The DOI matches its Crossref record; 13 of the 13 references it cites were found in a registry or an index.
Double-edged MAiD death family legacy: a qualitative descriptive study
Abstract
Background: Individuals who accompany a loved one through medical assistance in dying (MAiD) have to live with the experience and the psychological, moral and social consequences of their involvement in the process long after the death occurs. Aim: To explore the legacy of a MAiD death for individuals who accompanied a loved one through the process. Design: Using a qualitative descriptive approach we conducted semi-structured interviews to collect data from family members who had accompanied a loved one through MAiD. Data were analysed using conventional content analysis. Setting/participants: 16 family members of 14 patients who received MAiD at a Canadian hospital with an interdisciplinary MAiD programme. Results: The main theme in the analysis is the opposing tensions experienced by individuals who accompany a loved one through a MAiD death, which we conceptualise as a double-edge experience. This double-edge experience is illustrated through four thematic opposing tensions: (1) support for patient autonomy and ambivalence about the MAiD choice, (2) gratitude for suffering relieved for loved one and grief for lost time with loved one, (3) time as a gift and time as a burden and (4) positive legacy and challenging bereavement experience. Conclusion: The nature of the MAiD experience for involved families is rooted in complexity, ambiguity and ambivalence and thus resists easy categorisation. Families would benefit from structured psychosocial and spiritual supports that acknowledge this complexity, along with MAiD-specific bereavement support following the death.
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“participants identified support needs for both patients and families during and following the MAiD MI-SUMC assessment, including, in alignment with prior studies on MAiD for conditions other than mental illness [26, 58, 59], instrumental supports with end-of-life planning, and bereavement supports for families [60].”
Citations
Cites
Three Approaches to Qualitative Content Analysis
Hsieh, H.-F., & Shannon, S. E. (2005) · Qualitative Health Research · doi:10.1177/1049732305276687 · Cited by 44,601
(1998) · Cited by 9,332
Qualitative description – the poor cousin of health research?
Neergaard, M. A., Olesen, F., Andersen, R. S., & Søndergaard, J. (2009) · BMC Medical Research Methodology · doi:10.1186/1471-2288-9-52 · Cited by 2,420
The qualitative research audit trail: A complex collection of documentation
Rodgers, B. L., & Cowles, K. V. (1993) · Research in Nursing & Health · doi:10.1002/nur.4770160309 · Cited by 626
Gamondi, C., Fusi‐Schmidhauser, T., Oriani, A., Payne, S. A., & Preston, N. J. (2019) · Palliative Medicine · doi:10.1177/0269216319857630 · Cited by 91
Gamondi, C., Pott, M., Forbes, K., & Payne, S. A. (2013) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2013-000483 · Cited by 69
Hales, B. M., Bean, S., Isenberg-Grzeda, E., Ford, B., & Selby, D. (2019) · Palliative and Supportive Care · doi:10.1017/s147895151900004x · Cited by 62
Exploring the experience of supporting a loved one through a medically assisted death in Canada.
Holmes, S., Wiebe, E. R., Shaw, J., et al. (2018) · PubMed · Cited by 40
Content Validity of a Conceptual Model of a Palliative Approach
Touzel, M., & Shadd, J. (2018) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0658 · Cited by 32
Gamondi, C., Pott, M., Preston, N. J., & Payne, S. A. (2019) · Journal of Palliative Medicine · doi:10.1089/jpm.2019.0286 · Cited by 14
The relation between cultural values, euthanasia and spiritual care in the Netherlands
Leget, C. J. W. (2017) · Polskie Archiwum Medycyny Wewnętrznej · doi:10.20452/pamw.3979 · Cited by 13
Nichol, J. N. (2017) · Mspace (University of Manitoba) · Cited by 3
Research works printed but not linked: 1
- Jung C , Adler G , Hull R . Collected works of C.G. Jung. 6. Princeton University Press: Princeton, 1990.
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MAiD to Last: Creating a Care Ecology for Sustainable Medical Assistance in Dying Services
Frolic, A., Miller, P., Harper, W., & Oliphant, A. (2022) · HEC Forum · doi:10.1007/s10730-022-09487-7 · Cited by 22
Self-citationStergiopoulos, V., Bastidas-Bilbao, H., Gupta, M., Buchman, D. Z., Stewart, D. E., Rajji, T., Simpson, A. I. F., van Kesteren, M. R., Cappe, V., Castle, D., et al. (2024) · BMC Psychiatry · doi:10.1186/s12888-024-05541-5 · Cited by 5
Metadata
- Authors
- Frolic, A. N., Swinton, M., Murray, L., & Oliphant, A.
- Affiliations
- Hamilton Health Sciences (CA)
- McMaster University (CA)
- Mohawk College (CA)
- Western University (CA)
- Corresponding author
- Frolic, Andrea N
- Venue
- BMJ Supportive & Palliative Care
- Publisher
- BMJ
- Published
- 2020-12-18
- Volume
- 14
- Issue
- e1
- Pages
- e845-e850
- ISSN
- 2045-435X (ISSN-L)
- 2045-4368
- OpenAlex
- W3114744819
- Cited by
- 28
- References
- 13
- Citations by year
- 2026: 4 · 2025: 3 · 2024: 4 · 2023: 7 · 2022: 9 · 2021: 1
- FWCI
- 3.19
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- BMJ Supportive & Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- HighWire Press Open Archive (submittedVersion)
- Funders
- Canadian Foundation for Healthcare Improvement
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Keywords
- medical assistance in dying, family caregivers, bereavement, patient autonomy, ambivalence, grief, psychosocial support, spiritual support, end-of-life care
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