Support to Family Carers of Patients with Frontotemporal Dementia
Abstract
OBJECTIVES: To examine the provision of support to patients with frontotemporal dementia (FTD) and their family carers compared with patients with early onset Alzheimer's dementia (AD) and their carers, and the carers' satisfaction with the support. METHOD: Data came from 60 dyads of patients with dementia and their principal family carers, 23 subjects with frontotemporal dementia and their 23 carers, and 37 subjects with early onset Alzheimer's disease and their 37 carers. RESULTS: Patients with a frontotemporal dementia diagnosis were significantly more frequently offered stays in nursing homes (p = 0.04). Carers of patients with frontotemporal dementia were significantly less satisfied with the provision of information about the disease compared with carers of early onset Alzheimer's disease patients (p = 0.05) and were significantly less satisfied with counseling and follow-up advice (p = 0.05). CONCLUSION: Changes of personality in patients with frontotemporal dementia may be the major reason why they were offered more stays in institutions. These family carers tend to be less satisfied with the provision of support they received from the specialist health service compared to carers of Alzheimer's disease patients, and are in need of more, and other forms of support.
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Frontotemporal dementia is significantly associated with caregiver burden and psychological morbidity compared with dementia of other aetiologies.
“Previous literature has reported that frontotemporal dementia is significantly associated with caregiver burden and psychological morbidity compared with dementia of other aetiologies [122,123,124].”
From Relationship of Psychological Flexibility and Mindfulness to Caregiver Burden, and Depressive and Anxiety Symptoms in Caregivers of People with Dementia (2023) · cites this paper as [124]
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References 24 · Cited by 61
- Authors
- Rosness, T. A., Haugen, P. K., & Engedal, K.
- Affiliations
- Oslo University Hospital (NO)
- Sykehuset i Vestfold (NO)
- Corresponding author
- Rosness, Tor Atle
- ORCID
- Engedal, Knut
- Venue
- Aging & Mental Health
- Publisher
- Informa UK Limited
- Published
- 2008-07
- Volume
- 12
- Issue
- 4
- Pages
- 462-466
- ISSN
- 1360-7863 (ISSN-L)
- 1364-6915
- OpenAlex
- W1997082112
- Cited by
- 61
- References
- 24
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 2 · 2023: 6 · 2022: 5 · 2021: 1 · 2020: 4 · 2019: 2 · 2018: 2 · 2017: 3 · 2016: 7 · 2015: 3 · 2014: 3 · 2013: 5 · 2012: 4
- FWCI
- 2.34
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Aging & Mental Health (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- frontotemporal dementia, family caregivers, caregiver support, early-onset Alzheimer's disease, caregiver satisfaction, nursing home admission, personality change, information provision, counseling, specialist health services
- MeSH terms
- Adult, Alzheimer Disease, Dementia, Female, Humans, Male, Middle Aged, Norway, Surveys and Questionnaires, Social Support, Caregivers
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