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Being epileptic: coming to terms with stigma
Open accessAbstract
Most commentators on the stigma associated with epilepsy have assumed that the psycho‐social distress sufferers experience derives wholly or largely from the discriminatory attitudes and behaviour of normal people. This ‘orthodox viewpoint’ is assessed and found to be lacking in empirical support. A study of the impact of epilepsy upon the lives of sufferers is reported, special attention being paid to coping strategies developed in the family and at work. A distinction between ‘enacted’ and ‘felt’ stigma is introduced and utilized in the generation of a new model of people's responses to ‘being epileptic’ which appears to have more explanatory power than the orthodox viewpoint.
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Cited by
Stigma, Mental Health, and Resilience in an Online Sample of the US Transgender Population
Bockting, W. O., Miner, M. H., Swinburne Romine, R. E., Hamilton, A., & Coleman, E. (2013) · American Journal of Public Health · doi:10.2105/ajph.2013.301241 · Cited by 1,540
Impact of HIV‐related stigma on treatment adherence: systematic review and meta‐synthesis
Katz, I. T., Ryu, A. E., Onuegbu, A. G., Psaros, C., Weiser, S. D., Bangsberg, D. R., & Tsai, A. C. (2013) · Journal of the International AIDS Society · doi:10.7448/ias.16.3.18640 · Cited by 1,126
Quality of life of people with epilepsy: a European study
Baker, G. A., Jacoby, A., Buck, D., Stalgis, C., & Monnet, D. (1997) · Epilepsia · doi:10.1111/j.1528-1157.1997.tb01128.x · Cited by 847
Ragins, B. R. (2008) · Academy of Management Review · doi:10.5465/amr.2008.27752724 · Cited by 666
Scambler, G. (2009) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2009.01161.x · Cited by 658
Self-citation
Metadata
- Authors
- Scambler, G., & Hopkins, A.
- Venue
- Sociology of Health & Illness
- Publisher
- Wiley
- Published
- 1986-03
- Volume
- 8
- Issue
- 1
- Pages
- 26-43
- ISSN
- 0141-9889 (ISSN-L)
- 1467-9566
- OpenAlex
- W2038056968
- Cited by
- 778
- References
- 0
- FWCI
- 1.71
- Type
- journal article
- Language
- en
- Open access
- bronze
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.