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Cited by 31Adrenal Hormones and DisordersHealth Literacy and Information AccessibilityPatient-Provider Communication in Healthcare

The DOI matches its Crossref record; 3 of the 3 references it cites were found in a registry or an index.

Cortisone replacement therapy in endocrine disorders – quality of self‐care

Harsch, Igor A., Schuller, Andrea, Hahn, Eckhart G., Hensen, Johannes·2010·Journal of Evaluation in Clinical Practice
DOI 10.1111/j.1365-2753.2009.01149.x
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Abstract

Objective Some endocrine disorders make cortisone replacement therapy (CRT) mandatory. Patients need to be well informed about the therapy and to be able to adapt the dose in case of stress, trauma or surgery. It is unknown where the patients mainly get their information from and what their preferences in learning about the disease are, as well as what their ideas are on how to improve the knowledge transfer. Study design We used an anonymized questionnaire to evaluate these objectives as well as the patients' present state of knowledge. Patients and methods A total of 338 patients with Addison's disease, hypopituitarism or adrenogenital syndrome (mean age 39.8 +/- 21.1 years, mean duration of disease 11.4 +/- 10.8 years) took part in the study. Results Spoken information by doctors is the main source of information for the patients (89%). Apart from counselling by physicians, journals of self-help groups (66%), brochures/guidebooks (60%) and the Internet (45%) are important sources of information. Asked for suggestions for further improvement of knowledge transfer, information available on paper is still the first choice (65%). 51.9% of the questions about CRT were answered correctly. 24% of the patients reported hospitalizations because of Addisonian crisis. Conclusion Information transfer by doctors is the main source of information for the patients. The low patient numbers make the development of structured education programmes unlikely. Given that only the half of the an…

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Metadata

Authors
Harsch, I. A., Schuller, A., Hahn, E. G., & Hensen, J.
Affiliations
  • Friedrich-Alexander-Universität Erlangen-Nürnberg (DE)
  • KRH Klinikum Nordstadt (DE)
Corresponding author
Harsch, Igor A.
ORCID
Harsch, Igor A.
Venue
Journal of Evaluation in Clinical Practice
Publisher
Wiley
Published
2010-05-25
Volume
16
Issue
3
Pages
492-498
ISSN
  • 1356-1294 (ISSN-L)
  • 1365-2753
DOI
10.1111/j.1365-2753.2009.01149.x
OpenAlex
W2142831607
Cited by
31
References
3
Citations by year
2025: 4 · 2024: 2 · 2023: 1 · 2022: 3 · 2021: 4 · 2020: 1 · 2019: 1 · 2018: 2 · 2017: 2 · 2016: 6 · 2015: 2 · 2014: 1 · 2013: 1 · 2012: 1
FWCI
0.48
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Journal of Evaluation in Clinical Practice (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Adrenal Hormones and Disorders
  • Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
  • Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
Keywords
Addison's disease, hypopituitarism, adrenogenital syndrome, patient self-care, patient education, health information sources, patient knowledge, adrenal crisis, knowledge transfer, self-help groups
MeSH terms
Addison Disease, Adolescent, Adrenocortical Hyperfunction, Adult, Cortisone, Endocrine System Diseases, Female, Germany, Humans, Male, Middle Aged, Quality of Health Care, Surveys and Questionnaires, Self Care, Young Adult

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