The DOI matches its Crossref record; 40 of the 40 references it cites were found in a registry or an index.
The Stigma of Epilepsy: A European Perspective
Open accessAbstract
PURPOSE: To study the stigma of epilepsy in a European sample. METHODS: Clinical and demographic details and information about patient-perceived stigma was collected by using self-completed questionnaires mailed to members of epilepsy support groups. RESULTS: Stigma data were collected from >5,000 patients living in 15 countries in Europe. Fifty-one percent reported feeling stigmatised, with 18% reporting feeling highly stigmatised. High scores were correlated with worry, negative feelings about life, long-term health problems, injuries, and reported side effects of antiepileptic drugs (AEDs). Cross-cultural comparisons revealed significant differences between countries. A multivariate analysis identified impact of epilepsy, age of onset, country of origin, feelings about life, and injuries associated with epilepsy as significant contributors on scores on the stigma scale. CONCLUSIONS: This study confirms the findings of previous studies that have identified the importance of both clinical and nonclinical factors in understanding the stigma of epilepsy. The results of cross-cultural differences require further explanation, and much more research should be conducted to reduce the stigma associated with epilepsy.
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“Having epilepsy is associated with perceived stigma, especially in the presence of comorbid mood disorders and low self-esteem [5, 6].”
From A prospective service evaluation of acceptance and commitment therapy for patients with refractory epilepsy (2015) · cites this paper as [5]
Citations
Cites
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Quality of life of people with epilepsy: a European study
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Self-citationBeing epileptic: coming to terms with stigma
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Self-citation
Research works printed but not linked: 10
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Cited by
Sorted by citations
Standards for epidemiologic studies and surveillance of epilepsy
Thurman, D. J., Beghi, E., Begley, C. E., Berg, A. T., Buchhalter, J., Ding, D., Hesdorffer, D. C., Hauser, W. A., Kazis, L. E., Kobau, R., et al. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03121.x · Cited by 1,045
Measuring health-related stigma—A literature review
van Brakel, W. H. (2006) · Psychology Health & Medicine · doi:10.1080/13548500600595160 · Cited by 687
Validation of the Generalized Anxiety Disorder-7 (GAD-7) among Chinese people with epilepsy
Tong, X., An, D., McGonigal, A., Park, S.-P., & Zhou, D. (2016) · Epilepsy Research · doi:10.1016/j.eplepsyres.2015.11.019 · Cited by 525
Epilepsy and social identity: the stigma of a chronic neurological disorder
Jacoby, A., Snape, D., & Baker, G. A. (2005) · The Lancet Neurology · doi:10.1016/s1474-4422(05)01014-8 · Cited by 518
Self-citationEpilepsy in poor regions of the world
Newton, C. R., & Garcia, H. H. (2012) · The Lancet · doi:10.1016/s0140-6736(12)61381-6 · Cited by 493
Metadata
- Authors
- Baker, G. A., Brooks, J., Buck, D., & Jacoby, A.
- Affiliations
- Walton Centre (GB)
- Newcastle University (GB)
- Corresponding author
- Baker, Gus A.
- ORCID
- Baker, Gus A.
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 2000-12
- Volume
- 41
- Issue
- 1
- Pages
- 98-104
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2136689353
- Cited by
- 357
- References
- 40
- Citations by year
- 2026: 5 · 2025: 10 · 2024: 13 · 2023: 12 · 2022: 11 · 2021: 13 · 2020: 19 · 2019: 12 · 2018: 19 · 2017: 17 · 2016: 22 · 2015: 22 · 2014: 25 · 2013: 18 · 2012: 18
- FWCI
- 5.41
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- Research Explorer (The University of Manchester) (publishedVersion)
- Newcastle University ePrints (Newcastle Univesity)
- Topics
- Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
- Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- epilepsy, stigma, cross-cultural comparison, age of onset, antiepileptic drug adverse effects, quality of life, stigma reduction
- MeSH terms
- Adolescent, Adult, Aged, Cross-Cultural Comparison, Epilepsy, Europe, Female, Humans, Male, Middle Aged, Surveys and Questionnaires, Regression Analysis, Self-Help Groups, Stereotyping
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