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Chronic Pain in Childhood and the Medical Encounter: Professional Ventriloquism and Hidden Voices
Abstract
This article is a report on the experiences of three children with chronic pain and their families. The children and families experienced numerous encounters with health professionals during their "quest for a diagnosis"for chronic pain. In a high proportion of these encounters, the children/families felt they were judged, disbelieved, and labeled as difficult or dysfunctional, and this compounded the stresses they were already dealing with. The families described situations in which their accounts of pain were reinterpreted through a variety of professional lenses, and the children felt that their voices were muted or ignored. Professional ventriloquism is presented as a means of exploring the way in which the child's words are reinterpreted and mistranslated through professionals' own paradigms of understanding. Professionals need to stand back from what they believe to determine what the children themselves know about their pain.
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“It has been previously highlighted how children with chronic pain often experience negative, judgmental and stressful encounters with clinicians, related to clinicians’ struggles to secure a diagnosis and confidently explain chronic pain; exposing a need to recruit clinicians, including physicians, to remedy this issue [7].”
Citations
Cites
Handbook of Qualitative Research
Londoño Fernández, J. L. (1994) · Journal of Environmental Psychology · doi:10.1016/s0272-4944(05)80230-0 · Cited by 5,754
Kushner (2021) · doi:10.12788/jfp · Cited by 3,799
Classification of Chronic Pain: Descriptions of Chronic Pain Syndromes and Definitions of Pain Terms
Merskey, H. (1994) · Medical Entomology and Zoology · Cited by 3,362
Constructivist, interpretivist approaches to human inquiry.
Schwandt, T. A. (1994) · Cited by 2,465
Doctor-patient communication: a review of the literature
Ong, L. M. L., de Haes, J. C. J. M., Hoos, A. M., & Lammes, F. B. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00155-m · Cited by 2,430
Classification of Chronic Pain—Descriptions of Chronic Pain Syndromes and Definitions of Pain Terms
Harvey, A. M. (1995) · Clinical Journal of Pain · doi:10.1097/00002508-199506000-00024 · Cited by 1,787
Heuristic research : design, methodology, and applications
Moustakas, C. E. (1990) · Sage eBooks · doi:10.4135/9781412995641 · Cited by 1,363
(1990) · Cited by 1,280
Convention on the Rights of the Child
(1989) · Population and Development Review · doi:10.2307/1972615 · Cited by 836
Developmental and Behavioral Pediatrics
Brown, G. W. (1980) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-198003000-00002 · Cited by 349
Gil, K. M., Williams, D. A., Thompson, R. J., & Kinney, T. R. (1991) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/16.5.643 · Cited by 252
Enriching the Doctor-Patient Relationship by Inviting the Patient's Perspective
Delbanco, T. L. (1992) · Annals of Internal Medicine · doi:10.7326/0003-4819-116-5-414 · Cited by 231
Reid, G. J., Lang, B. A., & McGrath, P. J. (1997) · Arthritis & Rheumatism · doi:10.1002/art.1780400423 · Cited by 170
Children's Contributions to Pediatric Outpatient Encounters
van Dulmen, A. M. (1998) · PEDIATRICS · doi:10.1542/peds.102.3.563 · Cited by 150
Physician Communication with Children and Parents
Pantell, R. H., Stewart, T. J., Dias, J. K., Wells, P., & Ross, A. W. (1982) · PEDIATRICS · doi:10.1542/peds.70.3.396 · Cited by 144
Chronic Pain and Emotional Distress in Children and Adolescents
Varni, J. W., Rapoff, M. A., Waldron, S. A., Gragg, R. A., Bernstein, B., & Lindsley, C. B. (1996) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-199606000-00003 · Cited by 141
Psychiatric Symptoms in Preadolescents With Musculoskeletal Pain and Fibromyalgia
Mikkelsson, M., Sourander, A., Piha, J., & Salminen, J. J. (1997) · PEDIATRICS · doi:10.1542/peds.100.2.220 · Cited by 129
Family Influences on Coping Processes in Children and Adolescents with Sickle Cell Disease
Kliewer, W. L., & Lewis, H. A. (1995) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/20.4.511 · Cited by 123
Clinical Assessment and Management of Chronic Pain and Pain-Associated Disability Syndrome
