Characterizing biobank organizations in the U.S.: results from a national survey

Cited by (197)

Items 101–197 of 197

1. Legal Aspects of Biobanking as Key Issues for Personalized Medicine and Translational Exploitation
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2. A Plan for Academic Biobank Solvency—Leveraging Resources and Applying Business Processes to Improve Sustainability
   Diane Uzarski, James R. Burke, Barbara Swope Turner, James Vroom, NANCY MUNN SHORT · 2015 · Clinical and Translational Science
3. Religious Values and Biobanking Decisions: An Integrative Review
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4. Personalized assent for pediatric biobanks
   Noor A. A. Giesbertz, Karen Melham, Jane S. Kaye, Johannes J. M. van Delden, Annelien L. Bredenoord · 2016 · BMC Medical Ethics
5. Getting the message about biobanking: returning to the basics
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6. The EuPA Biobank Initiative: Meeting the future challenges of biobanking in proteomics & systems medicine
   Åsa Maria Wheelock, Linda Paulson, Jan‐Eric Litton · 2015 · Journal of Proteomics
7. Decarbonization in Biobanking: A Potential New Scientific Area
   Ryo Shirakashi, Zisis Kozlakidis, Birendra Kumar Yadav, Wayne Ng, Jajah Fachiroh, Hanh Vu, Tatsuaki Tsuruyama, Koh Furuta · 2022 · Biopreservation and Biobanking
8. Impact of Sample Processing and Storage Conditions on RNA Quality of Fresh-Frozen Cancer Tissues
   Yuanyuan Chen, Qiu-Yue Han, Qiong-Yuan Chen, Wenjun Zhou, Jiangang Zhang, Xia Zhang, Aifen Lin · 2023 · Biopreservation and Biobanking
9. A Community-Driven Intervention for Improving Biospecimen Donation in African American Communities
   Kushal Patel, Wendelyn Inman, Jemal Gishe, Owen Johnson, Elizabeth Brown, Mohamed Kanu, Rosemary Theriot, Maureen Sanderson, Pamela C. Hull, Margaret K. Hargreaves · 2017 · Journal of Racial and Ethnic Health Disparities
10. Landscape of Pediatric Biobanking: Challenges and Current Efforts
    Lalita Wadhwa · 2020 · Biopreservation and Biobanking
11. Public Comments on Proposed Regulatory Reforms That Would Impact Biospecimen Research: The Good, the Bad, and the Puzzling.
    R. Jean Cadigan, Nelson Dk, Henderson Ge, Nelson Ag, Arlene M. Davis · 2015 · PubMed
12. Anticipatory Waivers of Consent for Pediatric Biobanking
    Jane A. Hartsock, Peter H. Schwartz, Amy C. Waltz, Mary A. Ott · 2019 · Ethics & Human Research
13. Public Perspectives on Biospecimen Procurement: What Biorepositories Should Consider
    Jamie L’Heureux, Jeffrey Clark Murray, Elizabeth Newbury, Laura A. Shinkunas, Christian M Simon · 2013 · Biopreservation and Biobanking
14. At a Moment’s Notice: Community Advisory Board Perspectives on Biobank Communication to Supplement Broad Consent
    Karen M. Meagher, Susan Curtis, Kylie O. Gamm, Erica J. Sutton, Jennifer Blair McCormick, Richard R. Sharp · 2020 · Public Health Genomics
15. Quality Assessment of Cryopreserved Human Biological Samples from the Biobank of Barretos Cancer Hospital
    Ana Caroline Neuber, Tatiana Takahasi Komoto, Eduardo Caetano Albino da Silva, Vinícius Duval da Silva, Cristovam Scapulatempo‐Neto, Márcia Maria Chiquitelli Marques · 2022 · Biopreservation and Biobanking
16. Una red de biobancos para Chile: investigar hoy, para curar mañana
    Juvenal A. Ríos, Elisa Alcalde, Eugenio Ramírez V, Myriam Campbell, Tomás Labbé, Sergio Becerra, Sylvia Santander R, María Elena Cabrera · 2019 · Revista médica de Chile
17. Willingness of women to participate in obstetrical and pediatric research involving biobanks
    Renate D. Savich, Beth Baldwin Tigges, Lisbeth Iglesias-Ríos, Joanne McCloskey, Kristine Tollestrup, Robert D. Annett · 2019 · Journal of Community Genetics
18. Biobanking: How Oncology Nurses Can Contribute to Its Use
    Lori Miller, Margaret Rosenzweig · 2021 · Clinical journal of oncology nursing
19. Enhancement of Pathologist's Routine Practice: Reuse of DNA Extracted from Immunostained Formalin-fixed Paraffin-embedded (FFPE) Slides in Downstream Molecular Analysis of Cancer.
