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Family Coping with Pediatric Leukemia: Ten Years After Treatment
Abstract
As part of a longitudinal study of family coping with pediatric leukemia, 28 former patients (16 male; 12 female; M age = 19.1 years) and their parents (23 mothers; 12 fathers) participated in a follow-up study at 10 years posttreatment. Measures included the Current Adjustment Rating Scale, the Brief Symptom Inventory, the Ways of Coping Scale, the Family Coping Scale, and a semistructured interview. Long-term survivors and their parents continued to be well-adjusted to life posttreatment. Coping and perceived adjustment in long-term survivors were positively related to socioeconomic status and mother's coping and negatively related to academic problems. A strong bidirectional relationship was found between survivors' and mother's adjustment. Coping strategies were variable and not significantly correlated with coping adequacy or adjustment.
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“Some evidence suggests that parents’ (particularly mothers’) QOL is closely associated with their child’s QOL [5,14,15,16].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [14]
In the citing paper
“The impact of poor parent coping may extend for years, with evidence that even 10 to 15 years post-diagnosis, coping in child cancer survivors may still be related to their mother’s coping [23].”
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Items 101–200 of 201
Modest, A. M., & Recklitis, C. J. (2012) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jss050 · Cited by 31
Risk for Psychosocial Problems in Pediatric Cancer: Impact of Socioeconomics
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“…and low socioeconomic status are PSYCHOSOCIAL RISK IN PEDIATRIC CANCER 233 also associated with increased mortality and decreased psychosocial adjustment in pediatric oncology patients (Kupst et al., 1995; Son, Kim, Oh, & Kawachi, 2011; Syse, Lyngstad, & Kravdal, 2011; Weinick & Krauss, 2000).”
BackgroundZebrack, B. (2009) · Journal of Cancer Survivorship · doi:10.1007/s11764-009-0087-0 · Cited by 32
“[11] argued that “despite periods of intense stress, most children and families adapt well,” although “a significant minority” of survivors have problems (p.”
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“Heightened levels of depression [6,7], anxiety [8–11], stress [10,12], a decreased quality of life [13], marital distress [14,15] and post-traumatic stress symptoms (e.”
BackgroundParent's Perspectives on How They Cope With the Impact on Their Family of a Child With Heart Disease
Jackson, A. C., Higgins, R. O., Frydenberg, E., et al. (2018) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2018.01.020 · Cited by 30
Mothers of Survivors of Childhood Cancer
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“Kupst et al. (1995) reported that the child’s adjustment was related to the parents’ adjustment, and Kazak and Barakat (1997) reported that the parents’ perception of their surviving child’s quality of life was significantly and positively related to their own.”
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“Certain family environment factors, especially parental supportiveness and parental coping, have been found to influence psychological adjustment of children with chronic diseases (Brown et al., 1993; Hardy et al., 1993; Kupst et al., 1995).”
BackgroundFathers of Children With Cancer: A Descriptive Synthesis of the Literature
Jones, B. L., Pelletier, W., Decker, C. L., Barczyk, A. N., & Dungan, S. S. (2010) · Social Work in Health Care · doi:10.1080/00981380903539723 · Cited by 29
“New and Emerging Themes PTSS/PTSD Levels of psychological distress in parents of children with cancer have been measured in several longitudinal studies (Best et al., 2001; Kupst et al., 1995; Wijnberg-Williams, Kamps, 2006).”
BackgroundDeath, Dying and Bereavement: A Hong Kong Chinese Experience
Chan, C., & Chow, A. Y. M. (2006) · Project Muse (Johns Hopkins University) · Cited by 29
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“Indeed, some studies showed that coping strategies and adjustment of children were related to those of their parents and that parents can promote certain coping strategies in their child with cancer (e.g., Sanger et al., 1991; Kupst et al., 1995; Hildenbrand et al., 2014).”
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“[9] These studies can be divided into three categories: the first one focuses on the outcome of parental adjustment without describing psychological factors,[10,11] The second type of studies focuses on coping strategies used by the parents, but they have not emphasized the outcome aspects.”
