The Complexities of Genomic Identifiability
Abstract
Recent work reveals the need to re-examine the current paradigms for managing the potential identifiability of genomic and other "omic"-type data. [Also see News story and Report by Gymrek et al. ]
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Usually, identifying the source of a genetic sample from which identifiers have been removed would require intent and technical wherewithal, as well as motivation and a means by which to exploit this information.
“Furthermore, the original source of HeLa cells is decidedly famous; usually, identifying the source of a genetic sample from which identifiers have been removed would require intent and technical wherewithal, as well as motivation and a means by which to exploit this information (117).”
From Lessons from HeLa Cells: The Ethics and Policy of Biospecimens (2016) · cites this paper as [117]
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References 12 · Cited by 144
- Authors
- Rodriguez, L. L., Brooks, L. D., Greenberg, J. H., & Green, E. D.
- Affiliations
- National Institutes of Health (US)
- Corresponding author
- Green, Eric D.
- Venue
- Science
- Published
- 2013-01-18
- Volume
- 339
- Issue
- 6117
- Pages
- 275-276
- ISSN
- 0036-8075 (ISSN-L)
- 1095-9203
- OpenAlex
- W1981382919
- Cited by
- 144
- References
- 12
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 3 · 2023: 7 · 2022: 24 · 2021: 5 · 2020: 12 · 2019: 4 · 2018: 8 · 2017: 4 · 2016: 18 · 2015: 10 · 2014: 24 · 2013: 20
- FWCI
- 26.49
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Science (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Physical Sciences › Computer Science › Artificial Intelligence › Privacy-Preserving Technologies in Data
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Social Sciences › Sociology and Political Science › Privacy, Security, and Data Protection
- Keywords
- genetic privacy, re-identification, genomic data management
- MeSH terms
- Humans, Human Genome Project, Tandem Repeat Sequences, Genomics, Genetic Privacy, Information Dissemination, Biomedical Research, Chromosomes, Human, Y
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