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Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap
Abstract
OBJECTIVES: To present a conceptual model of disablement adapted from the WHO model and to conduct a pilot study with a measurement tool (LIFE-H) of the concepts of life habits and handicap situations. DESIGN: Content validity and test-retest reliability study. SETTING: General community. PARTICIPANTS: A panel of 12 experts of rehabilitation for the process of content validity and 49 individuals with spinal cord disorders (adults and children) for the reliability study. OUTCOMES MEASURES: a person's life habits (activities of daily living and social roles). RESULTS: The LIFE-H questionnaire was designed to assess the handicap situations observed in daily life of individuals with disability. The experts concluded that the LIFE-H items covered most of a person's life habits (ADL and social roles) and that it could be used to determine the appearance of handicap situations. The LIFE-H total score showed a good level of reliability for the children and the adult samples (ICC = 0.73 and 0.74, respectively). Taken individually, a majority of life habit categories have shown a moderate to high reliability level (ICC > or = 0.50) while a few life habit categories such as the interpersonal relationship or nutrition showed a lower reliability level. CONCLUSION: The development of LIFE-H allows fulfillment of the need to determine the disruptions in life habits of persons with disabilities.
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Cited by
Levasseur, M., Richard, L., Gauvin, L., & Raymond, É. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2010.09.041 · Cited by 992
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Law, M. (2002) · American Journal of Occupational Therapy · doi:10.5014/ajot.56.6.640 · Cited by 940
ÜSTÜN, T. B., CHATTERJI, S., BICKENBACH, J., KOSTANJSEK, N., & SCHNEIDER, M. (2003) · Disability and Rehabilitation · doi:10.1080/0963828031000137063 · Cited by 766
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Community participation of people with an intellectual disability: a review of empirical findings
Verdonschot, M. M. L., De Witte, L. P., Reichrath, E., Buntinx, W. H. E., & Curfs, L. M. G. (2009) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2008.01144.x · Cited by 437
Metadata
- Authors
- FOUGEYROLLAS, P., NOREAU, L., BERGERON, H., CLOUTIER, R., DION, S.-A., & St-MICHEL, G.
- Venue
- International Journal of Rehabilitation Research
- Published
- 1998-06
- Volume
- 21
- Issue
- 2
- Pages
- 127-142
- ISSN
- 0342-5282 (ISSN-L)
- OpenAlex
- W2049537863
- Cited by
- 393
- References
- 0
- FWCI
- 10.77
- Type
- journal article
- Language
- en
- Open access
- closed
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- FOUGEYROLLAS, P., NOREAU, L., BERGERON, H., CLOUTIER, R., DION, S.-A., & St-MICHEL, G. (1998). Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap. International Journal of Rehabilitation Research. https://doi.org/10.1097/00004356-199806000-00002
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