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Cited by 20Ethics in Clinical ResearchEthics and bioethics in healthcareOrgan Donation and Transplantation

The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.

Patients' experiences on donation of their residual biological samples and the impact of these experiences on the type of consent given for the future research use of the tissue: a systematic review

Chan, Tuck Wai, Mackey, Sandra, Hegney, Desley Gail·2012·International Journal of Evidence-Based Healthcare
DOI 10.1111/j.1744-1609.2011.00251.x
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Abstract

Aim This review aimed to critically appraise, synthesise and present the best available evidence related to the experiences of patients who have donated their residual biological samples and the impact of this experience on the type of consent given for future research use of these tissues. Method The three-step search strategy aimed to find both published and unpublished studies published in English between 1990 and 2010 in electronic databases (PubMed, CINAHL, Scopus, Embase, PsycINFO, Mednar, PROQUEST). Using the standardised data extraction tool from the Joanna Briggs Institute, the Qualitative Assessment and Review Instrument, 131 findings were extracted from the 18 papers included in this review. These findings generated 19 categories and four synthesised findings. Results The synthesised findings generated were related to the different stages of the handling of leftover tissue. The first synthesised finding: patient consent to the use of leftover tissue is a complex interaction between many factors and not solely driven by perceptions of benefits to self or others, relates to the collection of the leftover tissue - the initial consent process. The second synthesised finding: healthcare institutions and regulatory authorities must provide clear and transparent safeguards and controls, and communicate these to the patient prior to the consenting process, outlines the issues affecting consent during the processing and storage of the tissues in biobanks or research institu…

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Research works printed but not linked: 41

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Metadata

Authors
Chan, T. W., Mackey, S., & Hegney, D. G.
Affiliations
  • National University of Singapore (SG)
  • The University of Western Australia (AU)
ORCID
Venue
International Journal of Evidence-Based Healthcare
Publisher
Ovid Technologies (Wolters Kluwer Health)
Published
2012-03
Volume
10
Issue
1
Pages
9-26
ISSN
1744-1595 (ISSN-L)
DOI
10.1111/j.1744-1609.2011.00251.x
OpenAlex
W2019571554
Cited by
20
References
1
Citations by year
2026: 1 · 2025: 1 · 2024: 1 · 2023: 3 · 2021: 1 · 2020: 1 · 2019: 2 · 2018: 2 · 2017: 1 · 2016: 3 · 2013: 3 · 2012: 1
FWCI
0.20
Type
journal article
Language
en
Open access
closed
Locations
  • International Journal of Evidence-Based Healthcare (publishedVersion)
  • PubMed (publishedVersion)
  • Acquire (CQUniversity) (submittedVersion)
  • National University of Singapore (submittedVersion)
  • eSpace (Curtin University) (submittedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Organ Donation and Transplantation
Keywords
informed consent, patient experience, biobanks, research ethics, patient confidentiality
MeSH terms
Attitude to Health, Forecasting, Humans, Informed Consent, Tissue Banks, Tissue Donors, Biomedical Research

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CoChat. (2026). Citation check: Patients' experiences on donation of their residual biological samples and the impact of these experiences on the type of consent given for the future research use of the tissue: a systematic review. https://app.cochat.ai/papers/10.1111/j.1744-1609.2011.00251.x
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Chan, T. W., Mackey, S., & Hegney, D. G. (2012). Patients' experiences on donation of their residual biological samples and the impact of these experiences on the type of consent given for the future research use of the tissue: a systematic review. International Journal of Evidence-Based Healthcare. https://doi.org/10.1111/j.1744-1609.2011.00251.x