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Cited by 24Down syndrome and intellectual disability researchFamily and Disability Support ResearchBehavioral and Psychological Studies

The DOI matches its Crossref record; 35 of the 35 references it cites were found in a registry or an index.

Mental health needs and availability of mental health care for children and adolescents with intellectual disability in Berlin

Soltau, B., Biedermann, J., Hennicke, K., Fydrich, T.·2015·Journal of Intellectual Disability Research
DOI 10.1111/jir.12185
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Abstract

BACKGROUND: The increased risk of mental health problems in children and adolescents with intellectual disability (ID) has been reported in several studies. However, almost no research has been conducted on parents' experiences with the general mental health system. We have investigated the prevalence of emotional and behavioural problems in children with ID as well as the availability and quality of mental health care from the parents' point of view. METHODS: Teachers of specialised schools for ID in Berlin were asked to complete the Teacher's Report Form (TRF) of the Child Behavior Checklist. Information was collected for 1226 children and adolescents aged 6-18 years with mild to profound ID (response 70.5%). The availability and quality of mental health care was assessed by a questionnaire given to parents who had already been seeking help for their children. A total of 330 parents completed the questionnaires (response 62.0%). In addition to univariate analysis, we conducted multiple logistic regressions regarding the psychopathology reported by teachers (TRF-syndrome scales) and difficulties concerning mental health care reported by parents for a paired sample of 308 children. RESULTS: Overall, 52.4% of the children and adolescents with ID had a total problem score on the TRF in the deviant range (47.1% when eliminating four items reflecting cognitive deficits). Compared with the general population normative sample of children, this is a three-time higher prevalence. The most striking problems were thought problems (schizoid and obsessive-compulsive), aggressive behaviour, attention problems and social problems. Parents whose children had more severe behavioural or emotional dysfunction reported more difficulties with the mental health system. From the parents' point of view, mental health professionals frequently did not feel responsible or were not sufficiently skilled for the treatment of children with ID. As a consequence, 96% of all parents were longing for specialised in- and outpatient services. CONCLUSIONS: This study confirms the findings from other studies regarding the high rate of co-occurrence of ID and mental health problems in youths. Results indicate that both are strongly requested by parents: specialised in- and outpatient services, as well as more professional general services and equitable treatment for all children, with and without ID.

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Crossref · 10.1111/jir.12185

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Research works printed but not linked: 3

  1. Döpfner M., 1997, Verhaltensauffälligkeiten von schülern im urteil der lehrer: Reliabilität und faktorielle validität der teacher's report form der child behavior checklist, Zeitschrift Für Differentielle Und Diagnostische Psychologie, 18, 199
  2. Lienert G. A., 1998, Testaufbau und Testanalyse
  3. Theunissen G., 2004, Verhaltensauffälligkeiten bei Schülerinnen und Schülern mit so genannter geistiger Behinderung. Ergebnisse einer repräsentativen Lehrerbefragung aus Sachsen‐Anhalt, Geistige Behinderung, 43, 129

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Metadata

Authors
Soltau, B., Biedermann, J., Hennicke, K., & Fydrich, T.
Affiliations
  • Humboldt-Universität zu Berlin (DE)
  • Charité – Universitätsmedizin Berlin (DE)
  • Protestant University of Applied Sciences Rhineland-Westphalia-Lippe (DE)
Corresponding author
Soltau, B.
ORCID
Biedermann, J.
Venue
Journal of Intellectual Disability Research
Publisher
Wiley
Published
2015-02-25
Volume
59
Issue
11
Pages
983-994
ISSN
  • 0964-2633 (ISSN-L)
  • 1365-2788
DOI
10.1111/jir.12185
OpenAlex
W2153665364
Cited by
24
References
35
Citations by year
2026: 1 · 2025: 2 · 2024: 3 · 2023: 5 · 2021: 5 · 2020: 1 · 2018: 3 · 2017: 2 · 2016: 2
FWCI
2.50
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Journal of Intellectual Disability Research (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
Keywords
intellectual disability, children and adolescents, mental health needs, emotional and behavioral problems, parental experiences, Child Behavior Checklist, aggression, attention deficits, social problems, Berlin
MeSH terms
Adolescent, Mental Disorders, Berlin, Child, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Male, Mental Health Services, Intellectual Disability, Comorbidity

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