Development and evaluation of a telehealth videoconferenced support group for rural spouses of individuals diagnosed with atypical early-onset dementias
Abstract
Atypical and early-onset dementias can be particularly problematic for family caregivers, and support groups aimed at memory loss and Alzheimer's disease are not always helpful. Unfortunately, little has been developed specifically for caregivers of individuals with atypical dementias such as the frontotemporal dementias. Compounding the lack of access to interventions targeted specifically at caregivers of individuals with atypical and early-onset dementias are the unique needs of rural caregivers. Due to the relative infrequency of these particular dementias and the large geographical distances between rural caregivers, technology-facilitation is required for any group-based intervention. This paper describes the development of a secure telehealth videoconferenced support group for rural spouses of individuals with atypical and early-onset dementias. In addition, we provide preliminary evidence of effectiveness and describe a template for future groups based on the key therapeutic aspects of this novel technology-facilitated intervention.
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Other researchers have successfully used secure telehealth network housed in a local hospital or clinic where participants could easily travel for interventions such as support group and memory assessment.
“Other researchers have successfully used secure telehealth network housed in a local hospital or clinic where participants could easily travel for interventions such as support group and memory assessment [42, 43].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [42]
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References 45 · Cited by 97
- Authors
- O’Connell, M. E., Crossley, M., Cammer, A., Morgan, D., Allingham, W., Cheavins, B., Dalziel, D., Lemire, M., Mitchell, S., & Morgan, E.
- Affiliations
- University of Saskatchewan (CA)
- Participant collaborator, Canada
- Corresponding author
- O’Connell, Megan E
- Venue
- Dementia
- Publisher
- SAGE Publications
- Published
- 2013-02-04
- Volume
- 13
- Issue
- 3
- Pages
- 382-395
- ISSN
- 1471-3012 (ISSN-L)
- 1741-2684
- OpenAlex
- W1988135382
- Cited by
- 97
- References
- 45
- Citations by year
- 2026: 3 · 2025: 4 · 2024: 9 · 2023: 10 · 2022: 13 · 2021: 11 · 2020: 9 · 2019: 11 · 2018: 6 · 2017: 10 · 2016: 4 · 2015: 4 · 2014: 3
- FWCI
- 2.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Dementia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- telemedicine, rural caregivers, spouses of people with dementia, atypical dementia, early-onset dementia, frontotemporal dementia, family caregivers, group intervention, intervention development, intervention effectiveness
- MeSH terms
- Adaptation, Psychological, Dementia, Humans, Rural Population, Self-Help Groups, Social Support, Stress, Psychological, Caregivers, Telemedicine, Spouses
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