Evaluating the “return on patient engagement initiatives” in medicines research and development: A literature review

Cited by (173)

Items 101–173 of 173

1. The patient journey project in Italian mental health services: results from a co-designed survey on clinical interventions and current barriers to improve the care of people living with schizophrenia
   Antonio Vita, Stefano Barlati, Matteo Porcellana, Elisa Sala, Jacopo Lisoni, Luisa Brogonzoli, Mauro Percudani, R Iardino · 2024 · Frontiers in Psychiatry
2. Researcher and partner perspectives on the relationship between engagement in research and three uses of patient-centered comparative clinical effectiveness research study findings
   Maureen E. Maurer, Mary E. Lavelle, Tandrea S. Hilliard, Karen Frazier, Danielle Agraviador, Rachel Mosbacher, Laura Pence Forsythe, Kristin L. Carman · 2024 · Research Involvement and Engagement
3. Improving the Impact of Resources on Patient Engagement for a Biopharmaceutical Company
   R. A. Karthika, A. Rohini, G. Rosline Nesa Kumari, S. Pushpalatha, Valantina Stephen · 2024 · IEEE Delhi Section Conference (DELCON)
4. Evaluation of the Patient Innovation Partner Role: Perceived Benefits, Structures, Supports, and Recommendations for Lived Experience Engagement in Healthcare Innovation Teams
   Shoshana H. Bardach, Amanda Perry, Terry Sturke, Randy Stevens, Milan F. Satcher · 2025 · Health Expectations
5. Patient and Public Involvement with Forced Migrants: An Empirical Exploration of Ethical Issues
   Elin Inge, Nimo Elmi, Yasmin Omar, Georgina Warner, Ulrik Kihlbom · 2025 · Journal of Bioethical Inquiry
6. Community case study of patient and clinician early engagement in research on multiple chronic conditions using an implementation guide
   Constance van Eeghen, Jennifer O’Rourke Lavoie, Kairn Stetler Kelley, Georgia Brown, Beverly E. Canin, Juvena R. Hitt, Kennedy Paron, Tonica Robinson, Hanna Schweitzer, Haley Van Serke · 2025 · Frontiers in Medicine
7. From Innovator Result-driven to Multi-actor Impact-oriented Public–Private Partnerships: Integrating the Patient Perspective
   Remco L.A. de Vrueh, Jon S. B. de Vlieger, Kristina Maria Orrling, J M L van Rensen · 2024 · Handbook of experimental pharmacology
8. Patient engagement in drug development: dialogically problematizing participation
   Claudia Egher, Tamás Bereczky, Lisbeth Snede, Olga Zvonareva · 2024 · Science as Culture
9. Am I attached? A patient-partnered approach to creating infographics about attachment to primary care in Ontario, Canada
   Maggie MacNeil, Aya Tagami, Peter Sheffield, Vivian R. Ramsden, Joan Barker, Jennifer Boyle, Clare Cruickshank, Eliot Frymire, Richard Henry Glazier, Anita Gombos Hill et al. · 2024 · Research Involvement and Engagement
10. Cobuilding patient and public capacity in knowledge synthesis: designed and delivered by patient and public partners for patient and public partners
    Maureen P. Smith, Janet Gunderson, Sharmila Sreetharan, Sabrina Chaudhry, Clara Tam, Safa Al-Khateeb, Areti-Angeliki Veroniki, Sharon Elizabeth Straus, Andrea C. Tricco, Wasifa Zarin · 2024 · Journal of Clinical Epidemiology
11. Development of Interactive Learning Media Based on Bloom’s Taxonomy to Increase Student Engagement and Understanding
    Asha Sembiring, Muharman Lubis, Ilham Perdana, Yumna Zahran Ramadhan, Naqliya Arum Permata · 2024 · International Conference on Informatics and Computing (ICIC)
12. Incorporating Patient Needs and Perspectives in Additional Risk Minimization Measures and Other Pharmacovigilance Deliverables - A Framework and Implementation Roadmap
    Linda Smeding, Robert Massouh, Farai Moyo, Marilyn A. Metcalf, Shannon Altimari, Ekaterina Edle von Dall'Armi, Elisa Formenti · 2025 · Therapeutic Innovation & Regulatory Science
13. Randomised clinical trials integrity and patient, carer and public involvement: A scoping umbrella review
    Balázs Juhász, Klejda Harasani, Sandra Martín‐Peláez, Naomi Cano Ibáñez, PATRICK F. W. CHIEN, Mohamed M. Fawzy, Khalid Saeed Khan, Aurora Bueno‐Cavanillas · 2025 · Accountability in Research
14. Citizen science in osteoarthritis research: a scoping review
    Massimiliano Rucci, Davide Caldo, Riccardo Ferracini · 2025 · Journal of Orthopaedic Surgery and Research
15. Family Psychoeducation for Major Depressive Disorder: A Systematic Review
    Obumneke Obieche, Jing‐Yu (Benjamin) Tan, Sita Sharma, Daniel Thomas Bressington, Tao Wang, Mengyuan Li · 2025 · International Journal of Mental Health Nursing
16. Evolving Opportunities and Challenges for Patients in Clinical Research
    James E. Andrews, Christina E. Eldredge, Janelle Applequist, J. David Johnson · 2023 · Health informatics
17. The co-production process of an assessment programme: Between clarifying identity and developing the quality of French-speaking Belgian community health centres
    Madeleine Capiau, Jean Macq, Sophie Thunus · 2024 · Health Research Policy and Systems
