Patient and public involvement in the design of clinical trials: An overview of systematic reviews

Cited by (233)

Items 101–200 of 233

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6. Patient engagement as a core element of translating clinical evidence into practice- application of the COM-B model behaviour change model
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8. Patient-prioritized primary endpoints in clinical trials
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11. Protocol for an umbrella review of the state-of-science on public and patient involvement in health and social care research with children, young people and families.
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12. Patient and public involvement and engagement in methodology research: process, experiences, and recommendations from the SPIRIT- and CONSORT-Surrogate project
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14. Assessment of the Relationship Between Protocol Adherence, Study Complexity and Personnel in Surgical Clinical Trials
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15. Challenges of conducting a randomised placebo-controlled trial of spinal surgery: the SUcceSS trial of lumbar spine decompression
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16. Synthesising conceptual frameworks for patient and public involvement in research – a critical appraisal of a meta-narrative review
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17. Development of a video-based evidence synthesis knowledge translation resource: Drawing on a user-centred design approach
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18. Patient involvement in research within the Gynecological Cancer InterGroup: A call to action for a systematic approach: Results from a survey
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19. Commentary: an industry perspective on the importance of incorporating participant voice before, during, and after clinical trials
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22. Nutrition Outcomes and Interventions in Older People in Africa: A Systematic Umbrella and Scoping Review
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23. Sustaining connections: feasibility and impact of long-term virtual patient engagement
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24. Presentation of the first international research network to foster high-quality clinical trials testing non-pharmacological interventions (TRACTION network)
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25. The Public Interest
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27. Real-World Evidence Research in Metastatic Colorectal Cancer: Raising Awareness of the Need for Patient Contributions
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28. A Study Protocol Exploring the Role of an Implantable Doppler Probe in Kidney Transplantation: A Feasibility Randomized Controlled Trial with an Embedded Qualitative Study
    Muhammad Shahzar Malik, Jacob A Akoh, Kris Houlberg · 2023 · Experimental and Clinical Transplantation
29. Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes
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30. Patient engagement partnerships in clinical trials (PEP-CT): protocol for the systematic development and testing of patient partner and investigator decision aids
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31. 11 ‘Knowledge is power, and I do want to know more’
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33. Development of a Video-based Evidence Synthesis Knowledge Translation Resource: Applying a User-Centred Approach
    Cristian Deliv, EL Putnam, Declan Devane, Patricia Healy, Amanda Marie Hall, Sarah Rosenbaum, Elaine C. Toomey · 2021 · medRxiv
34. Reporting of Patient And Public Involvement (PPI) In Clinical Trials Published In Three Leading Nursing Science Journals: A Scientiometric Study
    Richard John Gray, Catherine Brasier, Ashley Ng · 2021 · Research Square
35. 3.2 Research Coproduction with Patients and Caregivers
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36. Assessing Needs and Perceptions of Research Participation in Pediatric-Onset Multiple Sclerosis: A Multistakeholder Survey
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37. “I Feel like the Virtual Reality Really Gives You that Power Back”: A Focus Group Study Exploring Breast Cancer Surgery Patients’ Experiences with a Preoperative Virtual Reality Intervention
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38. Randomised clinical trials integrity and patient, carer and public involvement: A scoping umbrella review
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39. Rigor and equity in intervention study design in pediatric psychology: a focus on comparator conditions from diabetes research
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40. Patient engagement and shared decision-making in trial recruitment intervention studies: a systematic review
    Tamara L. Morgan, Natasha Hudek, Kelly A. Carroll, Mei-Lin Yee, Juliette Inglis, Dean A. Fergusson, Katie Gillies, Dawn P. Richards, Seana N. Semchishen, Justin Presseau et al. · 2025 · Research Involvement and Engagement
41. Recognition, remuneration and reimbursement of patient and public involvement partners in pragmatic randomised controlled trials. A survey of author practices
