The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.
Challenges in administrative data linkage for research
Open accessAbstract
Linkage of population-based administrative data is a valuable tool for combining detailed individual-level information from different sources for research. While not a substitute for classical studies based on primary data collection, analyses of linked administrative data can answer questions that require large sample sizes or detailed data on hard-to-reach populations, and generate evidence with a high level of external validity and applicability for policy making. There are unique challenges in the appropriate research use of linked administrative data, for example with respect to bias from linkage errors where records cannot be linked or are linked together incorrectly. For confidentiality and other reasons, the separation of data linkage processes and analysis of linked data is generally regarded as best practice. However, the 'black box' of data linkage can make it difficult for researchers to judge the reliability of the resulting linked data for their required purposes. This article aims to provide an overview of challenges in linking administrative data for research. We aim to increase understanding of the implications of (i) the data linkage environment and privacy preservation; (ii) the linkage process itself (including data preparation, and deterministic and probabilistic linkage methods) and (iii) linkage quality and potential bias in linked data. We draw on examples from a number of countries to illustrate a range of approaches for data linkage in different contexts.
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Journal of The American Statistical Association
Fienberg, S. E. (2005) · Encyclopedia of Statistical Sciences · doi:10.1002/0471667196.ess1317 · Cited by 6,125
Benchimol, E. I., Smeeth, L., Guttmann, A., Harron, K., Moher, D., Petersen, I., Sørensen, H. T., von Elm, E., Langan, S. M., & RECORD Working Committee (2015) · PLOS Medicine · doi:10.1371/journal.pmed.1001885 · Cited by 5,749
Self-citationFellegi, I. P., & Sunter, A. B. (1969) · Journal of the American Statistical Association · doi:10.1080/01621459.1969.10501049 · Cited by 2,475
The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research
Ludvigsson, J. F., Otterblad-Olausson, P., Pettersson, B. U., & Ekbom, A. (2009) · European Journal of Epidemiology · doi:10.1007/s10654-009-9350-y · Cited by 2,403
Newcombe, H. B., Kennedy, J. M., Axford, S. J., & James, A. P. (1959) · Science · doi:10.1126/science.130.3381.954 · Cited by 770
Rasella, D., Aquino, R., Santos, C. A., Paes-Sousa, R., & Barreto, M. L. (2013) · The Lancet · doi:10.1016/s0140-6736(13)60715-1 · Cited by 604
Self-citationUnique in the shopping mall: On the reidentifiability of credit card metadata
de Montjoye, Y.-A., Radaelli, L., Singh, V. K., & Pentland, A. “. (2015) · Science · doi:10.1126/science.1256297 · Cited by 570
Holman, C. D. J., Bass, J. A., Rosman, D. L., Smith, M. B., Semmens, J. B., Glasson, E. J., Brook, E. L., Trutwein, B., Rouse, I. L., Watson, C. R., et al. (2008) · Australian Health Review · doi:10.1071/ah080766 · Cited by 507
Research use of linked health data - a best practice protocol
Kelman, C. W., Bass, A. J., & Holman, C. D. J. (2002) · Australian and New Zealand Journal of Public Health · doi:10.1111/j.1467-842x.2002.tb00161.x · Cited by 437
Privacy-preserving record linkage using Bloom filters
Schnell, R., Bachteler, T., & Reiher, J. (2009) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-9-41 · Cited by 342
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Lageson, S., & Stewart, R. (2024) · Criminology · doi:10.1111/1745-9125.12359 · Cited by 20
Ayles, J., Lima, M., & Gupta, N. (2024) · International Journal of Population Data Science · doi:10.23889/ijpds.v9i1.2370 · Cited by 2
Metadata
- Authors
- Harron, K., Dibben, C., Boyd, J., Hjern, A., Azimaee, M., Barreto, M. L., & Goldstein, H.
- Venue
- Big Data & Society
- Publisher
- SAGE Publications
- Published
- 2017-12
- Volume
- 4
- Issue
- 2
- Pages
- 205395171774567
- ISSN
- 2053-9517 (ISSN-L)
- OpenAlex
- W2775078427
- Cited by
- 357
- References
- 52
- FWCI
- 18.14
- Type
- journal article
- Language
- en
- Open access
- gold
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.