The Experiences and Care Preferences of People With Diabetes at the End of Life: A Qualitative Study
Abstract
The aims of the study were to explore the past and current diabetes management experiences of people with diabetes at the end of life and identify their preferences for how they want their diabetes managed at the end of life. Fourteen semistructured interviews were conducted with people with diabetes receiving palliative care in a regional city in Victoria, Australia. The interviews were audio recorded, transcribed, and analyzed using framework analysis. Five key themes were identified from the data: living with diabetes, sometimes they “bugger it up,” it is a complicated subject, when I am very ill, and plans for the very end. The findings suggest that health professionals should continue monitoring blood glucose levels when a person has a life-limiting illness, listen to the views of the person with diabetes about his/her diabetes management, and identify and acknowledge the patient’s diabetes management preferences when he/she is very ill.
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Research shows that people with diabetes want to discuss end-of-life care plans with their health care professional.
“Research shows that people with diabetes want to discuss end-of-life care plans with their health care professional (158).”
From 13. Older Adults: Standards of Care in Diabetes—2025 (2025) · cites this paper as [158]
Research shows that people with diabetes want to discuss end-of-life care plans with their health care professional.
“Research shows that people with diabetes want to discuss end-of-life care plans with their health care professional (179).”
From 13. Older Adults: Standards of Care in Diabetes—2026 (2026) · cites this paper as [179]
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13. Older Adults: Standards of Care in Diabetes—2025
American Diabetes Association Professional Practice Committee, ElSayed, N. A., McCoy, R. G., Aleppo, G., Balapattabi, K., Beverly, E. A., Briggs Early, K., Bruemmer, D., Echouffo-Tcheugui, J. B., Ekhlaspour, L., et al. (2025) · Diabetes Care · doi:10.2337/dc25-s013 · Cited by 209 · see citing works
13. Older Adults: Standards of Care in Diabetes—2026
American Diabetes Association Professional Practice Committee for Diabetes*, Bajaj, M., McCoy, R. G., Balapattabi, K., Bannuru, R. R., Bellini, N. J., Bennett, A. K., Beverly, E. A., Briggs Early, K., ChallaSivaKanaka, S., et al. (2026) · Diabetes Care · doi:10.2337/dc26-s013 · Cited by 87 · see citing works
- Authors
- Savage, S., Duggan, N., Dunning, T., & Martin, P.
- Affiliations
- Barwon Health (AU)
- Corresponding author
- Savage, Sally
- Venue
- Journal of Hospice & Palliative Nursing
- Published
- 2012-06
- Volume
- 14
- Issue
- 4
- Pages
- 293-302
- ISSN
- 1522-2179 (ISSN-L)
- OpenAlex
- W2334310262
- Cited by
- 21
- References
- 0
- Citations by year
- 2025: 2 · 2024: 2 · 2021: 1 · 2020: 1 · 2018: 2 · 2017: 6 · 2016: 2 · 2015: 1 · 2014: 2 · 2012: 2
- FWCI
- 1.55
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Hospice and Palliative Nursing (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Keywords
- diabetes mellitus, end of life, palliative care, diabetes management, patient preferences, blood glucose monitoring, life-limiting illness, patient experience, patient-centered care
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