18. Perspective Chapter: Patient Advocacy – From a Seat at the Table to Equal Stakeholders
    Janet L. Wale, Dominique Hamerlijnck · 2024 · IntechOpen eBooks
19. Exploring Patient Engagement in Pharmaceutical Medicine Development: A Value Creation Perspective.
    Xuemei Eichmann · 2020
20. Revisiting Reflexive Assessment
    Callum John Gunn · 2022
21. Measurement of Consumer Engagement in HIV Care Quality Improvement
    Thomas W. Concannon, George Thomas Timmins · 2023 · RAND Corporation eBooks
22. Partnership in care: Organic systems framework strategies for patients and care providers
    Phil Cady · 2023 · Healthcare Management Forum
23. Results of a patient engagement training for health advisors: a study of self-perceived competency enhancements
    Eduardo Perez-Guagnelli, Nicole Jardine, Amye L. Leong, Chris Rao, Michael Cohen, Ana María · 2025 · Research Involvement and Engagement
24. Using night shift worker and employee health stakeholder perspectives to inform the development of Arcashifttm, a digital precision circadian medicine intervention for shift work disorder
    Paige Coyne, Matthew B. Jennings, Sara Santarossa, Dana Murphy, Maya Zreik, Helena Bryans, Christopher Lawrence Drake, Olivia Walch, Philip Cheng · 2025 · BMC Digital Health
25. Crossing a chasm: Patient partnership and preclinical pain research
    Rob Murphy, Richelle Mychasiuk · 2025 · Journal of Pain
26. Identifying Challenges and Enablers to Engaging Patients in Preclinical Laboratory Research
    Madison Foster, Dean A. Fergusson, Emily Thompson, Victoria T. Hunniford, Talston Scott, Stephen R. Daniels, Dawn P. Richards, Pat Messner, Kathryn Hendrick, Patrick Sullivan et al. · 2025 · medRxiv
27. Investigating a patient-led conference: What are the characteristics and impacts of patient leadership? A qualitative study
    Tianna Magel, Kimberly Strain, Anna Samson, Dawn P. Richards, Hetty Mulhall, Karim Khan, Lorelei A. Lingard · 2025 · medRxiv
28. Additional file 2 of Practices of patient engagement in drug development: a systematic scoping review
    Olga Zvonareva, Constanța Craveț, Dawn P. Richards · 2022 · Figshare
29. Additional file 4 of Practices of patient engagement in drug development: a systematic scoping review
    Olga Zvonareva, Constanța Craveț, Dawn P. Richards · 2022 · Figshare
30. Additional file 3 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
31. Additional file 4 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
32. Additional file 1 of Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations
    Afrodita Marcu, Fiona McGregor, Egan, Bernadette, Kate Mary Hill, Cook, Tim, Anne Arber · 2023 · Figshare
33. Additional file 1 of Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study
    Maggie MacNeil, Abelson, Julia, Moore, Caroline, Shazelle Lindsay, Janet Adams, Aref Alshaikhahmed, Jain, Kamal, Penelope Petrie, Rebecca Ganann · 2024 · Figshare
34. Additional file 2 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
35. Additional file 3 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
36. Additional file 1 of A scoping review of the globally available tools for assessing health research partnership outcomes and impacts
    Kelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
37. Additional file 1 of How are health research partnerships assessed? A systematic review of outcomes, impacts, terminology and the use of theories, models and frameworks
    Kelly Mrklas, Sera Merali, Masood Khan, Sumair Shergill, Jamie M. Boyd, Lorelli S. Nowell, Lisa Maria Pfadenhauer, Kevin Paúl, Amelia Goertzen, Liam A. Swain et al. · 2023 · Figshare
38. Additional file 1 of Protocol for a scoping review to map patient engagement in scoping reviews
    Nebojša Oravec, Monnin, Caroline, April Gregora, Brian Bjorklund, Mudra G. Dave, Annette S. H. Schultz, Anna Maria Chudyk · 2022 · Figshare
39. Additional file 1 of Impacts of patient and family engagement in hospital planning and improvement: qualitative interviews with patient/family advisors and hospital staff
    Natalie N. Anderson, Dong, Kelly, Baker, G. Ross, Moody, Lesley, Kerseri Scane, Urquhart, Robin, Walter P. Wodchis, Anna R. Gagliardi · 2022 · Figshare
40. Additional file 2 of A scoping review of the globally available tools for assessing health research partnership outcomes and impacts
    Kelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
