Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies

Shilling, Val, Morris, Christopher, Thompson‐Coon, Jo, Ukoumunne, Obioha, Rogers, Morwenna, Logan, Stuart·2013·Developmental Medicine & Child Neurology

Cited by (246)

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    Ellen Andvig, B. Ekelund, L. U. Kobro, R. Bongaardt · 2022 · Nordisk välfärdsforskning | Nordic Welfare Research
  5. The relationship of sensory processing of children with developmental dysphasia with burnout and self-esteem of parents
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  8. Family Bonds that Support Coping with Chronic Childhood Illness in the State of Paraíba, Brazil
    Maria Elizabete de Amorim Silva, Isabelle Pimentel Gomes, Vanessa Medeiros da Nóbrega, Amanda Narciso Machado, Elenice Maria Cecchetti Vaz, Neusa Collet · 2016 · International Archives of Medicine
  9. A Longitudinal Case Study of the Quality of Life Trajectory: A Mother of Multiple Children with Pervasive Developmental Disorders
    Miyako Kimura · 2015 · IAFOR Journal of Psychology & the Behavioral Sciences
  10. Grupy wsparcia, samopomocy i stowarzyszenia rodziców dzieci z zaburzeniami ze spektrum autyzmu – narzędzie wsparcia emocjonalnego, informacyjnego czy instrumentalnego?
    Ewa Dobrogowska-Schlebusch · 2018 · Pomeranian Journal of Life Sciences
  11. Resources for parents raising a disabled child in the UK
    Christopher Morris, Sharon Blake, Anna Stimson, Aleksandra Borek, Kath Maguire · 2020 · Paediatrics and Child Health
  12. The Rewards and Challenges of Raising a Child with a Disability: An Interpretative Phenomenological Analysis of Parent Well-Being and Growth
    Stephen J Young · 2018 · Queensland University of Technology
  13. An exploratory study of the potential roles of child and youth care work in a hospital context
    Celest Castelina Heeralal · 2020 · DUT Open Scholar (Durban University of Technology)
  14. Examining the mother's supportive role caring for a child with cancer
    Fariba Mazhari, Shahin Heidari, Sedigheh Iranmanesh, Sakineh Sabzevari · 2022 · International Journal of Palliative Nursing
  15. Peer mentoring with parents of children newly diagnosed with type 1 diabetes
    Laura Grace Barcroft · 2015 · ORCA Online Research @Cardiff (Cardiff University)
  16. Sopeutumisvalmennuskursseille osallistuvien lasten vanhempien arvioita hyvinvoinnista, toimintakyvystä ja kurssiodotuksista
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  17. Embedding Public Engagement in Biomedical Research: a Pilot Experience in the Field of Rare Genetic Disorders
    Lidia Borghi, Elena Anna Maria Vegni, Silvia Tajè, Angelo Selicorni, Valentina Massa · 2019 · Journal of Developmental and Physical Disabilities
  18. Evaluation of The PeerTalk Charitable Foundation
    Themba Dlamini, Jesse Usman, Jon Painter, James Turner · 2021 · SHURA (Sheffield Hallam University Research Archive) (Sheffield Hallam University)
  19. The power of peer support
    Sophie D. Bennett, Lauren Croucher, Ann Hagell, Elif Mertan, Wendy Minhinnett, Roz Shafran · 2022
  20. Harnessing the Power of Families in Residential Child and Youth Care
    Millie Sweeney · 2022 · Oxford University Press eBooks
  21. Study on the Effects of a Ketogenic Diet Full-Cycle Management Platform in Children with Refractory Epilepsy
    Xingyanan Wang, Jinghua Ye, Xiaoqin Tian, Fangping Wang · 2024 · Research Square
  22. Peer support for people with dementia: an exploratory study of two peer support models
    Annica Barcenilla‐Wong, Raquel Skaf, Nicola Hancock, Lee‐Fay Low · 2024 · International Journal of Care and Caring
  23. Physical Activity and Depression in Mothers of a Child With a Special Health Care Need: Informing Future Interventions
    Brianna Black, Tanis J. Walch, Robin L. Dodds, John S. Fitzgerald · 2025 · Public Health Challenges
  24. Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial
    Bridgette L. Kelleher, Kaleb Emerson, Lyndsey N. Graham, Veronika Vozka, A. Wheeler, William Fadel, Daniel Foti, Isha W. Metzger, Mandy Rispoli, Wendy Machalicek et al. · 2024 · JMIR Research Protocols
  25. Experiences and opinions of whānau of Māori infants with hearing loss: ‘seeing the whole, everything … instead of just the one side of it’
    Genevieve Choi, Suzanne Carolyn Purdy, Holly F. B. Teagle, Andrew James Wood · 2025 · Speech Language and Hearing
