Caregiver Burden, Health-Related Quality of Life and Coping in Dementia Caregivers: A Comparison of Frontotemporal Dementia and Alzheimer’s Disease
Abstract
Frontotemporal dementia (FTD) is the second most prevalent dementia after Alzheimer's disease (AD). We compared 29 FTD and 90 AD caregivers with respect to burden, health-related quality of life (HQoL) and coping. FTD caregivers were more burdened than AD caregivers, and caregivers of patients who were demented for shorter duration had lower HQoL. We furthermore compared the 29 FTD caregivers with 34 caregivers of institutionalized FTD patients to understand their specific caregiver issues. Caregivers of FTD patients institutionalized after shorter dementia duration were most burdened and affected in their HQoL. Overall, passive coping strategies were associated with increased burden and decreased HQoL. We recommend that FTD caregivers be offered more support than AD caregivers. Furthermore, we suggest that interventions target passive coping strategies.
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Frontotemporal dementia is significantly associated with caregiver burden and psychological morbidity compared with dementia of other aetiologies.
“Previous literature has reported that frontotemporal dementia is significantly associated with caregiver burden and psychological morbidity compared with dementia of other aetiologies [122,123,124].”
From Relationship of Psychological Flexibility and Mindfulness to Caregiver Burden, and Depressive and Anxiety Symptoms in Caregivers of People with Dementia (2023) · cites this paper as [123]
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References 26 · Cited by 234
- Authors
- Riedijk, S. R., De Vugt, M. E., Duivenvoorden, H. J., Niermeijer, M. F., van Swieten, J. C., Verhey, F. R. J., & Tibben, A.
- Affiliations
- Erasmus MC (NL)
- Radboud University Medical Center (NL)
- Maastricht University (NL)
- Leiden University Medical Center (NL)
- Venue
- Dementia and Geriatric Cognitive Disorders
- Publisher
- S. Karger AG
- Published
- 2006
- Volume
- 22
- Issue
- 5-6
- Pages
- 405-412
- ISSN
- 1420-8008 (ISSN-L)
- 1421-9824
- OpenAlex
- W2138197020
- Cited by
- 234
- References
- 26
- Citations by year
- 2026: 1 · 2025: 9 · 2024: 9 · 2023: 14 · 2022: 23 · 2021: 13 · 2020: 10 · 2019: 17 · 2018: 13 · 2017: 12 · 2016: 13 · 2015: 21 · 2014: 11 · 2013: 19 · 2012: 13
- FWCI
- 3.17
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Dementia and Geriatric Cognitive Disorders (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Radboud Repository (Radboud University) (submittedVersion)
- Funders
- Nederlandse Organisatie voor Wetenschappelijk Onderzoek
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- frontotemporal dementia, Alzheimer's disease, dementia caregivers, caregiver burden, health-related quality of life, coping strategies, passive coping, institutionalized patients, disease duration, caregiver support interventions
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Alzheimer Disease, Mental Disorders, Dementia, Female, Follow-Up Studies, Health Status, Humans, Male, Middle Aged, Quality of Life, Caregivers, Cost of Illness
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