41. Additional file 1 of Co-designing a participatory evaluation of older adult partner engagement in the mcmaster collaborative for health and aging
    Marfy Ezekiel Abousifein, Anna Falbo, Joyce Luyckx, Julia Abelson, Rebecca Ganann, Brenda H. Vrkljan, Carusone, Soo Chan · 2024 · Figshare
42. Additional file 1 of Tools for assessing health research partnership outcomes and impacts: a systematic review
    Kelly Mrklas, Boyd, J. M., Shergill, S., Merali, S., Khan, M., Lorelli S. Nowell, Amelia Goertzen, Pfadenhauer, L. M., Kevin Paúl, Sibley, K. M. et al. · 2024 · Figshare
43. Additional file 1 of An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspoken
    Astrid I.W.A. Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Christesen, Henrik Thybo, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah et al. · 2024 · Figshare
44. Additional file 2 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health care
    Samira Adus, Jillian A. Macklin, Pinto, Andrew · 2024 · Figshare
45. Additional file 1 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
46. Additional file 1 of Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC) – insight into the contribution of patient engagement and learnings for the future
    Vervoort, J. P. M., Konijn, W. S., Jansen, D. E. M. C., Boersma, C., Janine de Zeeuw, Ho-dac – Pannekeet, M. M., Gansevoort, R. T., A. Lianne Messchendorp, Sanders, J. S. F., Renée de Wildt-Liesveld · 2024 · Figshare
47. Additional file 2 of Protocol for a scoping review to map patient engagement in scoping reviews
    Nebojša Oravec, Monnin, Caroline, April Gregora, Brian Bjorklund, Mudra G. Dave, Annette S. H. Schultz, Anna Maria Chudyk · 2022 · Figshare
48. Additional file 1 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Stephanie Best, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
49. Additional file 2 of Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC) – insight into the contribution of patient engagement and learnings for the future
    Vervoort, J. P. M., Konijn, W. S., Jansen, D. E. M. C., Boersma, C., Janine de Zeeuw, Ho-dac – Pannekeet, M. M., Gansevoort, R. T., Messchendorp, A. L., Sanders, J. S. F., Renée de Wildt-Liesveld · 2024 · Figshare
50. Additional file 1 of Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation
    David Feldman, Paola Kruger, Laure Delbecque, Duenas, Ashley, Oana Bernard-Poenaru, Séverine Wollenschneider, Hicks, Nick, Janine Ann Reed, Ify Sargeant, Chi Pakarinen et al. · 2021 · Figshare
51. Additional file 1 of Practices of patient engagement in drug development: a systematic scoping review
    Olga Zvonareva, Constanța Craveț, Dawn P. Richards · 2022 · Figshare
52. Additional file 2 of Impacts of patient and family engagement in hospital planning and improvement: qualitative interviews with patient/family advisors and hospital staff
    Natalie N. Anderson, Dong, Kelly, Baker, G. Ross, Moody, Lesley, Kerseri Scane, Urquhart, Robin, Walter P. Wodchis, Gagliardi, Anna R · 2022 · Figshare
53. Additional file 3 of Protocol for a scoping review to map patient engagement in scoping reviews
    Nebojša Oravec, Monnin, Caroline, April Gregora, Brian Bjorklund, Mudra G. Dave, Annette S. H. Schultz, Anna Maria Chudyk · 2022 · Figshare
54. Additional file 1 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health care
    Samira Adus, Jillian A. Macklin, Pinto, Andrew · 2023 · Figshare
55. Additional file 2 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
56. Patient Involvement Throughout the Medicine Life Cycle: A Pharmaceutical Industries’ Perspective
    Anke‐Peggy Holtorf, Michaela Dinboeck, Alexandra Moutet, Elin Haf Davies · 2026 · Health informatics
57. International multi-stakeholder consensus statement on patient, carer and public involvement to enhance clinical trial integrity
    Khalid Saeed Khan, Mohamed M. Fawzy, Balázs Juhász, PATRICK F. W. CHIEN, Manuel Martín-Díaz, Javier Zamora, Alberto Ruano‐Raviña, María Núñez‐Núñez, Maria del Carmen Amezcua Prieto, Sergio Martínez‐Vázquez et al. · 2026 · Accountability in Research
58. Development of a Patient and Carer Advisory Board to Co‐Design Health Services Research for the Quality of Care of People With Dementia
    Daniel X. Bailey, Jane Thompson, Elizabeth Beattie, Paul Prudon, Leanne Jack, Jenni Lawson, Karyn Lendich, Elizabeth Miller, Glenys Petrie, John Quinn et al. · 2026 · Health Expectations
