Identification of Research Priorities for Inflammatory Bowel Disease Nursing in Europe: a Nurses-European Crohn’s and Colitis Organisation Delphi Survey
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BACKGROUND: Robust research evidence should inform clinical practice of inflammatory bowel disease [IBD] specialist nurses, but such research is currently very limited. With no current agreement on research priorities for IBD nursing, this survey aimed to establish topics to guide future IBD nursing research across Europe. METHODS: An online modified Delphi survey with nurse and allied health professional members of the Nurses European Crohn's and Colitis Organisation [n = 303] was conducted. In Round One, participants proposed topics for research. In Round Two, research topics were rated on a 1-9 scale and subsequently synthesised to create composite research questions. In Round Three, participants selected their top five research questions, rating these on a 1-5 scale. RESULTS: Representing 13 European countries, 88, 90 and 58 non-medical professionals, predominantly nurses, responded to Rounds One, Two and Three, respectively. In Round One, 173 potential research topics were suggested. In Rounds Two And Three, responders voted for and prioritised 125 and 44 questions, respectively. Round Three votes were weighted [rank of 1 = score of 5], reflecting rank order. The top five research priorities were: interventions to improve self-management of IBD; interventions for symptoms of frequency, urgency and incontinence; the role of the IBD nurse in improving patient outcomes and quality of life; interventions to improve IBD fatigue; and care pathways to optimise clinical outcomes and patient satisfaction. CONCLUSIONS: The prioritised list of topics gives clear direction for future IBD nursing research. Conducting this research has potential to improve clinical practice and patient-reported outcomes.
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Identification of patient education interventions to improve self-management was rated as the top priority for IBD nursing and allied health professional research in a recent Delphi survey.
“Identification of patient education interventions to improve self-management was rated as the top priority for IBD nursing and allied health professional research 43 in a recent Delphi survey.”
From A Systematic review of self-management interventions for children and adolescents with inflammatory bowel disease (2019) · cites this paper as [43]
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- Authors
- Dibley, L., Bager, P., Czuber-Dochan, W., Farrell, D., Jelsness-Jørgensen, L.-P., Kemp, K., & Norton, C.
- Affiliations
- King's College London (GB)
- Aarhus University Hospital (DK)
- Munster Technological University (IE)
- Manchester Royal Infirmary (GB)
- Venue
- Journal of Crohn's and Colitis
- Publisher
- Oxford University Press (OUP)
- Published
- 2016-09-23
- Volume
- 11
- Issue
- 3
- Pages
- jjw164
- ISSN
- 1873-9946 (ISSN-L)
- 1876-4479
- OpenAlex
- W2522316208
- Cited by
- 40
- References
- 0
- Citations by year
- 2026: 2 · 2025: 4 · 2024: 3 · 2023: 6 · 2022: 3 · 2021: 4 · 2020: 5 · 2019: 5 · 2018: 3 · 2017: 5
- FWCI
- 12.39
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Crohn s and Colitis (publishedVersion)
- PubMed (publishedVersion)
- Greenwich Academic Literature Archive (University of Greenwich) (acceptedVersion)
- Research Portal (King's College London) (submittedVersion, cc-by-nc)
- Scopus (Elsevier) (submittedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Delphi Technique in Research
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Health Professions › General Health Professions › Health Sciences Research and Education
- Keywords
- inflammatory bowel disease
- MeSH terms
- Adult, Colitis, Ulcerative, Crohn Disease, Delphi Technique, Europe, Fatigue, Fecal Incontinence, Female, Humans, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Self Care, Nursing Research, Patient Satisfaction, Critical Pathways, Nurse's Role
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