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Cited by 113Mental Health and Patient InvolvementCommunity Health and DevelopmentHealth Policy Implementation Science

The DOI matches its Crossref record; 14 of the 15 references it cites were found in a registry or an index.

Innovating public engagement and patient involvement through strategic collaboration and practice

Open access
Holmes, Leah, Cresswell, Katharine, Williams, Susannah, Parsons, Suzanne, Keane, Annie, Wilson, Cassie, Islam, Safina, Joseph, Olivia, Miah, Jahanara, Robinson, Emily, Starling, Bella·2019·Research Involvement and Engagement
DOI 10.1186/s40900-019-0160-4PMC PMC6802177
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Abstract

Background: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. Methods: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice – a 'cycle' of engagement and involvement – innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. Results: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. Conclusions: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice – the ‘cycle’ of engagement and involvement – is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem.

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Fig. 1 The Public Programmes Story. Originally with a focus on public engagement with genomics, the Public Programmes team has evolved to engage and involve people across health research. The team is embedded within research programmes and leads large scale national initiatives, with a focus on diversity
Fig. 1 The Public Programmes Story. Originally with a focus on public engagement with genomics, the Public Programmes team has evolved to engage and involve people across health research. The team is embedded within research programmes and leads large scale national initiatives, with a focus on diversityCC BY · PubMed Central
Fig. 2 The Public Programmes ‘cycle’ of engagement and involvement. To stimulate an inclusive research community, the cycle revolves around co-creating high-quality engagement outputs that capture curiosity and concerns about research, the amplifying outputs to reach larger audiences. Completing the cycle relies on nurturing and/or establishing progression routes related to health research for all involved, building on engagement
Fig. 2 The Public Programmes ‘cycle’ of engagement and involvement. To stimulate an inclusive research community, the cycle revolves around co-creating high-quality engagement outputs that capture curiosity and concerns about research, the amplifying outputs to reach larger audiences. Completing the cycle relies on nurturing and/or establishing progression routes related to health research for all involved, building on engagementCC BY · PubMed Central
Fig. 3 Summary of PPIE achievements in Year 1. Visual summary of public and patient involvement and engagement (PPIE) outputs achieved by the Public Programmes team from April 2017 to March 2018
Fig. 3 Summary of PPIE achievements in Year 1. Visual summary of public and patient involvement and engagement (PPIE) outputs achieved by the Public Programmes team from April 2017 to March 2018CC BY · PubMed Central

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Research works printed but not linked: 2

  1. Weldon S. Public engagement in genetics: a review of current practice in the UK; 2004.
  2. Staley K. If there’s no method for public involvement. 2019; https://kristinastaley.com/2019/02/15/if-theres-no-method-for-involvement/ (Accessed 19 Mar 2019).

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Metadata

Authors
Holmes, L., Cresswell, K., Williams, S., Parsons, S., Keane, A., Wilson, C., Islam, S., Joseph, O., Miah, J., Robinson, E., & Starling, B.
Affiliations
Manchester University NHS Foundation Trust (GB)
Corresponding author
Starling, Bella
ORCID
Venue
Research Involvement and Engagement
Publisher
Springer Science and Business Media LLC
Published
2019-10-21
Volume
5
Issue
1
Pages
30-30
ISSN
2056-7529 (ISSN-L)
DOI
10.1186/s40900-019-0160-4
PMC
PMC6802177
OpenAlex
W2964751453
Cited by
110
References
15
Citations by year
2026: 8 · 2025: 17 · 2024: 28 · 2023: 20 · 2022: 9 · 2021: 20 · 2020: 6
FWCI
11.93
Type
journal article
Language
en
Open access
Licence
Locations
  • Research Involvement and Engagement (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
  • Research Explorer (The University of Manchester) (submittedVersion, other-oa)
Funders
  • National Institute for Health Research (CRF-2016-10043, IS-BRC-1215-20007)
  • Wellcome Trust (207028/Z/17/Z)
Topics
  • Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
  • Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Keywords
citizen participation, patient and public involvement, strategic cooperation, translational research, research collaboration, professional practice model, social justice, inclusive research, research relevance

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