Indirect estimation of race ethnicity for survey respondents who do not report race/ethnicity
Abstract
Background: Researchers are increasingly interested in measuring race/ethnicity, but some survey respondents skip race/ethnicity items. Objectives: The main objectives of this study were to investigate the extent to which racial/ethnic groups differ in skipping race/ethnicity survey items, the degree to which this reflects reluctance to disclose race/ethnicity, and the utility of imputing missing race/ethnicity. Research Design: We applied a previously developed method for imputing race/ethnicity from administrative data (Medicare Bayesian Improved Surname and Geocoding 2.0) to data from a national survey where race/ethnicity was usually self-reported, but was sometimes missing. A linear mixed-effects regression model predicted the probability of self-reporting race/ethnicity from imputed racial/ethnic probabilities. Subjects: In total, 508,497 Medicare beneficiaries responding to the 2013–2014 Medicare Consumer Assessment of Healthcare Providers and Systems surveys were included in this study. Measures: Self-reported race/ethnicity and estimated racial/ethnic probabilities. Results: Black beneficiaries were most likely to not self-report their race/ethnicity (6.6%), followed by Hispanic (4.7%) and Asian/Pacific Islander (4.7%) beneficiaries. Non-Hispanic whites were the least likely to skip these items (3.2%). The 3.7% overall rate of missingness is similar to adjacent demographic items. General patterns of item missingness rather than a specific reluctance to disclose race/ethnicity appears to explain the elevated rate of missing race/ethnicity among Asian/Pacific Islander and Hispanic beneficiaries and most but not all among Black beneficiaries. Adding imputed cases to the data set did not substantially alter the estimated overall racial/ethnic distribution, but it did modestly increase sample size and statistical power. Conclusions: It may be worthwhile to impute race/ethnicity when this information is unavailable in survey data sets due to item nonresponse, especially when missingness is high.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The most widely researched imputation method was Bayesian Improved Surname Geocoding (BISG).
“The most widely researched imputation method was Bayesian Improved Surname Geocoding (BISG).22,45,46,50,65”
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [46]
Several studies looked at the use of imputation to increase the completeness of datasets and avoid casewise deletion.
“Several studies looked at the use of imputation, also referred to as indirect estimation, to increase the completeness of datasets and avoid casewise deletion.14,22,30,45,46,50,61,65,67–70”
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [46]
Dembosky et al found that BISG did not substantially alter the estimated overall racial/ethnic distribution, but it did modestly increase sample size and statistical power.
“In their study on the use of BISG, Dembosky et al46 found that it “did not substantially alter the estimated overall racial/ethnic distribution, but it did modestly increase sample size and statistical power.””
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [46]
Ten of these (66%) identified that the incomplete data led to validity issues, most commonly that these data were not missing at random and had the potential to introduce bias.
“Ten of these (66%) identified that the incomplete data led to validity issues, most commonly that these data were not missing at random and had the potential to introduced bias.12,34,43–50”
From The quality of social determinants data in the electronic health record: a systematic review (2021) · cites this paper as [46]
Cites
Physical Activity for Cognitive and Mental Health in Youth: A Systematic Review of Mechanisms
Lubans, D., Richards, J., Hillman, C., Faulkner, G., Beauchamp, M., Nilsson, M., Kelly, P., Smith, J., Raine, L., & Biddle, S. (2016) · Pediatrics · doi:10.1542/peds.2016-1642 · Cited by 1,548 · see citing works
Racial and Ethnic Disparities in Mental Health Care for Children and Young Adults: A National Study
Marrast, L., Himmelstein, D. U., & Woolhandler, S. (2016) · International Journal of Health Services · doi:10.1177/0020731416662736 · Cited by 257 · see citing works
Elliott, M. N., Morrison, P. A., Fremont, A., McCaffrey, D. F., Pantoja, P., & Lurie, N. (2009) · Health Services and Outcomes Research Methodology · doi:10.1007/s10742-009-0047-1 · Cited by 224 · see citing works
Self-citation
Flagged first, then by citations
Cited by
Sorted by citations
The quality of social determinants data in the electronic health record: a systematic review
Cook, L. A., Sachs, J., & Weiskopf, N. G. (2021) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocab199 · Cited by 153 · see citing works
Assessing Algorithmic Fairness with Unobserved Protected Class Using Data Combination
Kallus, N., Mao, X., & Zhou, A. (2019) · arXiv · doi:10.48550/arxiv.1906.00285 · Cited by 28 · see citing works
- Authors
- Dembosky, J. W., Haviland, A. M., Haas, A., Hambarsoomian, K., Weech-Maldonado, R., Wilson-Frederick, S. M., Gaillot, S., & Elliott, M. N.
- Affiliations
- RAND Corporation (US)
- University of Alabama at Birmingham (US)
- Centers for Medicare & Medicaid Services, Office of Minority Health
- Centers for Medicare and Medicaid Services (US)
- Corresponding author
- Dembosky, Jacob W.
- Haviland, Amelia M.
- Haas, Ann
- Venue
- Medical Care
- Published
- 2019-05
- Volume
- 57
- Issue
- 5
- Pages
- e28-e33
- ISSN
- 0025-7079 (ISSN-L)
- OpenAlex
- W2905214067
- Cited by
- 45
- References
- 3
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 12 · 2023: 11 · 2022: 9 · 2021: 5 · 2020: 1 · 2019: 2
- FWCI
- 4.54
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Medical Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Physical Sciences › Mathematics › Statistics and Probability › Census and Population Estimation
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Keywords
- Medicare beneficiaries
- MeSH terms
- Aged, Bayes Theorem, Ethnicity, Female, Forms and Records Control, Medicare, Humans, Male, Surveys and Questionnaires, United States, Self Report
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review