    Asma’a AL-Attas, Mourad Assidi, Jaudah Ahmed Al-Maghrabi, Ashraf Dallol, Hans-Juergen Schulten, Muhammad M. Abu-Elmagd, Adeel Chaudhary, Adel Mohammed Abuzenadah, Bruce Budowle, Abdelbaset S Buhmeida et al. · 2016 · Europe PMC (PubMed Central)
20. Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study
    Ananya S. Dewan, M Eifler, Amelia J. Hood, William L. Sanchez, Marielle S. Gross · 2025 · JMIR Human Factors
21. Utilizing In-House Resources to Correct Sample Mixups in a Medium Throughput Biorepository: A Case Study
    Timothy J. Geddes, Billie E. Ketelsen, Samreen I. Ahmed, Barbara L. Pruetz, Laura E. Fortier · 2015 · Biopreservation and Biobanking
22. Building a Population Representative Pediatric Biobank: Lessons Learned From the Greater Cincinnati Childhood Cohort
    Lisa Joy Martin, Liza Bronner Murrison, Melinda Butsch Kovacic · 2021 · Frontiers in Public Health
23. A high-throughput phenotyping algorithm is portable from adult to pediatric populations
    Alon Geva, Molei Liu, Vidul Ayakulangara Panickan, Paul Avillach, Tianxi Cai, Kenneth D. Mandl · 2020 · Journal of the American Medical Informatics Association
24. Novel Analysis Methods to Mine Immune-Mediated Phenotypes and Find Genetic Variation Within the Electronic Health Record (Roadmap for Phenotype to Genotype: Immunogenomics)
    Matthew Steven Krantz, Vern Eric Kerchberger, Wei‐Qi Wei · 2022 · The Journal of Allergy and Clinical Immunology In Practice
25. Informed consent in the era of biobanks
    Kyle Bertram Brothers · 2013 · Genome Medicine
26. Efficient Use of Biological Data in the Web 3.0 Era by Applying Nonfungible Token Technology
    Guanyi Wang, Chen Chen, Ziyu Jiang, Gang Li, C.-C. Wu, Sheng Li · 2024 · Journal of Medical Internet Research
27. Incorporating biobanking into the future of healthcare: exploring patient and healthcare worker perspectives at a Canadian tertiary academic hospital
    Sila Usta, Noor Kundu, Dylan Gowlett-Park, August Lin, Alexandra Misura, Katarina Czibere, Liying Zhang, Olga Bigun, Renato Sasso, Thibika Gunalingam et al. · 2025 · European Journal of Human Genetics
28. Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks
    Gloria M. Petersen, Brian Van Ness · 2015 · The Journal of Law Medicine & Ethics
29. Lay attitudes toward trust, uncertainty, and the return of pediatric research results in biobanking
    John Lynch, Janelle Hines, Sarah N. Theodore, Monica J. Mitchell · 2015 · AJOB Empirical Bioethics
30. Acceptability of Electronic Visits for Return of Research Results in the Mayo Clinic Biobank
    Janet E. Olson, Euijung Ryu, Kelly J. Lyke, Suzette J. Bielinski, Erin M. Winkler, Matthew A. Hathcock, Joshua T. Bublitz, Paul Y. Takahashi, James R. Cerhan · 2018 · Mayo Clinic Proceedings Innovations Quality & Outcomes
31. The patent landscape in the field of stem cell therapy: closing the gap between research and clinic
    Dinorah Hernández-Melchor, Esther López‐Bayghen, América Padilla-Viveros · 2023 · F1000Research
32. Artificial Intelligence in Medicine in the United States, China and India
    Juan Chen, Yan Zhen Lu, Ting Zhang, Zhaolian Ouyang · 2020 · International Symposium on Artificial Intelligence for Medicine Sciences (ISAIMS)
33. Analysis of Trends in Biospecimen Complexity in Cancer Research Over Two Decades
    Lauren Wotton, Brent Gali, Karlene Carvalho, Tamsin E. Tarling, Lise Anne Marie Matzke, Peter Hamilton Watson · 2021 · Biopreservation and Biobanking
34. Evaluation of elements in hair samples of children with developmental language disorder (DLD)
    Ayat Bani Rashaid, Mazin Alqhazo, Dianne F. Newbury, Heba Kanaan, Mohammad El-khateeb, Ahmad Abukashabeh, Feda Al-Tamimi · 2022 · Nutritional Neuroscience
35. Creating a Surgical Biobank: The Hershey Medical Center Experience
    Marc M. Mankarious, Tara M. Connelly, Leonard Harris, Sue M. Deiling, Gregory S. Yochum, Walter A. Koltun · 2023 · Diseases of the Colon & Rectum