    Stuart Gordon Nicholls, Pascale Nevins, Grace Fox, Shelley M. Vanderhout, Jamie Brehaut, Kelly A. Carroll, Dean A. Fergusson, Alicia J. Hilderley, Colin Macarthur, Beth K. Potter et al. · 2025 · Research Involvement and Engagement
42. Improving patient engagement in clinical trials: Launching the BOAT trial with key stakeholders
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43. Evaluating the utility of a patient and public involvement and engagement (PPIE) end-of-trial event to re-engage with cell-based therapy participants
    Deepak Menon, Jan Herman Kuiper, Andrea Kay Bailey, Michael Murphy, Yumna Ladha, Peter Gallacher, Paul Jermin, Andrew P. Roberts, Geraint Thomas, Charlotte H. Hulme et al. · 2025 · Regenerative Medicine
44. Participants’ Perspectives on Health Impact, Barriers and Facilitators to Adherence in a Mediterranean Diet Lifestyle Trial
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45. A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute
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46. Understanding the Unique Ethical Challenges in Randomized Controlled Trials of Delirium Interventions for Older Adults: A Rapid Review
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47. Amplifying missing voices in healthcare research: an AI framework for co-production of PPIE
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48. Citizen Science in Medizin und Gesundheitsforschung
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49. Systematic review on the involvement and engagement of patients as advisers for the organisation of organ transplantation services
    Zhi Qu, Carina Oedingen, T. Bartling, C. Krauth, H. Schrem · 2023 · BMJ Open
50. Involving patients and the public in nursing PhD projects: practical guidance, potential benefits and points to consider
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51. Gaps between needs of patient and public involvement and interests of researchers on pancreatic cancer
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52. Patient and public involvement and engagement in real world data and evidence research across the medicines development cycle: a rapid review of peer-reviewed literature and NICE technology appraisals
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53. 'Flexibility is the name of the game’: Clinicians’ views of optimal dose of psychological interventions for psychosis and paranoia
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54. Patient and Caregiver Involvement in Identifying and Designing Interventions for Trials in Chronic Kidney Disease: A Scoping Review
    Rebecca Wu, Anastasia Hughes, Javier Recabarren Silva, Chandana Guha, Carmel Mary Hawley, Nicole Jane Scholes-Robertson, Amanda Sluiter, Luca Gaetano Torrisi, Andrea Katharina Viecelli, Anita van Zwieten et al. · 2025 · The Nephron journals/Nephron journals
55. "Show-and-tell": an evaluation of working in partnership with autistic adults as an early career researcher exploring suicide theory
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56. Experiences of Participation in a Study Investigating Feasibility of the Implantable Doppler Probe in Kidney Transplantation: An Embedded Qualitative Study.
    Muhammad Shahzar Malik, Kris Houlberg, Jacob A Akoh · 2024 · Experimental and Clinical Transplantation
57. 'Flexibility is the name of the game’: Clinicians’ Views of Optimal Dose of Psychological Interventions for Psychosis and Paranoia
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58. Commentary: Making Patient Data Count—Opportunities and Challenges for Open Science in Clinical Psychology
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59. Self-Management Open Online Trials in Health (SMOOTH): Methods and public involvement survey of corresponding authors of existing online trials
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60. A multi-stakeholder approach to the co-production of the research agenda for medicines optimisation
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61. Growth of the lime tree 'Tahiti' (Citrus latifolia Tan.) and development of the fruit on four rootstocks fruit orchard in Municipality Palavecino. Lara State, Venezuela.
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62. Developing the Role of Proton Beam Therapy in Oesophageal Cancer
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63. A multi-stakeholder approach to the co-production of the research agenda for medicines optimisation
    John Fellenor, Nicky Britten, Molly Courtenay, Rupert Payne, José M Valderas, Rachel Denholm, Polly Duncan, Deborah McCahon, Lynn Tatnell, Richard Fitzgerald et al. · 2020 · Research Square
64. A multi-stakeholder approach to the co-production of the research agenda for medicines optimisation
    John Fellenor, Nicky Britten, Molly Courtenay, Rupert Payne, José M Valderas, Rachel Denholm, Polly Duncan, Deborah McCahon, Lynn Tatnell, Richard Fitzgerald et al. · 2019 · Research Square
65. Trends in collaboration with patient organizations on cancer-related clinical trials: Collaborative relationship with existing stakeholders and the characteristics of their co-sponsored studies in the United States
    Yesup Lee, Shintaro Sengoku · 2022 · Research Square
66. A review of reviews exploring patient and public involvement in population health research
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67. The Art of Good Governance
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68. Are you ready for Patient Engagement in Health Care?