  26. Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes
    Genevieve Choi, Holly F. B. Teagle, Suzanne Carolyn Purdy, Andrew James Wood · 2025 · Children
  27. Mothers’ Perspectives of the Influence of Social Support on the Continuity of Family Life for Children with Profound Intellectual and Multiple Disabilities at Home
    Kaori Nishigaki, Naho Sato, Rie Wakimizu · 2025 · Journal of Child and Family Studies
  28. Supporting fathers of autistic children through ‘walk and talk’ groups
    Louise Cooper · 2025 · Learning Disability Practice
  29. An environmental scan of peer support programs in Ontario, Canada for adults with special health care needs and their caregivers
    Karen Pratt, Caitlin N. Cassidy, Dalton Louis Wolfe, Nicole Turner, Laura Kristine Brunton · 2025 · Disability and Rehabilitation
  30. La pair-aidance en prévention précoce : origine, effet de soutien de la parentalité et du développement précoce. Une revue de la recherche
    Nathalie Casso-Vicarini, Laure Herman · 2025 · Devenir
  31. Psychological Support and Single‐Session Interventions for Parents of Children With Long‐Term Health Conditions: A Qualitative Service Evaluation
    Yik Ching Lee, Anna Roach, XinLu Li, Camilla A. Hinde, Thomas King, Isobel Heyman, Roz Shafran, Sara O’Curry · 2025 · Journal of Evaluation in Clinical Practice
  32. Additional file 1 of “I’m not alone”: a qualitative report of experiences among parents of children with eating disorders attending virtual parent-led peer support groups
    Laura Grennan, Maria Nicula, Danielle Pellegrini, Kelly Giuliani, Erica Crews, Cheryl Webb, Gouveia, Maria-Rosa, Techiya Loewen, Jennifer L. Couturier · 2023 · Figshare
  33. “It’s Going to Take Hard Work”: An Exploratory Analysis of Parent-Caregivers’ Labor Across Their Child’s Illness Trajectory
    Kristen L. Farris, Jocelyn M. DeGroot, Tricia J. Burke, Abigail J. Mellow · 2025 · Western Journal of Communication
  34. Stress percepito nei caregiver di pazienti con RASopatie: implicazioni cliniche, strategie di adattamento terapeutico e ruolo del supporto psicologico nei contesti assistenziali ad alta complessità
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  36. Latent profiles of depression and post-traumatic growth and their associations with social support and religious participation in mothers of children with developmental disabilities in South Korea
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  37. Examining the Effect of Peer-Led Parenting Interventions on the Wellbeing of Parents With Children With an Emotional or Behavioural Disorder – A Systematic Review
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  38. Group programmes to improve the skills, confidence and wellbeing of caregivers of children with neurodisability: a systematic review of effects
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  40. Group Programmes to Improve the Skills, Confidence and Wellbeing of Caregivers of Children with Neurodisability: a Systematic Review of Effects
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  41. Connecting with other parents matters: potential buffering role of parents’ group participation in the association between caregiving duration and mental health among 1,358 korean mothers caring for children with developmental disabilities
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  42. The psychological impact of pediatric movement disorders on families: brief report
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  43. Feasibility of an Adapted Participatory Group Programme for Caregivers of Children With Complex Neurodisability in the United Kingdom: Results From the Encompass‐2 Study
    Kirsten Prest, Kirsten Barnicot, Catherine S. Hurt, Cally J Tann, Michelle Heys, Angela Harden · 2026 · Health Expectations
  44. Implementation of peer support for families of children with CHD: leveraging the unique perspectives of leaders within patient/family organisations
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  45. Parents’ Experiences and Perceived Benefits of a Parent Program in Pediatric Type 1 Diabetes
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  46. Participants’ Experiences of a Peer Support Group for Parents of Children with Autism Spectrum Disorder
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