Bursch, B., Walco, G. A., & Zeltzer, L. K. (1998) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-199802000-00008 · Cited by 114
Identification of Psychosocial Problems in Pediatric Primary Care
Horwitz, S. M., Leaf, P. J., & Leventhal, J. M. (1998) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.152.4.367 · Cited by 110
Penny, K. I., Purves, A. M., Smith, B. H., Chambers, A. W., & Smith, C. W. (1999) · Pain · doi:10.1016/s0304-3959(98)00166-3 · Cited by 108
Iatrogenic Factors and Chronic Pain
Kouyanou, K., Pither, C. E., & Wessely, S. C. (1997) · Psychosomatic Medicine · doi:10.1097/00006842-199711000-00007 · Cited by 108
Social Context of Pain in Children with Juvenile Primary Fibromyalgia Syndrome
Schanberg, L. E., Keefe, F. J., Lefebvre, J. C., Kredich, D. W., & Gil, K. M. (1998) · Clinical Journal of Pain · doi:10.1097/00002508-199806000-00004 · Cited by 96
Pain in Infants, Children, and Adolescents
Tobias, J. D. (1993) · Anesthesiology · doi:10.1097/00000542-199309000-00049 · Cited by 81
The Voice of the Child: A Handbook for Professionals
Thomas, N. (1996) · Children & Society · doi:10.1002/(sici)1099-0860(199612)10:4 · Cited by 74
Chronic and Recurrent Pain in Children and Adolescents
Finley, G. A., & McGrath, P. J. (1999) · Cited by 74
Chronic and Recurrent Pain in Children and Adolescents
Gladstein, J. (2000) · Headache The Journal of Head and Face Pain · doi:10.1046/j.1526-4610.2000.00141.x · Cited by 66
Medical Encounters: The Experience of Illness and Treatment
Fletcher, C. M. (1978) · Journal of Medical Ethics · doi:10.1136/jme.4.2.101-a · Cited by 61
Outcome and predictive factors in children with chronic idiopathic musculoskeletal pain.
Flatø, B., Aasland, A., Vandvik, I., & Førre, Ø. T. (1997) · PubMed · Cited by 60
What Do Patients and Parents Want to Know? What Do They Need to Know?
KORSCH, B. M. (1984) · PEDIATRICS · doi:10.1542/peds.74.5.917 · Cited by 44
Growing pain: 10-year research trends in the study of chronic pain and headache
Norton, P. J., Asmundson, G. J. G., Norton, R. G., & Craig, K. D. (1999) · Pain · doi:10.1016/s0304-3959(98)00149-3 · Cited by 39
Perspectives on pain : mapping the territory
Carter, B., & Gillies, M. (1998) · Oxford University Press eBooks · Cited by 32
Pediatrician's Communication Style: Relationship to Parent's Perceptions and Behaviors
Worchel, F. F., Prevatt, B. C., Miner, J. L., Allen, M., Wagner, L., & Nation, P. (1995) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/20.5.633 · Cited by 30
The Meanings of Research: Kids as Subjects and Kids as Inquirers
Nespor, J. K. (1998) · Qualitative Inquiry · doi:10.1177/107780049800400304 · Cited by 29
The personal constructs of coping with chronic low back pain: is coping a necessary evil?
Large, R. G., & Strong, J. (1997) · Pain · doi:10.1016/s0304-3959(97)00100-0 · Cited by 28
Physician-Patient-Parent Communication Problems
Shiminski‐Maher, T. (2008) · Pediatric Neurosurgery · doi:10.1159/000120710 · Cited by 21
Child and Infant Pain: Principles of Nursing Care and Management
Carter, B. (1994) · Medical Entomology and Zoology · Cited by 20
Children as patients: a communications process study in family practice.
Tj, S., Pantell, R., Jk, D., Wells, P. A., & Aw, R. (1981) · PubMed · Cited by 19
&NA; (1989) · AJN American Journal of Nursing · doi:10.1097/00000446-198911000-00007 · Cited by 19
Children in Clinics: A Sociological Analysis of Medical Work with Children.
Clark, E. J., & Davis, A. G. (1984) · Social Forces · doi:10.2307/2578893 · Cited by 17
Involving children in research.
Broome, M. E., & Richards, D. (1999) · PubMed · Cited by 15
Carter, B. (1994) · Springer eBooks · doi:10.1007/978-1-4899-3366-9 · Cited by 15
Child health care nursing: concepts theory and practice
Caldwell, C. (1996) · Nursing Children and Young People · doi:10.7748/paed.8.3.13.s14 · Cited by 12
Alleviating Children??s Postoperative Pain
BRIEN, S. W. O., & Konsler, G. (1988) · MCN The American Journal of Maternal/Child Nursing · doi:10.1097/00005721-198805000-00010 · Cited by 11
Lask, B. D. (1992) · PubMed · Cited by 11
The Voice of the Child in Mental Health Practice
Russell, P. (2003) · Routledge eBooks · doi:10.4324/9780203392621-10 · Cited by 7
The importance of the therapeutic alliance.