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69. Opinion on the Research Phase and Themes of Patient and Public Involvement in the Research of Community Mental Health and Welfare
    Takayuki Kawaguchi, Makiko Abe, Sosei Yamaguchi, Momoka Igarashi, Makoto Ogawa, Takuma Shiozawa, Naonori Yasuma, Sayaka Sato, Yuki Miyamoto, Chiyo Fujii · 2023 · Iryo To Shakai
70. Exploring factors for meaningful patient involvement in infectious disease clinical studies: A qualitative pilot study among key stakeholders
    S. Moggré, Thijs ten Doesschate, Elske Sieswerda, Kim A. G. J. Romijnders · 2023 · medRxiv
71. Opening up ideas: an advent calendar for patient and public engagement in clinical trials research
    Nicola Harman, Kerrie McGiveron, Catrin Tudur Smith, Paula Ruth Williamson, Heather Barrington · 2023 · Research Involvement and Engagement
72. Editorial: Driving innovation: harnessing the power of patient input in research
    Sinéad M. Hynes, Robert A. Joyce, Christopher P. Dwyer · 2024 · Irish Journal of Occupational Therapy
73. The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research: A Modified Delphi Study
    Pádraig Carroll, Eimear M. Smith, Adrian G. Dervan, Ciarán McCarthy, Ian Woods, Cliff Beirne, Geoff Harte, Dónal O’Flynn, John Francis Quinlan, Fergal J. O’Brien et al. · 2024 · Health Expectations
74. Redefining Collaborative Dynamic in Drug Development: Patient Organizations as New Stakeholders for Oncology Clinical Trials in the U.S.
    Yesup Lee, Shintaro Sengoku · 2024 · Portland International Conference on Management of Engineering and Technology (PICMET)
75. Partnering with periodontal patients and care providers to establish research priorities for patient engagement in specialized periodontal care: A study protocol
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76. Genomics and Transcriptomics of Alzheimer Disease
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77. Patient and public involvement and engagement (PPIE) in Otolaryngology research: a systematic review of randomised controlled trials
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78. OPENing the door for patient and public involvement in medical research in Singapore
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79. Engaging longitudinal cohort participants in a research priority setting process for the Raine Study
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80. Adapted Safety Plans to Address Self-Harm and Suicide Behaviours in Autistic Adults: single arm feasibility trial and external pilot RCT
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81. Additional file 1 of Clinical trial recruiters’ experiences working with trial eligibility criteria: results of an exploratory, cross-sectional, online survey in the UK
    William J Cragg, Kathryn McMahon, Jamie B. Oughton, Rachel Sigsworth, Taylor, Christopher, Vicky Napp · 2021 · Figshare
82. Additional file 2 of Understanding and optimising patient and public involvement in trial oversight: an ethnographic study of eight clinical trials
    Coulman, K. D., Alexandra Nicholson, Alison R. G. Shaw, Anne R. Daykin, Selman, L. E., Rhiannon C Macefield, Shorter, G. W., Cramer, H., Matthew Robert Sydes, Carrol L. Gamble et al. · 2020 · Figshare
83. Additional file 3 of Patient and public involvement in randomised clinical trials: a mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators
    Selman, Lucy Ellen, Clement, Clare, Douglas, Margaret, Keith C. Douglas, Jodi Taylor, Metcalfe, Chris, Lane, J. Athene, Horwood, Jeremy · 2021 · Figshare
84. Additional file 1 of Understanding and optimising patient and public involvement in trial oversight: an ethnographic study of eight clinical trials
    Coulman, K. D., Alexandra Nicholson, Alison R. G. Shaw, Anne R. Daykin, Selman L, Rhiannon C Macefield, Shorter, G. W., Helen Cramer, Matthew Robert Sydes, Carrol L. Gamble et al. · 2020 · Figshare
