The DOI matches its Crossref record; 2 of the 2 references it cites were found in a registry or an index.
Launching PCORnet, a national patient-centered clinical research network
Open accessAbstract
The Patient-Centered Outcomes Research Institute (PCORI) has launched PCORnet, a major initiative to support an effective, sustainable national research infrastructure that will advance the use of electronic health data in comparative effectiveness research (CER) and other types of research. In December 2013, PCORI's board of governors funded 11 clinical data research networks (CDRNs) and 18 patient-powered research networks (PPRNs) for a period of 18 months. CDRNs are based on the electronic health records and other electronic sources of very large populations receiving healthcare within integrated or networked delivery systems. PPRNs are built primarily by communities of motivated patients, forming partnerships with researchers. These patients intend to participate in clinical research, by generating questions, sharing data, volunteering for interventional trials, and interpreting and disseminating results. Rapidly building a new national resource to facilitate a large-scale, patient-centered CER is associated with a number of technical, regulatory, and organizational challenges, which are described here.
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Cites
The “Meaningful Use” Regulation for Electronic Health Records
Blumenthal, D., & Tavenner, M. (2010) · New England Journal of Medicine · doi:10.1056/nejmp1006114 · Cited by 2,059
Hersh, W. R., Weiner, M. G., Embi, P. J., Logan, J. R., Payne, P. R. O., Bernstam, E. V., Lehmann, H. P., Hripcsak, G., Hartzog, T. H., Cimino, J. J., et al. (2013) · Medical Care · doi:10.1097/mlr.0b013e31829b1dbd · Cited by 567 · cited 1×
“17 Second, in order to achieve multi-institutional querying, PCORnet will have to deal with data harmonization.”
Background
Cited by
The REDCap consortium: building an international community of software platform partners
Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O'Neal, L., McLeod, L., Delacqua, G., Delacqua, F., Kirby, J., et al. (2019) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2019.103208 · Cited by 24,013
Lloyd-Jones, D. M., Allen, N. B., Anderson, C. A. M., Black, T., Brewer, L. C., Foraker, R. E., Grandner, M. A., Lavretsky, H., Perak, A. M., Sharma, G., et al. (2022) · Circulation · doi:10.1161/cir.0000000000001078 · Cited by 2,785
George, H., Duke Jon, D., Shah Nigam, H., Reich Christian, G., Vojtech, H., Schuemie Martijn, J., Suchard Marc, A., Woong, P. R., Kei, W. I. C., Rijnbeek Peter, R., et al. (2015) · Studies in Health Technology and Informatics · doi:10.3233/978-1-61499-564-7-574 · Cited by 1,107
Goldstein, B. A., Navar, A. M., Pencina, M. J., & Ioannidis, J. P. A. (2017) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocw042 · Cited by 936
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Grover, V., Chiang, R. H. L., Liang, T.-P., & Zhang, D. (2018) · Journal of Management Information Systems · doi:10.1080/07421222.2018.1451951 · Cited by 961
Metadata
- Authors
- Fleurence, R. L., Curtis, L. H., Califf, R. M., Platt, R., Selby, J. V., & Brown, J. S.
- Venue
- Journal of the American Medical Informatics Association
- Publisher
- Oxford University Press (OUP)
- Published
- 2014-07-01
- Volume
- 21
- Issue
- 4
- Pages
- 578-582
- ISSN
- 1067-5027 (ISSN-L)
- 1527-974X
- OpenAlex
- W2151868700
- Cited by
- 637
- References
- 2
- FWCI
- 73.46
- Type
- journal article
- Language
- en
- Open access
- hybrid
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- Fleurence, R. L., Curtis, L. H., Califf, R. M., Platt, R., Selby, J. V., & Brown, J. S. (2014). Launching PCORnet, a national patient-centered clinical research network. Journal of the American Medical Informatics Association. https://doi.org/10.1136/amiajnl-2014-002747
Data sources
Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