Kaplan, S. M. (1998) · PubMed · Cited by 5
Research works printed but not linked: 15
- Broome, M. E., 1998, Journal of Child and Family Nursing, 1, 3
- Carter, B., ISPP 2000 5th International Symposium on Paediatric Pain
- 1993, Children Act
- Covelman, K., 1990, Advances in pain research therapy
- Flatø, B., 1997, Clinical and Experimental Rheumatology, 15, 569
- Glaser, D., 1996, The voice of the child: A handbook for professionals, 78
- Kaplan, S., 1998, Journal of the American Optometrists’Association, 69, 637
- Lask, B., 1992, British Journal of Hospital Medicine, 47, 688
- McIntyre, S., 1977, Medical encounters: The experience of illness and treatment, 55
- Perquin, C. W., ISPP 2000 5th International Symposium on Paediatric Pain
- Rose, H. P., ISPP 2000 5th International Symposium on Paediatric Pain
- Schechter, N. L., 1993, Pain in infants, children and adolescents
- Southall, D. P., 2000, Pediatrics, 106, 1052
- Stewart, T. J., 1981, Journal of Family Practice, 13, 827
- Van Slyke, D. A. (1998). Maternal influences on children’s pain behavior . Unpublished doctoral dissertation.
Cited by
Sorted by citations
Children's Experiences of Hospitalization
Coyne, I. (2006) · Journal of Child Health Care · doi:10.1177/1367493506067884 · Cited by 332
“However, this situation is rapidly changing as researchers are recognizing increasingly the importance of directly recording children’s own perspectives (Carter, 2002; Cohen and Emanuel, 1998; Coyne, 1998; Oldfield and Fowler, 2004).”
BackgroundCoyne, I. (2008) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2008.05.002 · Cited by 314
Consultation with children in hospital: children, parents’ and nurses’ perspectives
Coyne, I. (2005) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2005.01247.x · Cited by 343
Jordan, A. L., Eccleston, C., & Osborn, M. (2007) · European Journal of Pain · doi:10.1016/j.ejpain.2005.12.012 · Cited by 201
“…become trapped in what has been termed a ‘diagnostic vacuum’ in which no final expert judgement is exercised (Eccleston and Malleson, 2003) leaving the child without a treatment plan, the parents at best disappointed and confused, and at worst under suspicion of child maltreatment (Carter, 2002).”
BackgroundInfluentialDrossman, D. A., Chang, L., Deutsch, J. K., Ford, A. C., Halpert, A. D., Kroenke, K., Nurko, S., Ruddy, J., Snyder, J. M., & Sperber, A. D. (2021) · Gastroenterology · doi:10.1053/j.gastro.2021.07.037 · Cited by 228
Metadata
- Authors
- Carter, B.
- Affiliations
- University of Lancashire (GB)
- Corresponding author
- Carter, Bernie
- ORCID
- Carter, Bernie
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2002-01
- Volume
- 12
- Issue
- 1
- Pages
- 28-41
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- OpenAlex
- W2131865090
- Cited by
- 105
- References
- 48
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 4 · 2023: 6 · 2022: 5 · 2021: 7 · 2020: 3 · 2019: 5 · 2018: 2 · 2017: 5 · 2016: 2 · 2015: 5 · 2014: 3 · 2013: 4 · 2012: 3
- FWCI
- 2.40
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Qualitative Health Research (publishedVersion)
- PubMed (publishedVersion)
- CLOK (University of Central Lancashire) (submittedVersion)
- Edge Hill University Research Information Repository (Edge Hill University) (submittedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Social Sciences › Sociology and Political Science › Children's Rights and Participation
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- pediatric chronic pain, healthcare encounters, patient voice, misdiagnosis, family experiences, patient-professional relationship
- MeSH terms
- Adolescent, Psychology, Adolescent, Attitude of Health Personnel, Child, Psychology, Child, Chronic Disease, Communication, Evaluation Studies as Topic, Female, Health Services Research, Humans, Judgment, Male, Medical History Taking, Pain, Physician-Patient Relations, Professional-Family Relations, United States
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