36. The economics of biobanking and pharmacogenetics databasing
    Christine Claude Huttin, Michael Liebman · 2013 · Technology and Health Care
37. The patent landscape in the field of stem cell therapy: closing the gap between research and clinic
    Dinorah Hernández-Melchor, Esther López‐Bayghen, América Padilla-Viveros · 2022 · F1000Research
38. Biobanks in Latin America: Insights from a Multinational Survey Conducted in 2021 During the COVID-19 Era
    Antônio Hugo José Fróes Marques Campos, M Dávila · 2025 · Biopreservation and Biobanking
39. Saliva Biobanking: A Scoping Review of Collection, Processing, and Storage Practices to Enhance Diagnostic Potential
    Manuela da Silva Spinola, Danielle Viana Ribeiro, Giulia Beletato Nery, David D. Fischer, Nailê Damé‐Teixeira, Débora Heller · 2025 · Biopreservation and Biobanking
40. Re-consent practices in biobanks in Japan: current status and stakeholder perspectives
    Hiroko Terui-Kohbata, Hiyori Ueda, Masayuki Yoshida · 2025 · Journal of Community Genetics
41. Incorporating Concomitant Medications into Genome-Wide Analyses for the Study of Complex Disease and Drug Response
    Hillary Graham, Daniel Miller Rotroff, Skylar W. Marvel, John B. Buse, Tammy M. Havener, Alyson G. Wilson, Michael J. Wagner, Alison A. Motsinger‐Reif · 2016 · Frontiers in Genetics
42. The Xiangya Ocular Tumor Bank: A Disease-Specific Biobank for Advancing Translational Research Into Ocular Tumors
    Zhaolin Gao, Jia Tan, Sha Wang, Haiyang Yu, Ziyu Zhou, Yun Zhang, Mushi Zhou, Xiaobo Xia, Fei Yao, Jufang Huang · 2022 · Frontiers in Medicine
43. Sharing Outside the Sandbox? The Child’s Right to an Open Data Sharing Future in Genomics and Personalized Medicine
    Vasiliki Nataly Rahimzadeh · 2017 · Elsevier eBooks
44. Mothers' Decisions About Donating Newborns' Blood Spots for Research
    Elizabeth R. Eisenhauer, Alan R. Tait, Lisa Kane Low, Cynthia Arslanian‐Engoren · 2019 · The Journal of Perinatal & Neonatal Nursing
45. Integration of Genomics Data and Electronic Health Records Toward Personalized Medicine: A Targeted Review
    Ali Najafi, Neda Emami, Taha Samad‐Soltani · 2021 · Frontiers in Health Informatics
46. Collecting Biospecimens and Obtaining Biobank Consent From Patients in an Academic Health Care Setting: Practical and Ethical Considerations
    T. J. Kasperbauer, Amy C. Waltz, Brenda Lee Hudson, Bridget A. Hawryluk, Courtney M. Moore, Karen Schmidt, Peter H. Schwartz · 2021 · Academic Medicine
47. Rise of Biobanking in the EU: Evidence from the Framework Programmes
    Ľubica Kotorová Slušná, Miroslav Balog, Vladimı́r Baláž, Edita Nemcová, Richard Filčák, Tomáš Jeck, Martina Antošová · 2021 · WSEAS TRANSACTIONS ON BUSINESS AND ECONOMICS
48. The MICHR Genomic DNA BioLibrary
    Blake J. Roessler, Nicholas H. Steneck, Lisa Connally · 2015 · Journal of Empirical Research on Human Research Ethics
49. A Global View of Breast Tissue Banking
    Harriet Wilson, Ben Botfield, Valerie Speirs · 2015 · Advances in experimental medicine and biology
50. Financing UK biobanks: rationale for a National Biobanking Research Infrastructure
    Sally Gee, Luke Georghiou, R. A. C. Oliver, Martin Yuille · 2013 · Research Explorer (The University of Manchester)
51. High-Throughput Processing to Preserve Viable Cells: A Precision Medicine Initiative Cohort Program Workshop
    Rebekah S. Rasooly, Daniel R. Gossett, Marianne K. Henderson, Allison Hubel, Stephen N. Thibodeau · 2017 · Biopreservation and Biobanking
52. Biobanks—Organization, operations, and role in genomics research
    Marianna J. Bledsoe, Peter Hamilton Watson · 2024 · Elsevier eBooks
53. Demographic and socioeconomic trends in DNA banking utilization in the USA
    Joshua Prudent, Esthermarie Lopez, Donna Dorshorst, Hannah C. Cox, Joann Norma Bodurtha · 2021 · Journal of Community Genetics
54. Analysis of Biospecimen Demand and Utilization of Samples from the National Amyotrophic Lateral Sclerosis Biorepository