59. Making room for patients in economic evaluation: a commentary on current capacity and future directions
    Emily R. Thompson, Mackenzie Klein Wilson, Stuart Gordon Nicholls, Dean A. Fergusson, Manoj Mathew Lalu, M. A. Smith, Terry Hawrysh, Sharon Bede, Michael Halas, Linda Riches et al. · 2026 · Research Involvement and Engagement
60. Using Partner-Driven Maximum Variance Sampling to Form a Lived Experience Panel: Step-by-Step Tutorial
    Anna F. Jolliff, Teresa Thuemling, Jessica Arora, Geri Lynn Baumblatt, Daniel J. Digmann, Ursulá T. Garcia-Mayes, Misty A.W. Hawkins, Sydney Hoel, Heather Janes, Nicole Orendain et al. · 2026 · Journal of Participatory Medicine
61. Effects, facilitators, and barriers of research co-production reported in peer-reviewed literature
    Femke Hoekstra, Anita Kothari, Kelly Mrklas, Kathryn M. Sibley · 2021 · OSF Preprints (OSF Preprints)
62. Patient partnership in primary health care systems of the future: a structured priority setting exercise
    Rebecca Ganann, Maggie MacNeil, Aya Tagami, Jennifer Boyle, Clare Cruickshank, Aref Alshaikhahmed, Joan Barker, Jo-Ann Stans, Ashley Chisholm, Gulafroz Akbari et al. · 2026 · Research Involvement and Engagement
63. “Truly having a conversation with each member about their needs”: accessibility considerations for the engagement of people with lived and living experience and caregivers in mental health and substance use health research
    Lisa D. Hawke, Wuraola Dada‐Phillips, Charlotte Munro, Shoshana Hauer, Claudia Sendanyoye, Katie Upham, Mary Rose van Kesteren, Abigail Amartey, Yona Lunsky, Tanya Halsall · 2026 · Research Involvement and Engagement
64. What are the characteristics and impacts of a patient-led conference? A qualitative study
    Tianna Magel, Kimberly Strain, Anna Samson, Dawn P. Richards, Hetty Mulhall, Karim M. Khan, Lorelei Lingard · 2026 · BMJ Open
65. Navigating uncertainty together: a participatory mixed-method study of counseling services for couples living with multiple sclerosis
    Jørn Nielsen, Theresia Krieger, Elke Kalbe, Ann‐Kristin Folkerts · 2026 · Frontiers in Public Health
66. What adolescents and young adults with cancer want researchers to know
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67. Building and Sustaining Patient Engagement Infrastructure Focused on Overdose Prevention Within a US Veterans Affairs National Research Network
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68. Methodological guidance on patient and public involvement and engagement in social pharmacy research
    Lourdes Cantarero Arévalo, Anna Birna Almarsdóttir, Lotte Stig Nørgaard, Suanne Kaae, Ramunë Jacobsen, Caroline Buhl, Aimo Strömberg, Katri Hämeen‐Anttila · 2026 · Elsevier eBooks
69. Promising Patient‐Engagement Practices Used by National Research Networks at the US Veterans Health Administration: Perspectives of Veterans, Staff, and Research Leaders
    Tracy L. Sides, Jennifer Pelt Wisdom, Malloree M. Argust, Erin C. Amundson, Diana Jill Burgess, Laura A. Meis, Agnes Jensen, Erin E. Krebs · 2026 · Learning Health Systems
70. Authentic content as an effective mechanism for embedding patient voices in health innovation: a hypothesis and conceptual framework
    Rohin Malhotra · 2026 · Frontiers in Health Services
71. A framework for community outreach and engagement at an NCI designated comprehensive cancer center narrative review and institutional application
    Leah Lambart, Hope M. Krebill, Jill Hamilton - Reeves, Cheryl Jernigan, Tony Carter, Roy A. Jensen, Karla Van Goethem, Susan Beckman, Dinesh Pal Mudaranthakam, R. C. Chen · 2026 · Journal of Clinical and Translational Science
72. Development of Enhanced Reviews of Psychological Changes After Stroke (ENRICH): A complex Intervention to Monitor and Support Self-Management of Post-Stroke Psychological Changes Within a Matched Care Model
    Georgina Hobden, Nele Demeyere · 2026 · Clinical Rehabilitation
73. Supporting meaningful contributions of people affected by Parkinson's throughout the research process: Key considerations for inclusive patient and public involvement across the globe
    Marie‐Louise Zeissler, Kevin McFarthing, Michèle Bartlett, Natasha Fothergill‐Misbah, Camille Carroll, Ríona Mc Ardle · 2026 · Journal of Parkinson s Disease