85. Additional file 3 of Patient and public involvement in an international rheumatology translational research project: an evaluation
    Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza, Ruth Ann Williams · 2022 · Figshare
86. Additional file 4 of Patient and public involvement in an international rheumatology translational research project: an evaluation
    Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza, Ruth Ann Williams · 2022 · Figshare
87. Additional file 3 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
88. Additional file 3 of Clinical trial recruiters’ experiences working with trial eligibility criteria: results of an exploratory, cross-sectional, online survey in the UK
    William J Cragg, Kathryn McMahon, Jamie B. Oughton, Rachel Sigsworth, Taylor, Christopher, Vicky Napp · 2021 · Figshare
89. Additional file 1 of Clinical outcome measures in dementia with Lewy bodies trials: critique and recommendations
    Federico E Rodriguez‐Porcel, Kathryn A Wyman‐Chick, Carla Abdelnour Ruiz, Toledo, Jon B., Ferreira, Daniel, Prabitha Urwyler, Rimona Sharon Weil, Joseph Kane, Pilotto, Andrea, Arvid Rongve et al. · 2022 · Figshare
90. Additional file 4 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
91. Additional file 2 of Clinical outcome measures in dementia with Lewy bodies trials: critique and recommendations
    Federico E Rodriguez‐Porcel, Kathryn A Wyman‐Chick, Carla Abdelnour Ruiz, Toledo, Jon B., Ferreira, Daniel, Prabitha Urwyler, Rimona Sharon Weil, Joseph Kane, Pilotto, Andrea, Arvid Rongve et al. · 2022 · Figshare
92. Additional file 4 of Clinical outcome measures in dementia with Lewy bodies trials: critique and recommendations
    Federico E Rodriguez‐Porcel, Kathryn A Wyman‐Chick, Carla Abdelnour Ruiz, Toledo, Jon B., Ferreira, Daniel, Prabitha Urwyler, Rimona Sharon Weil, Joseph Kane, Pilotto, Andrea, Arvid Rongve et al. · 2022 · Figshare
93. Additional file 5 of Clinical outcome measures in dementia with Lewy bodies trials: critique and recommendations
    Federico E Rodriguez‐Porcel, Kathryn A Wyman‐Chick, Carla Abdelnour Ruiz, Toledo, Jon B., Ferreira, Daniel, Prabitha Urwyler, Rimona Sharon Weil, Joseph Kane, Pilotto, Andrea, Arvid Rongve et al. · 2022 · Figshare
94. Additional file 2 of Patient and public involvement in an international rheumatology translational research project: an evaluation
    Savia de Souza, Eva C. Johansson, Susanne Karlfeldt, Karim Raza, Ruth Ann Williams · 2022 · Figshare
95. Additional file 1 of Opening up ideas: an advent calendar for patient and public engagement in clinical trials research
    Nicola Harman, Kerrie McGiveron, Catrin Tudur-Smith, Paula Ruth Williamson, Heather Barrington · 2023 · Figshare
96. Additional file 1 of Reporting of PPI and the MCID in phase III/IV randomised controlled trials—a systematic review
    Brennan, Joseph, Michael T. C. Poon, Edward Christopher, Fulton, Olivia, Carol Porteous, Brennan, Paul M. · 2023 · Figshare
97. Additional file 1 of Starting a conversation about estimands with public partners involved in clinical trials: a co-developed tool
    Suzie Cro, Brennan C Kahan, Patel, Akshaykumar, Ania Henley, C Joanna, Hellyer, Paul, Manos Kumar, Rahman, Yasmin, Beatriz Goulão · 2023 · Figshare
98. Additional file 2 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
99. Additional file 2 of Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers
    Jones, Julia, Marion Cowe, Sue Anne Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe, Mathie, Elspeth · 2021 · Figshare
100. Additional file 2 of Clinical trial recruiters’ experiences working with trial eligibility criteria: results of an exploratory, cross-sectional, online survey in the UK
     William J Cragg, Kathryn McMahon, Jamie B. Oughton, Rachel Sigsworth, Taylor, Christopher, Vicky Napp · 2021 · Figshare