BackgroundPsychological Aspects of Long-Term Survivorship
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“Moreover, parents’ adjustment was found to be associated with the children’s level of adaptation (Kupst et al., 1995; Mulhern et al., 1992; Speechley & Nho, 1992).”
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“Coping remained relatively stable over time for a large subset of survivors (40–85%), which is consistent with research identifying stable coping among survivors across a 10-year period from diagnosis to long-term survivorship (Kupst et al., 1995).”
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“By comparison, younger age at diagnosis may lead to lower educational attainment,(15) higher unemployment,(17) greater disability,(18) lower marriage rates,(11) and more care-related health needs.(1,19) Young children may have difficulty comprehending the immediate and long-term gravity of their diagnosis(20) and may…”
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“Psychologists and mental health professionals in paediatric psycho-oncology teams are well placed to support, validate, and encourage mothers to prioritize their psychological health and emotional well-being as a key means of protecting their child (see Kupst et al., 1995).”
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“The experiences of childhood cancer survivors and their parents also led to the new field of survivorship research, focusing on the evaluation of quality of life and the psychosocial impact, not only on patients but on the entire family (Barakat et al., 1997; Colby-Graham & Chordas, 2003; Farkas-Patenaude & Last, 2001…”
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Choi, K., & Kim, J. Y. (2016) · Research on Social Work Practice · doi:10.1177/1049731516637121 · Cited by 11
“Some also find a sense of spiritual completeness regardless of their religiosity (Eiser & Havermans, 1994; Kupst et al., 1995).”
BackgroundSocio-Environmental Factors Associated With Lone Parenting Chronically Ill Children
Wiener, L. S., Pao, M., Battles, H. B., Zadeh, S., Patenaude, A. F., Madan‐Swain, A., Friebert, S. E., Elkin, D., Kupst, M. J., & The Lone-Parent Study Group (2013) · Children s Health Care · doi:10.1080/02739615.2013.816612 · Cited by 10
“Similarly, children with a chronic illness and their siblings demonstrate poorer overall adjustment in lower socioeconomic status families (Kupst et al., 1995), and poorer psychological and physical health in caregivers of children with a chronic illness is also related to lower income (Raina et…”
BackgroundSelf-citationIllness-related parental stress and quality of life in children with kidney diseases
Bruyne, E. D., Willem, L., Hoeck, K. V., et al. (2023) · Pediatric Nephrology · doi:10.1007/s00467-023-05911-3 · Cited by 9
“This finding is consistent with previous studies in pediatric oncology, indicating that distress in parents is initially high at the time of diagnosis with stress decreasing over time, even without intervention [24, 43].”
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Rourke, M. T., & Kazak, A. E. (2005) · Springer eBooks · doi:10.1007/3-540-26498-1_19 · Cited by 8
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Tifferet, S., Manor, O., Elizur, Y., Friedman, O., & Constantini, S. (2010) · Children s Health Care · doi:10.1080/02739611003679840 · Cited by 3
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Metadata
- Authors
- Kupst, M. J., Natta, M. B., Richardson, C. C., Schulman, J. L., Lavigne, J. V., & Das, L.
- Affiliations
- Medical College of Wisconsin (US)
- Loyola University Chicago (US)
- Northwestern University (US)
- Corresponding author
- Kupst, Mary Jo
- ORCID
- Lavigne, John V.
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 1995
- Volume
- 20
- Issue
- 5
- Pages
- 601-617
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W2172212536
- Cited by
- 200
- References
- 0
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 2 · 2022: 3 · 2021: 4 · 2020: 2 · 2019: 4 · 2018: 2 · 2017: 7 · 2016: 3 · 2015: 10 · 2014: 5 · 2013: 12 · 2012: 10
- FWCI
- 5.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- HighWire Press Open Archive (submittedVersion)
- Funders
- National Cancer Institute (CA19344)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
- Keywords
- pediatric leukemia, long-term survivors, family coping, parental coping, child adjustment, coping strategies, socioeconomic status, academic difficulties, childhood cancer survivors
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Child, Female, Follow-Up Studies, Humans, Leukemia, Male, Parent-Child Relations, Parents, Personality Assessment, Personality Development, Risk Factors, Sick Role
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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What counts as a claim ›How we measure confidence ›How we check this ›
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