Management of Children with Autism Spectrum Disorder in the Anesthesia and Radiographic Context
Open accessAbstract
Objective: As a primary objective, this study purports to develop guidelines to better care for children with autism spectrum disorder (ASD), particularly regarding these children's preparation for anesthesia and radiologic procedures. Methods: Using a Delphi method with an online distribution of questionnaire, guidelines for caring for children with ASD were created. Twenty-one participants were included in the expert panel. These participants were working with children with ASD in several anesthesia and radiology departments in Sweden. A list of items was created from a previous survey and the literature. In the first round, the items with <60% agreement were discarded. Items were merged, and a new list was created. Two more similar rounds were performed. In the last 2 rounds, 21 participants responded, and 80% agreement was considered to be consensus. Results: The final guidelines consisted of 14 items and a checklist of 16 factors. The 5 areas covered by the items and the checklist were as follows: planning involving parents/guardians, features in the environment, and use of time, communication, and the health care professionals. The organization was important in making it possible for the health care professional to care for the individual child according to the child's needs. It was important to involve the parents/guardians to obtain knowledge about the functioning of the child. Conclusion: A caring encounter involving a child with ASD in the anesthesia and radiology contexts requires advance planning, catered specifically to the individual needs of each child. To accomplish this, general knowledge regarding ASD and ASD's particular manifestation in the child entrusted to their care is required from the health care workers. The organization needs to have structures in place to facilitate this process.
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Berglund et al. developed 14 specific practice guidelines for preparing children with autism, including elements of planning (involving parents/guardians), features of the environment, use of time, communication and requisite knowledge and continuity of healthcare practitioners.
“These comprise 14 specific guidelines which include elements of planning (involving parents/guardians), features of the environment, use of time, communication and the requisite knowledge and continuity of healthcare practitioners (HCPs) (Berglund et al., 2017).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Berglund et al., 2017
A range of studies indicate that HCPs working with children with autism are inadequately prepared in terms of their requisite knowledge to sufficiently support children and families.
“A range of studies also indicate that HCPs working with children with autism are inadequately prepared in terms of their requisite knowledge to sufficiently support children and families (Berglund et al., 2017; Broder- Fingert et al., 2014; Golnik et al., 2009).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Berglund et al., 2017
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Parents’ Experiences of Caring for a Child With Autism Spectrum Disorder
DePape, A.-M., & Lindsay, S. (2015) · Qualitative Health Research · doi:10.1177/1049732314552455 · Cited by 328 · see citing works
Parent and Provider Perspectives on Procedural Care for Children with Autism Spectrum Disorders
Davignon, M. N., Friedlaender, E., Cronholm, P. F., Paciotti, B., & Levy, S. E. (2014) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000036 · Cited by 66 · see citing works
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- [11]11. Björkman B, Gimbler Berglund I, Enskär K, et al. Peri-radiographic guidelines for children with autism spectrum disorder: A nationwide survey in Sweden. Child: Care, Health & Development. 2017;43: 31-36 http://dx.doi.org/10.1111/cch.12427 · DOI
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Boshoff, K., Bowen‐Salter, H., Gibbs, D., Phillips, R. L., Porter, L., & Wiles, L. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13369 · Cited by 35 · see citing works
- Authors
- Berglund, I. G., Björkman, B., Enskär, K., Faresjö, M., & Huus, K.
- Affiliations
- Jönköping University (SE)
- Corresponding author
- Berglund, Ingalill Gimbler
- Enskär, Karin
- Huus, Karina
- Venue
- Journal of Developmental & Behavioral Pediatrics
- Published
- 2017-04
- Volume
- 38
- Issue
- 3
- Pages
- 187-196
- ISSN
- 0196-206X (ISSN-L)
- OpenAlex
- W2598458554
- Cited by
- 21
- References
- 2
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 3 · 2023: 2 · 2022: 2 · 2021: 6 · 2020: 1 · 2019: 1 · 2018: 2
- FWCI
- 0.63
- Type
- journal article
- Language
- en
- Open access
- green
- urn.kb.se
- Licence
- other-oa
- Locations
- Journal of Developmental & Behavioral Pediatrics (publishedVersion)
- PubMed (publishedVersion)
- Diva portal (Dalarna University Library) (submittedVersion, other-oa)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- autism spectrum disorder, pediatric anesthesia, pediatric radiology, preoperative preparation, Delphi consensus, parental involvement, forward planning, communication with children, healthcare organizations
- MeSH terms
- Autism Spectrum Disorder, Anesthesia, Child, Delphi Technique, Diagnostic Imaging, Humans, Surgical Procedures, Operative, Sweden, Practice Guidelines as Topic
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