. Fifty percent of respondents indicated that they skipped doses because they feared family or friends would discover their status. These results suggest that HIV stigma impacts treatment for youth on several levels, from the accuracy of communication with medical providers to medication adherence, subsequent health outcomes, and the emergence of treatment resistant strains.

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Authors: Rao, D., Kekwaletswe, T. C., Hosek, S., Martinez, J., & Rodriguez, F.
Affiliations: Northwestern University (US)
Rosalind Franklin University of Medicine and Science (US)
John H. Stroger, Jr. Hospital of Cook County (US)
Corresponding author: Rao, D.
ORCID: Rao, D.
Hosek, S.
Martinez, J.
Venue: AIDS Care
Publisher: Informa UK Limited
Published: 2007-01
Volume: 19
Issue: 1
Pages: 28-33
ISSN: 0954-0121 (ISSN-L)
1360-0451
DOI: 10.1080/09540120600652303
OpenAlex: W2076236055
Cited by: 391
References: 15
Citations by year: 2026: 12 · 2025: 6 · 2024: 13 · 2023: 17 · 2022: 14 · 2021: 17 · 2020: 12 · 2019: 16 · 2018: 27 · 2017: 31 · 2016: 33 · 2015: 37 · 2014: 28 · 2013: 28 · 2012: 26
FWCI: 8.00
Type: journal article
Language: en
Open access: closed
Locations: AIDS Care (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Infectious Diseases › HIV/AIDS Research and Interventions
Health Sciences › Medicine › Family Practice › Medication Adherence and Compliance
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Keywords: HIV stigma, medication adherence, adolescents and young adults, HIV, highly active antiretroviral therapy, urban youth, concealment of HIV status, dose skipping, attitudes toward medication, social barriers, primary care
MeSH terms: Adolescent, Adult, Attitude to Health, Female, Humans, Male, Patient Compliance, Self Disclosure, Social Isolation, Stereotyping, HIV Infections, Antiretroviral Therapy, Highly Active

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Stigma and social barriers to medication adherence with urban youth living with HIV

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