    Marianna J. Bledsoe, Lindsay Rechtman, Laurie Wagner, Paul Mehta, D. Kevin Horton, Wendy Kaye · 2021 · Biopreservation and Biobanking
55. Biobanking of COVID-19 specimens during the pandemic: The need for enhanced biosafety
    Olayinka Stephen Ilesanmi, Aanuoluwapo Adeyimika Afolabi · 2021 · African Journal of Laboratory Medicine
56. Balancing Privacy and Progress: Biobanks and Genome Sequencing
    Eve S. McCulloch · 2013 · BioScience
57. Sustainability in the Modern Biorepository Environment from the Perspective of the Tissue Procurement Core at the University of Iowa
    Joseph W. Galbraith · 2015 · Biopreservation and Biobanking
58. Biobank participant support of newborn screening for disorders with variable treatment and intervention options
    Megan E. Bunnell, Beth Anne Tarini, Michael Petros, Aaron J. Goldenberg, Aishwarya Arjunan, Catherine A. L. Wicklund · 2016 · Journal of Community Genetics
59. Positive association between research competitiveness of Chinese academic hospitals and the scale of their biobanks: A national survey
    Yinan Zhang, Zhouliang Bian, Yuanyuan Chen, Erpeng Jiang, Tianlu Chen, Congrong Wang · 2022 · Clinical and Translational Science
60. Implementación de tecnologías libres y sensores remotos para un biobanco: el desafío de producir a bajo costo
    María Luna-González, Silvia M. Becerra‐Bayona, Norma Cecilia Serrano, René Lobo-Quintero · 2020 · Información tecnológica
61. Rare Pediatric Eye Cancer Research: Insights From the Kids Eye Biobank
    Frances Argento, Panagiotis N. Toumasis, Kaitlin Jones, Joanna Ciezadlo, Kaitlyn Flegg, Timothy W. Corson, Ashwin C. Mallipatna, Helen Dimaras · 2025 · International Ophthalmology Clinics
62. Проблемы оценивания психологических характеристик доноров биобанка: научные и практические аспекты
    Iurii P. Zinchenko, Рыжов Андрей Леонидович, Aleksandr Sh. Tkhostov, Елена Брызгалина · 2016 · Российский психологический журнал
63. Biobanking in Cancer Research
    Lisa Devereux, Heather Thorne, Stephen B. Fox · 2016 · Springer eBooks
64. The Governance Framework of North American Biobanks: A Rapidly Evolving Policy Patchwork
    Yann Joly, Miriam Pinkesz · 2018 · Springer eBooks
65. Women’s Choices Regarding Use of Their Newborns’ Residual Dried Blood Samples in Research
    Elizabeth R. Eisenhauer, Alan R. Tait, Lisa Kane Low, Cynthia Arslanian‐Engoren · 2021 · Journal of Obstetric, Gynecologic & Neonatal Nursing
66. Regenerative Medicine: Challenges and Opportunities
    Susan Plummer, Yasser M El Miedany · 2022 · Springer eBooks
67. How to communicate and what to disclose to participants in a recall-by-genotype research approach: a multistep empirical study
    Katharina Tschigg, Luca Consoli, Norbert Brüggemann, Andrew A. Hicks, Ciara Staunton, Deborah Mascalzoni, Roberta Biasiotto · 2024 · Journal of Community Genetics
68. A pharmacoeconomic analysis of the collection and preservation of samples in the biobank of the “Instituto Nacional de Cancerología” in Mexico City
    Luz María Ruiz-Godoy, Fabiola Berenice Báez-Revueltas, María de Lourdes Suárez‐Roa, Héctor Aquiles Maldonado-Martínez, Virginia Isabel Enríquez-Cárcamo, Ana Laura Colín-González, Abelardo Meneses-García · 2018 · Cell and Tissue Banking
69. Relationships of health information orientation and cancer history on preferences for consent and control over biospecimens in a biobank: A race‐stratified analysis
    Soo Jung Hong, Bettina F. Drake, Melody S. Goodman, Kimberly A. Kaphingst · 2020 · Journal of Genetic Counseling
70. The “Federated Pediatric BioCloud” Model: State of the Art and Future Prospects in Pediatric Biospecimen Science
    William S. Schleif, Neil A. Goldenberg, Daniel Robin Catchpoole · 2020 · The Journal of Pediatrics
71. Biobanks: let’s share specimens
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72. Rapid Learning Systems
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73. Newborn Stem Cell Banking Business Models
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74. Ex Vivo Protein Post Translational Modifications in Poorly Stored Blood Plasma and Serum and their use as Markers of Biospecimen Integrity
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75. Biobanking of Oral-Derived Bioresources
    Dawool Han, Eunae Sandra Cho · 2021 · 대한구강악안면병리학회지
76. Peer Review #3 of "Samples and data accessibility in research biobanks: an explorative survey (v0.1)"
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77. Faculty Opinions recommendation of Genes, cells, and biobanks: Yes, there's still a consent problem.
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78. Peer Review #3 of "Samples and data accessibility in research biobanks: an explorative survey (v0.2)"
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79. Peer Review #2 of "Samples and data accessibility in research biobanks: an explorative survey (v0.1)"
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80. Peer Review #1 of "Samples and data accessibility in research biobanks: an explorative survey (v0.1)"
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81. Peer Review #2 of "Samples and data accessibility in research biobanks: an explorative survey (v0.2)"
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82. IDENTIFICATION OF DEVELOPMENT TRENDS OF BIOBANKING AND ITS POTENTIAL FOR FURTHER PROGRESS
    Ľubica Kotorová Slušná, Edita Nemcová, Zuzana Poláčková, Miroslav Balog, Richard Filčák, Dušana Dokupilová, Tomáš Jeck, Vladimı́r Baláž · 2021 · PROGNOSTICKÉ PRÁCE - PP (FORESIGHT ANALYSIS AND RECOMMENDATIONS - FAR)
83. The patent landscape in the field of stem cell therapy: closing the gap between research and clinic
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84. Biobank participation of persons with epilepsy in South Wales
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85. Behavioural Genetics in the Context of Proof Within Civil Procedure
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86. Assessing Decisional Regret Among Biobank Sample Donors
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87. ADVANCED TECHNOLOGIES IN MEDICINE: CHALLENGES TO LEGAL SCIENCE
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88. Reduced order computational fluid dynamic simulations in the thoracic aorta are associated with disease recorded in a medical biobank
    Ryan Sokolow, Anindro Bhattacharya, Georgios Kissas, Elizabeth W. Thompson, Cameron Beeche, Sophia Swago, David Zhang, Mukund Viswanadha, Colleen Morse, Julio A. Chirinos et al. · 2025 · Scientific Reports
89. Potential and prospects for using biomedical resource collections obtained from pediatric patients for clinics and research
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90. Current situation and future prospect of biobank
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91. Visual Confirmation of Residual Erythrocytes and Platelets in Human Plasma
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92. International Ethical Principles for Banking and Secondary Research Use of Human Biospecimens and Associated Data: The Seattle Principles
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93. A Beginner’s Guide to Decentralized Biobanking
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94. Operationalizing Precision Medicine in Drug Development: Predictive Biomarkers, Companion Diagnostics, and Regulatory Pathways
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95. Legal Status of Biobanks
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96. Legal Regulation of Biobanks: Realities, Challenges, and Prospects in the Context of Military Aggression
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97. Empathy Interview Insights: Communication as Cornerstone in Biobanks
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